Where is the RARE in federal budget? $500 million per year committed Canadian Rare Disease Strategy to launch in 2022 SHOULD have been prominent! Rare disease community is assured money is in fiscal plan but “execution plan” is not ready to go.
This #RareDiseaseDay, we're taking a victory lap on the The Quebec Court of Appeal agreeing with arguments presented by the Canadian Cystic Fibrosis Treatment Society to strike down two key provisions of the @PMPRB_CEPMB price regulations. A win for all rare disease patients!
@DavidWCochrane Not splintered. Not equal sizes. Majority worked together. Flag illustrates: 31M adult Canadians of which 91.6% vaccinated. Approx 8000 protesters. Zoom in to see the yellow dot.
I’ve spent several hours over the last few months thinking about my brother and what might have been if he would have just accepted the help and understood that it’s ok to not be ok. #BellLetsTalk#MentalHealthMatters#ParentalAlienation
Today - like everyday😥 I remember my brother Kyle. But today #BellLetsTalk remember that you are not alone, people want to help, there is help out there and it’s ok to not be ok. #suicideprevention#yournotalone Thank you Bell for being a mental health champion.
Nothing's changed at the @PMPRB_CEPMB since their hit job on #cysticfibrosis patient groups in the spring. @jyduclos, PMPRB has no mandate to opine on clinical value of meds. “Minor” improvements from #Kalydeco, #Orkambi & #Trikafta transform lives. Tell @DougPMPRB to stop now.