Sam Robinson

Kind , honest and respectful

[Prof AJ McKnight @a_j_mcknight]

Coffee morning 9-12 noon today for @NIKRFcharity . Come Visit 30 bog road, Portavogie, East Coast Day Opportunities #Portavogie. lovely cakes, scones, refreshments & conversation! Glad we could call in - well done NIKRF volunteers. #RenalResearchNI @RareDiseaseNI

[Kerry Longmore @LongmoreKerry]

Calling those that care for someone with a rare condition. You are warmly invited to attend Caring with Rare: The Soft Launch of the Rare Disease Carer Support Tool
4th April, 9.30-1.30 pm,
Riddel Hall, Stranmillis.
https://t.co/Cfnhh6Ts5T

[Sam Robinson @SamRob45]

Thank you @QUBelfast supporting people with #RareDisease #RareDiseaseNI. #RareDiseaseDay2025 #LightUpForRare. Looks great & support very much appreciated!

[Prof AJ McKnight @a_j_mcknight]

Love this message from our #RAiN CRAG #RareDiseaseNI ⬇️

[Prof AJ McKnight @a_j_mcknight]

#RareDiseaseNI #RenalResearchNI

[Prof AJ McKnight @a_j_mcknight]

Wow…further evidence #multiomic analysis supports understanding #RareDisease. genetic disease testing DNA variant, methylation and RNA to improve #diagnosis and #prognosis. Substantive new finding 👇🏻#RareDiseaseNI https://t.co/UK90vDx0Q7 #RARDTAC #RAiN @RAiNAllIreland

[Prof AJ McKnight @a_j_mcknight]

What a difference a year makes - supporting @NIKRFcharity at Bob’s beer garden. @cindymc44436528 @CindyMc16677738 @SamRob45

[Prof AJ McKnight @a_j_mcknight]

With the professional pics now available! #QUB_SMDBS_PGR #Graduation #LoveQUBResearch thank you everyone 👍🎉👏. @CPH_QUB @WWIEM_QUB @QubPGJCCR @MHLSQUB #LoveQUB

[Prof AJ McKnight @a_j_mcknight]

Senior #postdoc #job available for ambitious #kidney researcher #RenalResearchNI. Come join us with your own project @CPH_QUB #LoveQUBResearch #LoveQUB @QUBPostdoc #RareDiseaseNI @NIKRFcharity @UKKidney @IrishKidneyAs @THKC1 @QUB_SMDBS

[Sam Robinson @SamRob45]

@a_j_mcknight @ANDborough @RAiNAllIreland @22Q11_NI @MDUK_News @NIKRFcharity @nichstweet @AwarenessHdani @CPH_QUB @christinezoo @QUB_SMDBS @LongmoreKerry Thank you everyone - stronger together

[Prof AJ McKnight @a_j_mcknight]

Raising awareness of #RareDiseaseNI issues with Mr Mayor Alistair Cathcart @ANDborough. #RareDisease #RARDTAC #RDTAP Thank you for hosting us today - looking forward to delivering change! @RAiNAllIreland @22Q11_NI @MDUK_News @NIKRFcharity @nichstweet @AwarenessHdani @CPH_QUB

[Prof AJ McKnight @a_j_mcknight]

@NIKRFcharity supporting research into #RareDiseaseNI. Almost all #kidney failure in children is caused by #RareDisease. https://t.co/eAZtq7C2fW -#RenalResearchNI

[Prof AJ McKnight @a_j_mcknight]

#RareDiseaseNI #RenalResearchNI

[Prof AJ McKnight @a_j_mcknight]

Kidney disease: often undetected until very severe. Can affect any of us. Every day 20 people are diagnosed with #Kidney Failure #ESRD. Research is required to help people at risk & living with this devastating condition. https://t.co/gVMoQqnN64 @NIKRFcharity #RenalResearchNI

[Prof AJ McKnight @a_j_mcknight]

Volunteer run charity supporting local kidney care and research @NIKRFcharity #RenalResearchNI #RareDiseaseNI

[Prof AJ McKnight @a_j_mcknight]

1 in 10 people are living with #kidney disease. @NIKRFcharity support vital #RenalResearchNI to prevent kidney disease, detect problems earlier, and find new treatments. @CPH_QUB @qubengagemhls_d come join us at Bob’s beer garden - weather beautiful!

[Kerry Longmore @LongmoreKerry]

📢Register for our online workshop for #Carers of people living with rare disease in Northern Ireland.@HRCIreland @bright_owls @rhodajwalker
@NI_RDP @CPH_QUB @UlsterUni @QUBengagemhls_d
@publichealthni @healthdpt @RAiNAllIreland @a_j_mcknight @Deepost30 https://t.co/mvaO9uLwNO

[Public Engagement MHLS @qubengagemhls_d]

Here's two recent pics to celebrate #Rarediseaseday2024 #RareDiseaseNI @a_j_mcknight @WSF_UK

[Prof AJ McKnight @a_j_mcknight]

Much needed NI #bereavement signposting #support website. #RareDiseaseNI #PregnancyLoss #Miscarriage #MentalHealth #Carers Delighted to see the launch 👇🏻 https://t.co/rsaLNYNtCP @RobinSwann_MLA @publichealthni @healthdpt #RenalResearchNI

[Prof AJ McKnight @a_j_mcknight]

Thank you @SuzMcGonagle & @irish_news sharing progress & hope for the future for people living with #RareDiseases #RareDiseaseNI. Looking forward to driving change with co-leads @Tim_Barrett2 Dave Jones & Volker Straub @QUBelfast @unibirmingham @UniofNewcastle @qubengagemhls_d