Sappani Foundation

The Sappani Foundation is a CRA registered charitable organization dedicated to empowering vulnerable persons and marginalized communities. 🇨🇦 🇺🇸 🇮🇳 🇱🇰

[Vijay Sapps @VJsapps]

Interesting presentation from @jonirutter from @ncats_nih_gov on new paths for rare diseases . @SappaniFDN has two gene therapy projects ; on CNS and retinal for CDG + almost ready for human trail with @PerlaraPBC on drug repurposing . Investing in R&D is only way for new cures

[Sappani Foundation @SappaniFDN]

Congrats to Humnah Tahir ,recipient of 2023 Sappani Foundation Ela award in partnership with @CNIB . The award is for an exceptional Canadian visually impaired BIPOC girl student in low income situation to support post secondary education.

[Sappani Foundation @SappaniFDN]

Congratulations to Areebah Qureshi, the 2022 recipient of The Sappani Foundation Ela Award. In partnership with @CNIB, the Ela Award supports post-secondary education for BIPOC girls with sight loss.

For more information, visit https://t.co/4MKc3HlO68 or https://t.co/Sas6ticUgW.

[Perlara @PerlaraPBC]

The @SappaniFDN, @CureSrd5a3 and @VJsapps created an Ela worm avatar for drug repurposing in 2019.

After many twists and turns, HMG-CoA reductase emerged as a target that may restore the balance between polyprenol and dolichol. https://t.co/Ls9HURFRHk

[Sappani Foundation @SappaniFDN]

Our biggest funding is towards rare diseases . 70% of inherited genetic disorders can be prevented . 95% of rare diseases don’t have a cure . Govts need to do more to fund prevention, incentivize pharma companies to invest more in rare disease cures .

[Rare Disease Day @rarediseaseday]

Looking to start a conversation on rare diseases with young people? With our School Toolkit, you can use:

👨‍🏫 2 lesson plans
📗 2 books, Merlin, the Little Feline & A Friendship Story
💜colourable poster

✨ Upcoming Teenager Lesson Plan next week!

➡️ https://t.co/lSna7Lzggf

[Rare Disease Day @rarediseaseday]

A great way to raise awareness 📣 in your network and show your support for #RareDiseaseDay is to use a personalized frame for your profile picture on Twitter.

Check out the tutorial on how to create your profile frames and apply them to your photos ➡️ https://t.co/93MyugM5Zx

[Diedrah Kelly @DiedrahKelly]

The #16Days are...

Time to take action.

Time to stand with survivors.

Time to end #SGBV.

This and every year, we join the global #16DaysOfActivism campaign to end sexual and gender-based violence.

Join us. Together we can #UNITE #Orangetheworld, and #EndVAW.

[Sappani Foundation @SappaniFDN]

Congratulations to Areebah Qureshi, the 2022 recipient of The Sappani Foundation Ela Award. In partnership with @CNIB, the Ela Award supports post-secondary education for BIPOC girls with sight loss.

For more information, visit https://t.co/4MKc3HlO68 or https://t.co/Sas6ticUgW.

[CDG Hub @CdgHub]

New CDG pages are published on #cdghub ! Learn more about disorders of N-linked #glycosylation ALG2-, ALG9-, ALG11-, ALG14- & DPAGT1- CDG here https://t.co/lkPTWM3eo3

[CDG Hub @CdgHub]

Sign up for our monthly newsletter to stay up to date on the newest additions to #cdghub, recent publications on #CDG, upcoming conferences, community events, clinical trials and more!

[Sappani Foundation @SappaniFDN]

"...Set within a clear-minded agenda for Canadian interests, this would enable Sri Lanka to emerge as a resilient and strong democracy, and provides an opportunity for Canada to earn some needed respect in a region it has been absent from for too long."

[Sappani Foundation @SappaniFDN]

An op-ed by @VJsapps and @shuvmajumdar on how Canada can work with India and Pacific democracies to help Sri Lankans rebuild collectively for a pluralistic democracy and counter China
https://t.co/szpdtMQJFG @McKinnonDavid @AnitaAnandMP @gary_srp @MASumanthiran @surendirans

[Sappani Foundation @SappaniFDN]

"For major Pacific democracies determined to establish a rules-based order, this is an opportunity to counter Beijing’s hegemonic ambitions and demonstrate how collaborative interventions can help Sri Lanka overcome the crisis...."

[Macdonald-Laurier Institute @MLInstitute]

For Pacific democracies determined to establish a rules-based order, @shuvmajumdar and @VJsapps argue that "rebuilding a bankrupted #SriLanka is an opportunity to counter Beijing’s hegemonic ambitions." #cdnpoli https://t.co/NIHtvxw3vo

[Sappani Foundation @SappaniFDN]

Call for Climate action champions. 100 of them 🇱🇰 🇮🇳🇧🇩🇳🇵🇧🇹, 18-35 yrs. 50% Women, 12 months , virtual and in person . Details here. https://t.co/2Pn5jlhTRk