The Victoria & Stuart Project

Involving people with learning disabilities in end-of-life care planning. Working together to develop a toolkit and resources. Led by @TuffreyWijne (NIHR202963)

[The Victoria & Stuart Project @VictStuProject]

We have moved to BlueSky🦋The project is over but we are working on new follow-up projects. Follow us there instead: https://t.co/SqqO1Lfg6l.

[The Victoria & Stuart Project @VictStuProject]

Join our session tomorrow! #MacmillanProfessionals

[Andrea Bruun @AndreaBruun]

On my way to the @macmillancancer Professionals Conference in Wales⚡️ I am talking about health inequalities, learning disability, and The Victoria & Stuart Project on Friday in the ‘Getting It Right at End of Life’ session (11.25-12.00) chaired by @drol007. Can’t wait!

[The Victoria & Stuart Project @VictStuProject]

Join our session at 12.15 on Wednesday 📢

[Andrea Bruun @AndreaBruun]

On Wednesday, I am presenting at the Learning Disability and Autism Conference hosted by @NHS_ELFT ✨I am excited to be talking about end-of-life care planning with people with learning disabilities and @VictStuProject. More info: https://t.co/nY21TAg788

[PCPLD Network @PCPLDnetwork]

PCPLD National Conference ‘What’s new in palliative care for people with a learning disability?’. 📣Call for abstracts 📣 Come and share your story, project or research! Details below ⬇️

[The Victoria & Stuart Project @VictStuProject]

Save the date 🗓️

[PCPLD Network @PCPLDnetwork]

EXCITING NEWS 🗞️ ‼️Save the date for our next #PCPLD conference ‼️ ‘What’s new in palliative care for people with a learning disability’. Date: 19th June 2025 , where: @KingstonUni, Surrey. Further information to follow soon….spread the word!

[PCPLD Network @PCPLDnetwork]

Brilliant ways to support advance care planing discussions: @VictStuProject @NoBarriersHere
Check them out! Co-produced by people with learning disabilities!

[APCSW @APCSW1]

Just one day till our annual conference! Excited to see all our lovely members and learn from brilliant speakers @olivia_warnes, Dr Andrea Bruun @VictStuProject and Professor Kish Bhatti-Sinclair.
Birmingham here we come! ☺️

[The Victoria & Stuart Project @VictStuProject]

End of life care planning...
How would YOU feel if a nurse came into your bedroom at home?

Listen to Richard, Leon and Amanda pondering this question, and more:
https://t.co/AMluX6FCKH

Download WHEN I'M ILL cards:
https://t.co/X7E1XuLbms

[The Victoria & Stuart Project @VictStuProject]

We are back at the @APCSW1 annual confernece, this time with @AndreaBruun as one of the keynote speakers📢 We are excited to talk about end-of-life care planning with people with learning disabilities and learn from the audience and the other speakers. See you on 27 September!

[The Victoria & Stuart Project @VictStuProject]

On Friday, @AndreaBruun did a workshop with @mariecurieuk on our end-of-life care planning toolkit. Attendees tried the resources we have developed and discussed how they could implement the toolkit in their work and services. The room was buzzing - a great Friday afternoon!

[The Victoria & Stuart Project @VictStuProject]

Today is officially the last day of our amazing project. Here is our final report in accessible format (7 min video)
THANK YOU everyone! Please share!
https://t.co/mr5lBTLliv

@NIHRinvolvement @KingstonUni @DimensionsUK @MeetMacIntyre @VODGmembership @MSHospice

[The Victoria & Stuart Project @VictStuProject]

After 2 year of hard work, we said goodbye and thank you to Leon today. Here are his amazing reflections
https://t.co/2DIwFG4o4f
Leon, you’ve been wonderful!!!

[The Victoria & Stuart Project @VictStuProject]

@_RiniJones_

[The Victoria & Stuart Project @VictStuProject]

Look what just came in the post? Our Let's Talk About Funerals @uk_beyondwords resource, beautifully printed by @weareimpress, all ready for a workshop with @MarieCurieEOLC tomorrow. We are excited to share our toolkit with and learn from Marie Curie staff!

[APCSW @APCSW1]

Spaces available for our 2024 conference - exploring equitable access to palliative and end-of-life care.
September 27th, Birmingham.
Speakers include Olivia Warnes from @hospiceuk Dr Andrea Bruun @VictStuProject and Prof Kish Bhatti-Sinclair.
Book here: https://t.co/2PdNAjPfgK

[The Victoria & Stuart Project @VictStuProject]

Playing the hat game all over the world 👑🎩🪖 Put on your hat if you went to the @IASSIDD world congress.
We had a great time presenting our work and meeting new people at the conference. Soon it’s time to get ready to leave Chicago and go back home.

[Irene Tuffrey-Wijne @TuffreyWijne]

We’ve won the Best Photo Competition! Kingston University London at the closing ceremony of @iassidd #iassidd2024

[The Victoria & Stuart Project @VictStuProject]

We have published an academic article about the work we did with the All Together Group!✨ Thank you to our fantastic All Together Group members - we couldn’t have done The Victoria & Stuart Project without you!

Check it out here:
https://t.co/hLGClSZEJh

[The Victoria & Stuart Project @VictStuProject]

We’re at the 17th @IASSIDD world congress in Chicago this week! We are doing several presentations throughout the conference. Come say hi to the team if you’re here too! #IASSIDD2024

[Irene Tuffrey-Wijne @TuffreyWijne]

We gave 4 talks, sat on a panel discussion, recorded 2 podcasts (& edited one), made this video… and were thrilled to meet loads of old and new friends from the international intellectual disability research family @IASSIDD #iassidd2024 @yonalunsky @AliveLeder @VictStuProject

[Irene Tuffrey-Wijne @TuffreyWijne]

Really enjoying Chicago! The serious work starts tomorrow @IASSIDD #iassidd2024

[Andrea Bruun @AndreaBruun]

Very excited to be speaking about the @VictStuProject at the @NHS_ELFT National Online Learning Disability and Autism Conference later this year 💻

Check out this year's themes and sign up here: https://t.co/nY21TAg788