#DHSSgovuk UK strategy on #RareDiseases "estimates about the health & social care ‘burden’ associated w/ rare diseases are inadequate". Even #WorstCaseScenario estimates of #PKU care needs will underestimate the effect of withdrawing #KUVAN as a treatment option at 18! @NICEcomms
As temperatures are set to dip, we want the community to know that The Elms hostel is open 24/7 and can accommodate rough sleepers ❄️ These spaces are free of charge with no cost to the service user. We provide a warm bed, a hot meal and advice.
I’m celebrating with @thevirtualpubq1 and @coopuk as Co-op shares £15 million with thousands of local causes, you can celebrate too 👉 https://t.co/Xd29GYdEFl #ItsWhatWeDo