@FNDHope Keep us informed of the places you have sent a request. Send the details including the contact name and their email address to [email protected] to ensure FND Hope can follow up on your behalf.
@FNDHope When an online Lighting Request Form is not available, feel free to DOWNLOAD the Light Up Request Letter to send to the appropriate authorities along with the FND Hope letter of support..
@FNDHope Google the property you wish to ask Light Up.
Many places will have an online Lighting Request Form for you to complete. Refer to the Light Up Request Letter for details
Excited to be launching a new app today! @MyFNDapp
It has has been a long journey but I am really proud of the result. Thank you to everyone who supported it. #fndaware#FND
FNDcourage is now officially a non-profit organization (501c3). One step closer to supporting anybody with FND no matter their financial abilities. It makes me happy and motivated to move forward with@my passion of helping as many people with FND as I can.
Did you miss @FNDPortal talk during our World FND Month Virtual Conference? Don't worry we have now uploaded it on to our website for you to watch.
FND Portal 'All reflections are light' a patients voice perspective.
@fndhopeuk
https://t.co/lIIv8fsKPX
🧡Research Opportunities 🧡
We currently have 8 Research Studies which are recruiting patients. All the studies have been approved by FND Hope Research Committee.
This is a great opportunity to be involved to help change the #FND Paradigm
https://t.co/yKNvOmmuUz
Thanks to all who were proactive🧡 I'm proud to be involved in WORLD FND MONTH, in my volunteer roles, but mostly honoured to work with Bridget Mildon, my passionate and inspirational friend.
#FNDaware#FND2020#LetsTalkFND
Thank You for your support during World FND Month. Your voices are powerful and FND Hope will not stop our work until the world hears your voice. The response to our stigma survey was overwhelming & proof that more awareness is needed. #WorldFNDMonth2021 https://t.co/1pWIGVmpXn