ValproateSurvivors 🤰 #Valproate caremongerer

Campaigning and researching since 2001

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@SarahWoods66 I set time aside and watch it on TV. Get all the plant names etc. cut price Pimm's, strawberries & cream / popcorn etc etc no parking problems, interviews with designers and growers. You can buy the stallholders fripperies online.

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

https://t.co/NtKpk60JbO

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@ShaunLintern @SharonHodgsonMP

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@RosieDuffield1 @HysteroscopyA I guess they see it as a finance matter - Treasury hold the keys to the chest and all these scandals need financial redress - even to provide what they call non-financial redress, it needs funding. Health has become a money issue, a Justice issue.

[Shaun Lintern @ShaunLintern]

The Public Office (Accountability) Bill will create new laws that potentially significantly impact NHS managers and those who have for years covered up, lied and avoided accountability in past scandals:

[Sling the Mesh @MeshCampaign]

Shadow Health Minister Dr Caroline Johnson says she finds it remarkable the government has still not given a commitment to compensation for women harmed by pelvic mesh.
https://t.co/jBZZIDD6fh

[Fibroid New Research @FibroidNetwork]

Beyond the Boxed Warning: A Call for Regulation of Psychiatry’s Most Teratogenic Drug
Valproate
⁦@ValproateUK⁩ ⁦@APPGFDNH⁩ https://t.co/NgBuWHBq2G

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@SusanMorgan19 @FibroidNetwork Do they have a stakeholder group covering devices? They had one for Valproate. I'm really sorry to hear you're still coming up against these brick walls, this level of disregard is insulting.

[mesh injured patients 🕊 @SusanMorgan19]

Sadly @RCSnews the NHS is not transparent - both NHS and Private hide or alter notes, do not present audits of harm, falsify %’s and in my recent experience neither NHS nor Private are mandated to recall patients where harm is proved under the #NPRF National Patient Recall Framework whiz was set up after the Ian Paterson inquiry identified “wilful blindness” - recalls and inquiries should be robust and no one should be able to dodge this by using false narrative and self investigation!

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@Jeremy_Hunt Does the submission include medicines in pregnancy?

[mesh injured patients 🕊 @SusanMorgan19]

https://t.co/OCxg9Kcqvd

🚨This doctor lied to protect the implanting surgeons and herself -
With deliberate Concealement and dishonesty many of us were timed out of our claims due to lack of medical evidence

🚨Deliberate Concealment: Under Section 32(1)(b) of the Limitation Act 1980, if a defendant deliberately conceals a fact relevant to the claimant's cause of action, the limitation period is postponed.

🚨How can the Rule of Law exist if a surgeon is permitted to ‘lie their way out of a claim’.

👉The Limitation Act should not protect the dishonest doctor over the injured patient. 

@bmj_latest @wesstreeting @PSCommissioner @MoJGovUK #women #mesh #redress

[Fibroid New Research @FibroidNetwork]

Where are Audits, of the Mesh Implanting & Removing Centres, requested by the First Do No Harm Inquiry & Redress for harms? @APPGFDNH
The Patient Safety Commissioner Role was implemented for this
Have women been abandoned on indefinite waiting lists?
Are there skilled surgeons?

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@Malriel @TazHussain007 @sharrond62 @SusanMorgan19 Shocking what's happened to you all. It makes no sense.

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@emilyltownsend @PSCommissioner Thanks for the support it's been far too long now. Overwhelming support for an interim payment from MPs at the recent debate - completely ignored!

[mesh injured patients 🕊 @SusanMorgan19]

My colleague and I wrote copious well studied documents for the government from 2012….
In 2018 we wrote to Baroness Cumberlege raising valid points after our meeting with her in December 2018 - but we were never invited to speak at the oral testimonies!!!
Many valid points we raised were not adequately responded to ….

“ I do hope for positive outcomes for the TVT/Pelvic mesh injured in the New Year who are in need of full apology and compensation for the unconsented and experimental use of a device meant to enhance health, but for it caused utter devastation.
Kind regards and Happy New Year. 
Susan Morgan and Vasanta Suddock (RGN, BSc Hons, BA Dip)
31st December 2018”

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@myfight2beheard @ShaunLintern @PSCommissioner PSC is now part of MHRA. But it might just be an Elon thing that the accounts monitored

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@myfight2beheard @ShaunLintern @PSCommissioner Agreed. It's about doctors providing the right information. But while the powers that be argue about whose fault it is, we all need compensation for our families so that we can move forward and get some kind if respite.

[Shaun Lintern @ShaunLintern]

🚨 For the first time the government has said financial compensation for sodium valproate victims is being considered but there is still no timetable - now @PSCommissioner says she will target No.10 for answers:
https://t.co/M44RhCGgYJ

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@Jeremy_Hunt Because they have better employment protection and social welfare - resilience in the system and the population overall. Less need to cover backs and tracks. And probably fewer conflicting medical organisations.

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

@SusanMorgan19 The Review was good but crucial details weren't available or were redacted. It picked up the common threads on informed consent to treatment but not the specific flaws that caused these specific failures. A PI would help.