@IssueGWRHelp have you been running engineering works between Didcot and Reading over the past few days? 3rd night and last night was between 1:30 and 7am!
We are calling for the government to make Heart Failure a national priority and to publicly raise awareness of HF symptoms.
This will reduce the impact and burden of HF on the patients and the NHS (currently costing £2 billion annually) and reduce the high numbers of patients being cared for in hospital (where 80% of patients are currently diagnosed) to instead being cared for from home.
Early diagnosis does not just save lives; it transforms them.
Now is the time to act.
#25in25 @BBCMorningLive@HFWarriorNI1
🚨LATE-BREAKING DATA this weekend at #HeartFailure2025.
@NirUrielMD presented a comparative analysis on 2-year survival outcomes for #HeartMate3 LVAD and HTx patients <50 showing a 12% reduced mortality when measured from time of HM3 implant compared to death or delisting from time of HTx waitlisting (90% vs 78% survival).
📊See the data: https://t.co/sOv1Oa2sXE
US Safety Info: https://t.co/6DNcaCXVtP
MAT-2506040 v1.0
📰BREAKING: Our #VoltPFA System has received CE Mark in Europe!
Read the press release: https://t.co/spIHANQ3qZ
CAUTION–This product is limited by U.S. Federal Law to investigational use. Product is not approved globally and may not be available in your market.
Powerful conversations on the importance of collaboration for effective #HeartFailure management at our #THT2025 symposium with Drs. @JerryEstepMD, @manreetkanwar, and @NirUrielMD.
Thanks to all who attended!
MAT-2501145 v1.0
Over 1.3 million children are born with a serious heart defect each year.
❤️ This #CHDAwareness Week, learn how physicians like Dr. Alpay Çeliker are working to raise awareness and close care gaps for these young patients: https://t.co/scU6hNCAfS
#LittleHeroes
Cranks Bob & Ged were both speaking in the House of Commons last week in support of the British Society for Heart Failure’s ‘25 in 25’ initiative.
The BSH is committed to reducing heart failure deaths by 25% over the next 25 years, saving 10,000 lives annually.
Go Cranks!
Attending the 'Driving Improvements in Care and Outcomes for People with Heart Failure' reception at the House of Commons. Great to see patient advocacy in decision making and policy; these two living with LVADs and cycling! #25in25@BSHeartFailure@ACBFocus@LifeSciWestmin
Great to be at @UKParliament today highlighting #heartfailure and @BSHeartFailure#25in25 campaign BSH Chair Lisa Anderson spoke of the need to detect heart failure earlier and to prevent it. Thanks to @AbbottNews for supporting, MPs and patients Ged and Bob for their stories
Crank Bob’s LVAD story was shared with the ‘We Are Undefeatable in Blackburn with Darwen’ team, which supports people living with long-term health conditions to be active
Bob was invited to share his story at Ewood Park
Watch Bob’s video here on YouTube
https://t.co/y2D1UEXKti
The ‘We Are Undefeatable in Blackburn with Darwen’ team, was so impressed with Crank Bob’s health recovery they have now adopted him as their new poster boy and are using his story to inspire those living with a range of long-term health conditions to become active.
Go Bob!
I'd be really grateful if any LVAD patients were able to help George with his study please. He is researching the factors that help adjustment to living well with LVAD.
To participate, follow this link. https://t.co/XHQYiw8DZk @georgelofthouse @almightypod@JimQuickMFT
Check out North Wales Coast ride, Day 2 on @relivecc! #GetOutThere https://t.co/VRGirt2Sr2
@ElectricCranks burn up the miles under a hot Welsh sun.
Just one more day to go
30 miles into today's leg the Crank's reached
'Llanfairpwllgwyngyllgogerychwyrndrobwllllantysiliogogogoch" station.
Looking good, so far gentlemen, just another 8 miles to Bangor Pier to go!
Go Cranks !
The Electric Cranks are starting their 2024 Big Adventure tomorrow, Tues 25th
115 miles from RSPB South Stack to Chester over 3 days
Our heroes are due at Bangor Garth Pier mid-afternoon tomorrow with regular updates on the way promised.
Go Cranks!