Valerie Potter

Pall Med Cons/clinical lead pall care @ St Barts. Spec interest in SPC for people with learning disabilities & congenital heart disease. #PCPLD trustee.

[PCPLD Network @PCPLDnetwork]

EXCITING NEWS 🗞️ ‼️Save the date for our next #PCPLD conference ‼️ ‘What’s new in palliative care for people with a learning disability’. Date: 19th June 2025 , where: @KingstonUni, Surrey. Further information to follow soon….spread the word!

[Valerie Potter @ValPallCare]

@Triciahandley @wf_palliative @Tara_esw Hi Tricia , yes thanks , this is a fantastic project that we have been following @pcpld network . Webinar re new toolkit 27th June, ⬇️

[LDEngland @LearningDisEng]

Free webinar Annual health checks for people with a learning disability 19th June at 11am with @raceequality and partners. Launching of a set of culturally appropriate resources. Booking and more information https://t.co/TE4xxzyyAW

[NHS Ability @NHSAbility]

The 2022 #LeDeR report about people with a #LearningDisability and autistic people who have died has been published. Read the report in full or in #EasyRead or watch a video here https://t.co/akV1kwsvuB

[Valerie Potter @ValPallCare]

Patient safety investigation report from @theHSSIB looking at the care provided for people with a LD in acute hospitals and recommendations on how to improve
https://t.co/1PEzDtihaj.

[Marie Curie EOLC @MarieCurieEOLC]

Calling general practice staff to share and celebrate your work - improving end of life care💙5 categories - clinical & non-clinical Daffodil Standards awards. Simple to apply: https://t.co/jx64vNrXSH

Still time to submit your nomination - deadline extended to 25 September

[Barts Health @NHSBartsHealth]

Colin Bell will abseil 17 floors from the helipad today 👏

At 102, he is set to become the oldest participant to ever take on the abseil. Good luck from all of us at Barts Health! 💙

[Louella Vaughan @DrLKVaughan]

Given how heavily Frailty has been pushed by NHSE, a critically important study.

Best practice Frailty services NOT demonstrated to improve outcomes at national level.

[Carla Reigada @Carla_Reigada]

More time in a community setting: A service evaluation of the impact of intrathecal drug delivery systems on place of care of patients with cancer pain https://t.co/G8otZjw4g7

[Dr Catherine Millington-Sanders @DrCatherineUK]

Passionate about improving end of life care?
Working in general practice?
Signed up to @RCGP Daffodil Standards?
Drum roll...➡️ New Daffodil Standards Awards! 👏
5 categories🥇- Clinical & non-clinical staff applications welcome.
Simple to apply https://t.co/T8NTAp4egM

[Paul Howard @Paul_Howard_IoW]

"This is the 1st time since Christmas I've been able to eat without pain"
24hrs after initiating lacosamide 50mg bd; nerve pain due to head+neck cancer despite pregab and amitrip titrated to tolerability ceilings. Quote shared with permission

[Valerie Potter @ValPallCare]

Consultant in palliative medicine 12 month locum post @RoyalLondonHosp @NHSBartsHealth Exciting opportunity to come and join our fantastic network @Tara_esw @kulveer_rehsi

[The BMJ @bmj_latest]

People with a learning disability from a minority ethnic background have a life expectancy of just 34 years—around half that of their white counterparts who on average live to 62, to a report from the NHS Race and Health Observatory @NHS_RHO has found
https://t.co/DuQOsYKGTt

[PCPLD Network @PCPLDnetwork]

Date for your October diaries: #HospiceCareWeek 2023 9-15 October. Find out more below and how to get involved, especially if you work with people with palliative care/EOLC needs and a learning disability to help demystify what hospice care can offer ⬇️

[Marie Curie EOLC @MarieCurieEOLC]

The call for abstracts for our 2024 Research Conference is now open!

Submit your abstract by 9 October for the chance to showcase your work internationally – in 2023 over 2700 people from 46 countries registered for our conference.

Find out more & apply: https://t.co/kLZ1HedhOQ

[Prof. Mark Taubert @ProfMarkTaubert]

An article I wrote for the @guardian on the pressures of having to be overly positive - and some of the inherent dangers
https://t.co/gUQdPdDSrd

[PCPLD Network @PCPLDnetwork]

The Linda McEnhill Awards 2023 are now open for nominations!! Have you or anyone you know made a positive difference to EOLC or bereavement support for people with LDs? If so consider putting them forward - closing date 10/11. For more info/how to apply: https://t.co/lMUEw4J84j

[PCPLD Network @PCPLDnetwork]

Can you help?! We are currently looking for a new volunteer treasurer here @PCPLDnetwork to join our board of trustees. For more details please click on https://t.co/C0UTohMEL0

[Valerie Potter @ValPallCare]

@ElversonJo @BTSrespiratory @ThoraxBMJ Super - well done Jo!

[PCPLD Network @PCPLDnetwork]

Exciting news alert 📣!! Our first 2023 #PCPLD webinar in conjunction with @VictStuProject looking at EOLC planning with people with learning disabilities. WHO, WHY, WHEN & HOW…. Join the conversation https://t.co/u2t9fPCZbO