Team Sutton Grace

Team Sutton Grace. Fighting to cure CF for Sutton and all those with CF. We will win this fight!

[Team Sutton Grace @TeamSuttonGrace]

.@congressmanhice @SenatorLoeffler @sendavidperdue People with #cysticfibrosis shouldn’t have to choose between their health and their paycheck during #COVID19. Please act to expand paid leave for people with chronic conditions and their caregivers!

[Team Sutton Grace @TeamSuttonGrace]

Tell @CMSGov to withdraw its recent 1332 guidance on state insurance markets - it undermines protections for people with pre-existing conditions like #cysticfibrosis & will make it harder for some ppl to access the high-quality care they need! #cfadvocacy https://t.co/Q96aTafXea

[Cystic Fibrosis Foundation @CF_Foundation]

ICYMI, advocates from the #cysticfibrosis community took to Capitol Hill to speak with their elected officials about the importance of adequate, affordable health insurance. Check out some of the highlights! #CFadvocacy https://t.co/EwnPS0liW4

[Margarete Cassalina @MargCassalina]

Have you checked out the new @CF_Foundation website? https://t.co/qNPVqyrv6m #CysticFibrosis #CysticFibrosisFoundation Great resource & info

[Margarete Cassalina @MargCassalina]

Cystic Fibrosis is complicated. Coverage shouldn’t be. 844-COMPASS (844-266-7277) Email:[email protected] https://t.co/z28nkiOFGS

[Cystic Fibrosis Foundation @CF_Foundation]

"Don't let anyone tell you your voice doesn't matter." - @MaryDwight #CFFVLC

[Ginger Birnbaum @gingerbirnbaum]

Your voice matters! #fightcf #action #cfadvocacy @CF_Foundation

[Cystic Fibrosis Foundation @CF_Foundation]

“In a complex and rapidly changing health care system, we advance research and promote innovative policies to help ensure that people with #cysticfibrosis have access to high-quality, specialized care.” - @MaryDwight #CFFVLC

[Margarete Cassalina @MargCassalina]

Drucy Borowitz, M.D., SVP, Community Partnerships explains Community Voice. Check it out! https://t.co/pjggi9Nfwm.
#CFFVLC

[Margarete Cassalina @MargCassalina]

Superstar extraordinaire, @MaryDwight 🙌 Leads the charge to get our voice as a CF community to those who need to hear it. We need adequate, affordable and available healthcare. ‘Can’t treat CF at the Minute Clinic’ #CFFVLC

[Chad Riedy @cjriedy]

Adequate, affordable and available health coverage guide the decisions and policy positions for #cfadvocacy! #makeanimpact #cffvlc

[Team Sutton Grace @TeamSuttonGrace]

Over half of all children and a third of all adults living with CF rely on Medicaid for healthcare. #CFFVLC

[Cystic Fibrosis Foundation @CF_Foundation]

"When you're telling the #cysticfibrosis story, communicate the story of our science, not necessarily the details of our science." - @AmyDemaria #CFFVLC

[T @noneyab45]

Congratulations on your Alex Award @smelis73 #CFFVLC!

[Cystic Fibrosis Foundation @CF_Foundation]

"Our mission statement isn't to find CFTR modulators for 90 to 95 percent of people with #cysticfibrosis. Our mission is to find a cure for all people living with CF." - @AmyDemaria #CFFVLC

[Peter Hodge @peter100percent]

The truely #Extraordinary @smelis73 & her family received the Alex award tonight for her work inspiring & motivating other people with CF. We all love you Melissa! @CF_Foundation #CysticFibrosis #CFFVLC

[Margarete Cassalina @MargCassalina]

“We learn something from everyone who passes through our lives. Some lessons are painful, some painless but ALL are priceless.” - Unknown

[Peter Hodge @peter100percent]

Truely inspirational listening to these 3 #extraordinary adults with #CysticFibrosis share their stories. Thank you. @CF_Foundation @smelis73 @pbeset @cherizkunkel #CFFVLC

[Team Sutton Grace @TeamSuttonGrace]

@cherizkunkel @CF_Foundation Thank you for sharing your story today and for ALL of your amazing efforts as fundraiser, foster parent, and more!!