Benjamin Stephens

If you ain't tryin you're dying. ALS warrior and advocate!

[Benjamin Stephens @WayneStephens77]

@LisaMar17763916 @JamieRoseBerryy @FDACBER @Rachael308Faye #TrueWarrior

[Benjamin Stephens @WayneStephens77]

@MaryKusior @US_FDA I'm still here. Trying to find the light. I'm not sure how, but I am trying.

[Benjamin Stephens @WayneStephens77]

Check!!! Your fucking move @US_FDA

[Benjamin Stephens @WayneStephens77]

@bernie_d27 @US_FDA Still proverbial kicking. Still battling this disease.

[Benjamin Stephens @WayneStephens77]

I hoped for #drugsinmybody I feel like that it was just another letdown in my journey I am fucking tired of being the fool I should have known better You can't beat the fucking "MAN" I want my final wish to be Take my dead body and dump it at the front of the @US_FDA

[Benjamin Stephens @WayneStephens77]

@Mayuri_Saxena PREACH!!!

[Benjamin Stephens @WayneStephens77]

@SethPoling10 It's doing a lot better. I have an appointment to see about botox in a couple weeks

[Benjamin Stephens @WayneStephens77]

For the last few months I have let bitterness and anger control my soul Bitter at people who I thought would be there for me And sadly showed me to be wrong I have been struggling with this and the reality of my situation Shit got real when I had to get a trach (1/2)

[Benjamin Stephens @WayneStephens77]

@HaterAls @moonshadow407 I'm still here, trying to find my way!

[Benjamin Stephens @WayneStephens77]

@ElaineMannFL Still trying to find the light again. I am slowly figuring it out. I just need some positive news about treatments. I don't see anything that I can get excited about. It was Nurown for me. But I don't see me getting the opportunity to find out.
Thank you for checking in !

[Benjamin Stephens @WayneStephens77]

I think that I might need some professional help.

[Benjamin Stephens @WayneStephens77]

@MaribethW9007 Thank you for your concern. I am having a better day. Just going to try to build off of that.

[Benjamin Stephens @WayneStephens77]

I have fallen off the ALS wagon and crawled back in the black hole of depression
It gets harder and harder to claw my way out
I go right back to isolation mode. I don't want to be that person
But it is really hard not to in a facility
I am going to try to stay out of my head

[Benjamin Stephens @WayneStephens77]

@SethPoling10 @bsw5020 @SteveGleason @pjgreen @ScottFightsALS @jonstew1982 @Garrett_J_Smith @ChrisSnowCGY @stevens_nation @AdyBarkan @derekgunz @AlsDads @Silver_Fox10_7 @KRob8753 @MMoutsoulas @SteveGMedia @GJBest1982 @ThurmanTough @Strongwhenweak @skalpakoff @johndhopkins Happy Fathers Day to you too brother!!!

[Benjamin Stephens @WayneStephens77]

@barbara_epstein Hugs and kisses!

[Benjamin Stephens @WayneStephens77]

@barbara_epstein Goodnight Barbara, sweet dreams!

[Benjamin Stephens @WayneStephens77]

First time having my eyes dilated since I had the Tobii
PSA: Plan on not being able to use it for a while.

S/N I have to have 2 shots in my left eye
IN MY FREAKING EYE

[Benjamin Stephens @WayneStephens77]

@barbara_epstein Thank you Barbara.

[Benjamin Stephens @WayneStephens77]

@HaterAls I have blood behind my left eye. They said that it was probably from my diabetes.

[Benjamin Stephens @WayneStephens77]

@barbara_epstein I am! Everyone needs someone!

[Benjamin Stephens @WayneStephens77]

@barbara_epstein
Good afternoon Barbara!🤠