Rick Hamilton

[Elijah Stacy @Elijahjstacy]

I want to get these drugs. Get healthier. Finish my movie. Find my wife along the way. Start a family. Invest millions into diseases like ALS, Cancer, DMD, Parkinson’s, etc. Better people’s lives. And glorify God with the time He has allocated me.

[U.S. FDA @FDA]

American patients shouldn't have to travel abroad to access treatments discovered here. American innovators shouldn't have to go elsewhere to test them. FDA's Expedited IND Pilot is part of the Trump Administration’s broader effort to make the U.S. the fastest, safest path from scientific discovery to clinical trial. https://t.co/ahrhFtqyXs

[Elijah Stacy @Elijahjstacy]

🎯

[Elijah Stacy @Elijahjstacy]

Me and the boys after we Destroy Duchenne 😂

[Kerri (Houston) Toloczko @KerriHT]

HEY. @FDA. Don't forget rare disease caregivers. This mom @RyuStrong_DMD is the caregiver for her beautiful boy with Duchenne after losing two brothers to it. When FDA denies treatment to patients, it also throws caregivers under the bus. No more throwing caregivers under the bus!! LET'S GO!
@chrispiaOTM29 @houmanhemmati @mike98572986 @LizzyLaw_ @HarrieScarlet @SavingSadieRae @LauraMclinn @laurencurehd @DrToonces @Elijahjstacy @twotreesthere @RepHarshbarger @RepAndyBiggsAZ @SenRonJohnson @SenRickScott @dirod923 @rachelreising96 @PeterPitts @aVoice4ALS @RainConsulting @peter_mantas @RTWInstitute @RaeTennant50178 @rareRevolutionM @checkorphan @bradloncar @RighttoTryGuy @cyabydac1 @RareDiseases @RareAction @PatientWo

https://t.co/jkQYvRpBxc

[Secretary Brooke Rollins @SecRollins]

We are on it Mr. President!

Our great AMERICAN ranchers produce the highest-quality, most incredible beef in the world AND it is a matter of national security that we be able to feed and fuel ourselves.

Big announcements starting Monday — including:

✔️ waiving red tape in processing
✔️ expanding ranchers ability to sell across state lines
✔️ rescinding outdated guidance
✔️ adding technology for faster safety data
✔️ growing real support for small processors (funding and deregulation)
✔️ fighting consolidation so small processors can compete
✔️expanding truth in labeling

The world is hungry for American beef! 💪🥩

MUCH MORE TO COME!

[Elijah Stacy @Elijahjstacy]

I want Capricor to be so widely known that my phone doesn’t autocorrect it to “Capricorn” 😂 @Apple

[Jacob @daringjacob007]

@SecKennedy @FDA @calleymeans @StefanieSpear let’s work together to get this approved by September 22 - LIGHTNING SPEED! Why can’t it be done?

[Laura McLinn @LauraMclinn]

Great news for the Duchenne community this morning! #HOPE #Duchenne #TimeisMuscle

[FlyingEagle @FlyingEagle86]

Let’s goo💪🏻 hope is alive and well. Let’s see this through @FDA @FDA_KyleD the community needs it. #deramiocel $capr #dmd

[Capricor Therapeutics @Capricor]

Today we announced that the U.S. FDA has extended the PDUFA target action date for Deramiocel in Duchenne muscular dystrophy to Nov. 22, 2026. The BLA remains under active review. We remain hopeful and focused on bringing Deramiocel to the Duchenne community.
Read the announcement: https://t.co/uFSsWB6WKZ
$CAPR #Deramiocel #DMD #Duchenne #RareDisease

[1776 America News @1776AmericaNews]

Deramiocel works to

Approve it @FDA @SecKennedy

$CAPR

[Jacob @daringjacob007]

So many INCREDIBLE boys and young men w Duchenne are about to miss out on a drug that would change our trajectory. I have taken multiple steps to protect our interests:

1. I’ve created a petition urging the FDA to follow the research conducted and PEER REVIEWED by the top Duchenne researchers. We have 4,000 signatures and need more. I encourage everyone affected to sign on! https://t.co/sMLVojez5f
2. I created a form on my website that allows anyone to email HHS and FDA leaders in 30 seconds. https://t.co/8rnsZpD3B2
3. I filed an FDA citizen petition with https://t.co/Jyh6S2Z1AV, which was accepted by FDA: https://t.co/6EGDg2wvVN
4. I created a 10-day livestream looping through the AdCom comments, ending on the 08/22 PDUFA date.

Keep fighting for your future!

[Elijah Stacy @Elijahjstacy]

“Speak up for those who cannot speak for themselves; ensure justice for those being crushed.” — Proverbs 31:8

[Elijah Stacy @Elijahjstacy]

Just got off the phone with Congresswoman Diana Harshbarger’s office. She has been briefed on the most pressing concern facing the DMD community and understands what’s at stake.

Congresswoman Harshbarger is Vice Chair of the Health Subcommittee and recently introduced the Right to Try for Individualized Treatments Act in the House.

KEEP HOPE ALIVE! 🇺🇸

[Elijah Stacy @Elijahjstacy]

Had the pleasure of meeting with Congresswoman @YoungKimCA today to discuss the importance of getting treatments through the door and into patients faster. Joined by my younger brother, Kai, who was a participant in the HOPE-3 clinical trial, as well as my parents — my mom, who is battling stage IV pancreatic cancer and making an incredible recovery! We talked at length about the most pressing current concern to the DMD community, the progress that is being made there, and what needs to happen now.

The Congresswoman said she would like to get me more connected and have me speak before other members of Congress, which would be a huge win for DMD. I’m incredibly grateful for her time and interest in helping advance medical progress for patients. 🇺🇸

[Elijah Stacy @Elijahjstacy]

Excited to meet in person with Congresswoman Young Kim’s office tomorrow! My message is simple: Time is muscle! I want to get drug to patients faster! 🇺🇸

[RyuStrong_DMD @RyuStrong_DMD]

My mama heart melts watching my son sit on the sidelines and cheer on his sister at Jujitsu practice. He’s a wonderful big brother. He could be bitter and angry because his sister gets to participate and his own muscles won’t let him due to Duchenne. Instead he chooses joy and optimism. 

This is the kind of strength children with rare diseases have. They are valuable, and they deserve every chance to live. Please, @realDonaldTrump, choose an FDA Commissioner who will see this too.

@POTUS @SusieWiles47

[Rick Hamilton @THEBUSINESS6]

@RyuStrong_DMD Kal does the same with his little sister. Never bitter, and loves to see his sister tear it up on the mats. You can tell it means so much too him that his sister has been blessed with health and enjoys sports.

[Elijah Stacy @Elijahjstacy]

KEEP HOPE ALIVE! Very encouraged and appreciate the progress being made today.

God knows that I would sacrifice myself if it meant everyone with DMD would no longer have to suffer.