Suzanne Gallo

courageous capable CALS

[Suzanne Gallo @SuzaneGallo]

@patrickstoner How can you possibly get the reel rolling on a new bio-pic? Lou Gehrig. Nothing could bring more awareness to ALS, than a movie: featuring a famous actor as Lou Gehrig. My dad passed from ALS 8 years ago. My hubby diagnosed with ALS 4 years ago.

[Suzanne Gallo @SuzaneGallo]

@JohnKruk watching Phils. Hubby has ALS. Hoping to make it to Phillies ALS game. Maybe meet you! How about a new biopic Lou Gehrig. Better than the ice bucket

[Suzanne Gallo @SuzaneGallo]

@JohnKruk @Coombsie77 @bendavisnbcs John Kruk- I’m not good with X. Watching the phils now. We love you!!!
Hubby has ALS. How about a new biopic Lou Gehrig

[Suzanne Gallo @SuzaneGallo]

@bsw5020 You guys have put yourselves out there. Thank you. So very happy for you. I know you are not without your daily conflicts. These daily conflicts are the undoing of the average ALS pals and CALS. I can hardly get enthused when I’m paying out our entire retirement fund for care-

[Suzanne Gallo @SuzaneGallo]

@alsnewstoday It can make it a lot worse

[Suzanne Gallo @SuzaneGallo]

@sabrevaya Yip. Living with hubby with ALS. Lost my Dad to ALS 7 years ago. NurOwn is hope. May the naysayers live without hope. Have a bad day!

[Suzanne Gallo @SuzaneGallo]

@dantate2 Remaining an advocate for ALS, after PALS has passed can be draining. My dad passed from ALS 7 years ago. I never wanted to see those 3 letters ever again. Then my husband was diagnosed with ALS 3 years ago. I’m back to slay this beast.

[Suzanne Gallo @SuzaneGallo]

@DavidPerlmutter Oyster

[Suzanne Gallo @SuzaneGallo]

@sarahkarpar My husband never went back to his office again, after a second opinion confirmed ALS in January 2021. He was an owner in the business, so they worked it out. He fatigued easily, and didn’t want to go back.

[Suzanne Gallo @SuzaneGallo]

@Markbedwell11 As my husbands caretender, it takes me, at the very least, 26 minutes to get my thoughts together, make a cup of coffee- which I take directly back to the bedroom, before I get him up

[Suzanne Gallo @SuzaneGallo]

@fightwithjuan Join the men of ALS circle https://t.co/de5gL2xcHf

[Suzanne Gallo @SuzaneGallo]

@WishingforCure @MinoSean Traditional Chinese Medicine? Anything in particular? Lions Mane?

[Suzanne Gallo @SuzaneGallo]

@sabrevaya @NPR External help is a must. No spouse caregiver can go at it alone. Thank you for speaking up!

[Suzanne Gallo @SuzaneGallo]

@bsw5020 That’s excellent. My pals continues with PT 2x week, NeuroFitness, in Wilmington DE. He can’t walk, but PT is the highlight of his week. According to JIMMO settlement Medicare must pay. @neurofitness

[Suzanne Gallo @SuzaneGallo]

@ChrisCoons please keep fighting for NurOwn. I know you have been effected by ALS. My dad passed from als 7 years ago. My husband was diagnosed 3 years ago.

[Suzanne Gallo @SuzaneGallo]

@sarahkarpar Don’t fall. Don’t fall don’t fall. Don’t fall. Next time you will bash your face. Don’t take any chances. Update and implement your toolbox

[Suzanne Gallo @SuzaneGallo]

@JohnKruk my husband has ALS. My dad died from ALS 6 years ago. No relation, of course.
We are Phillies fans from way back to your day!

[Suzanne Gallo @SuzaneGallo]

@sabrevaya We are riding in the same sinking ship. A spouse caregiver is quickly burnt out. Medicare is required to pay for caregivers when an individual is home bound and is receiving either nursing care, PT, OT or ST at home. It’s not happening. Need Medicare advocacy. Need more PCAs

[Shah Minokadeh, M.D. @MinoShah]

23-year-old Jacob below has #ALS.

WE NEED CONGRESS. After broken promises of regulatory flexibility, several generations of ALS #DiedWaiting despite YEARS of #NUROWN safety & UNPRECEDENTED #RealWorldEvidence

Give dying ALS HOPE. DEMAND that @FDACBER grant NUROWN Accelerated Approval with a postmarketing study.

@DrCaliff_FDA, the 154 years of hopelessness for ALL diagnosed MUST END.

Congress, help END the CRUEL #FDACBER ALS regulatory RIGIDITY.

ALS IS NOT RARE. You or your loved one could be next.

@RepGuthrie @RepLarryBucshon @RepAnnaEshoo @michaelcburgess @RepGusBilirakis @RepBillJohnson @RepRichHudson @RepBuddyCarter @DrNealDunnFL2 @cathymcmorris @RepSarbanes @RepCardenas @RepDebDingell @RepAnnieKuster @RepRobinKelly @RepBarragan @RepAngieCraig @RepKimSchrier @RepLoriTrahan @BernieSanders @PattyMurray @SenBobCasey @SenatorBaldwin @timkaine @SenatorHassan @SenTinaSmith @SenMarkey @SenBillCassidy @SenMullin @lisamurkowski @SenatorBraun @RogerMarshallMD @RepJasonCrow @TeamCalvert @RepBrianFitz @ChrisCoons @RepAndyHarrisMD @DickDurbin @SenJohnThune @RepDianaDeGette @RepMikeQuigley @janschakowsky @rosadelauro @RepJohnCurtis @DorisMatsui @chairmang @RepDonBacon @SenGillibrand