lisagrono 🇨🇦

cystic fibrosis advocate, if everyone was more like their dog this world would be even better!

[lisagrono 🇨🇦 @lisagrono]

@630CHED @JlynNye
Lost my little brother May 19/22
Tragic loss due to #parentalienation
Laws need to change #dadsrights #kidsfirst #SuicideAwareness #MensHealthWeek #danelloyd @jeneroux #kyleslaw

[CORD @raredisorders]

Where is the RARE in federal budget? $500 million per year committed Canadian Rare Disease Strategy to launch in 2022 SHOULD have been prominent! Rare disease community is assured money is in fiscal plan but “execution plan” is not ready to go.

[lisagrono 🇨🇦 @lisagrono]

Yes!!!!

[Adam Palmer @AdamPalmerRCMP]

We #NeverForget #Mayerthorpe #RCMP officers Brock Myrol, Peter Schiemann, Anthony Gordon & Leo Johnston who were tragically shot & killed 17 yrs ago today while bravely serving @Canada #LODD #EOW #Heroes @rcmpgrcpolice @RCMPAlberta @npffpn @VancouverPD @CPPOM

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

This #RareDiseaseDay, we're taking a victory lap on the The Quebec Court of Appeal agreeing with arguments presented by the Canadian Cystic Fibrosis Treatment Society to strike down two key provisions of the @PMPRB_CEPMB price regulations. A win for all rare disease patients!

[Alex Vindman 🇺🇸 @AVindman]

Goddamn heartbreaking.

[Ardoise16 (she/elle) @Ardoise16]

@DavidWCochrane Not splintered. Not equal sizes. Majority worked together. Flag illustrates: 31M adult Canadians of which 91.6% vaccinated. Approx 8000 protesters. Zoom in to see the yellow dot.

[lisagrono 🇨🇦 @lisagrono]

@goli49643 @evanderkane_9 This is the best!!!!!!

[Jann “stop live horse export” Arden @jannarden]

Me me me me me me me me me me me me me me me me me me me me me me me me. Honk honk. Me me me me me me me me me honk

[beth Vanstone @bethdenniss]

Severely reducing drug prices by federal regulation will harm not help patients | National Newswatch: https://t.co/VmaAU3EI2e

[Goli @goli49643]

I’ve spent several hours over the last few months thinking about my brother and what might have been if he would have just accepted the help and understood that it’s ok to not be ok. #BellLetsTalk #MentalHealthMatters #ParentalAlienation

[Keith Golinsky @KeithGolinsky]

Today - like everyday😥 I remember my brother Kyle. But today #BellLetsTalk remember that you are not alone, people want to help, there is help out there and it’s ok to not be ok. #suicideprevention #yournotalone Thank you Bell for being a mental health champion.

[CORD @raredisorders]

Calling on @jyduclos, @GovCanHealth, @JustinTrudeau to #StopPMPRB - do not move forward w Patented Medicines Regs @durhane: "We will continue to fight this https://t.co/JW7WSGgSK8 we are not giving up the fight” #CdnPoli #CdnHealth @bethdenniss

[MDvoiceforaccess @mdvoiceforacces]

Still time to let our government know changes are needed and physicians want a voice at the table so access is not limited!
https://t.co/XsyUKmhZ9N

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

Nothing's changed at the @PMPRB_CEPMB since their hit job on #cysticfibrosis patient groups in the spring. @jyduclos, PMPRB has no mandate to opine on clinical value of meds. “Minor” improvements from #Kalydeco, #Orkambi & #Trikafta transform lives. Tell @DougPMPRB to stop now.