Vociferous Eleanor Give me #Liothyronine on NHS

[Vociferous Eleanor Give me #Liothyronine on NHS @ThyroidAction]

Overeliance on #TSH is so wrong, especially when thyroid issues suspected or diagnosed.

Blood tests available only a snap shot of serum levels. Tissue levels more accurately judged by signs & symptoms?

I want symptom resolution not good levels on minimal blood tests.
#thyroid https://t.co/AGVDwhpCOB

[Eleanor See you on blue sky @albaugh_er]

We know conditions of hypometabolism, including mitochondrial dysfunction, may severely affect tissue #T3 levels.

How many #ME #CFS patients have #thyroid bloods tested & monitored?

TSH
FT3
FT4
Antibodies TPO TGAb
Folate
Feratin
Vit D
Vit B12

No testing = No clue https://t.co/WunH6loO0C

[Eleanor See you on blue sky @albaugh_er]

@DrGrahamLJ Managed by TSH and levo with all symptoms ignored only after I changed GP practice. Still bedbound.

Private trial of #T3 and out of bed with more normal cognitive function but refused any NHS care as my head endo doesn’t believe in using #Liothyronine.

[Eleanor See you on blue sky @albaugh_er]

@DrGrahamLJ Denied a timely Dx as my blood tests “absolutely couldn’t be #Hypothyroidism” despite only testing TSH and failing to notice trend of v high in range and out of range results.

Ignoring all symptoms, no more testing for 3 yrs leaving me bedbound. Refused meds with TSH 16.5 but Dx

[Eleanor See you on blue sky @albaugh_er]

@DrGrahamLJ #Thyroid issues
Described as a ‘good cancer’ easily resolved.
Poor care appears to be the norm for many with no thyroid
#Hypothyroidism care for many dreadful with TSH only management and blocked access to #T3 #Liothyronine

We speak up daily as endos beliefs trump pt experience

[Mary S @MaryS58459511]

This piece explains why patients in the UK are poorly served by their #thyroid drs. #NICE guidance suggests #liothyronine for these patients, yet this Endocrinologist fails to even mention it! @campaign_itt @ThyroidTrust @britishthyroid @thyroiduk_org

[Mary S @MaryS58459511]

@DrMVanderpump Shocking disservice to patients! You've omitted to mention the alternative treatment for those who don't do well on Levothyroxine. I had 7 years on Levo, no resolution of symptoms bc I have conversion issues and need #liothyronine #T3. Pls familiarise yourself with NICE guidance

[Improve Thyroid Treatment @campaign_itt]

@DrGrahamLJ UK thyroid treatment has huge gaps, patients left very uninformed, very unwell. Support groups/ forums are the only we way they get information. Many are refused an alternative if first-line treatment doesn't work.
Large number floundering, unable to work. Please contact us

[kerry fox @lumpybird]

Can we stop using the term 'informal Carer' to describe family members who are caring for family members ..can we start with the term 'Unpaid Carer' and in care plans outline the hours #UnpaidCarers are caring per week?

[David Wallace-Wells @dwallacewells]

The UK is in a startling degree of crisis which foreigners are just beginning to pay attention to. A long thread on the state of the NHS, the price of prolonged austerity, the future of "Stagnation Nation" and what it means for the rest of the world (1/x). https://t.co/ozZJVN85pH

[Matt Green @mattgreencomedy]

It's not corruption if it's Britain!

[Sarah Millican @SarahMillican75]

Because #JoinIn is international, here is the info if you’re not in the UK and your Christmas Day has already started.

[Sarah Millican @SarahMillican75]

Here’s the #JoinIn info if you’re new to the gang. Remember to use capital J and I so that text readers can read it for blind folk. Also, don’t wait for someone to chat to you, click on the hashtag and jump in. Start chatting.

[Larry the Cat @Number10cat]

They tried…

[Larry the Cat @Number10cat]

Just seen three ghosts waiting outside Rishi Sunak’s bedroom…

[Emily Thornberry @EmilyThornberry]

I asked them again in Nov 2020 and again in Oct 2021, and still the Amoxicillin stockpile lay empty. And now here we are, another year on, with the DHSC suddenly scrambling to get the supplies we need to deal with Strep-A. It’s essay crisis government with people’s lives at risk.

[Mary S @MaryS58459511]

@Anna_L_Mitchell @simonhspearce For 10-20% of pts T3 is needed. What about them? Us? It's really difficult to understand why doctors wouldn't want to work in patients' best interests. Please look at T3 in a more balanced way, without the bias. It's your job. NICE, NHSE, RMOC all support T3 for those who need it

[LouiseW @Louisethyroid]

@Anna_L_Mitchell @simonhspearce To T3 for me being thyroid less after RAi and losing a decade to depression and obesity on levothyroxine.can’t make any thyroid hormones and I miss them.

[Tara @aratenaj]

@Anna_L_Mitchell @simonhspearce At least some of these RCTs were flawed or biased.
Did presentation include recent papers on benefits of T3?
Did it include patient lived experience? Huge amounts.
Did it say T3 can be transformational? Yet most ICBs refuse/ remove it, harming patients?
Change of thinking needed

[Sallie Powell @SpSallie]

@Anna_L_Mitchell @simonhspearce As a patient with historically low magnesium who doesn't convert T4 to T3, the difference/benefit of adding T3 to T4 was positively like night and day, both before and after a thyroidectomy. I'm sure any clinicians with hypothyroidism/hashimotos would agree.

[Giraffly @Giraffly22]

@Anna_L_Mitchell @simonhspearce The trials presented were concluded as poor quality by NICE. They are old, small, short duration or poorly constructed. I wish Dr energy was not spent on demonising T3 patients who represent less than 1% of thyroid patients.

[Mary S @MaryS58459511]

@Dr_BoAbrahamsen @Anna_L_Mitchell @simonhspearce Not if the evidence is skewed and biased against T3 as it is here. The slide of studies by SP doesn't include the studies positive towards T3. They're out there. Please be a good doctor and research them. You are being misled. Drs aren't always right. They need to listen to pts.