Amazing powerful protest for ME/CFS(and long covid) in from of Germany's ministry of research. Body bags symbolize patients left without medical help and research for their condition. LC ME advocates, take notes. Humanitarians take a look at yourselves and ask why are you absent.
ME/CFS must have some really interesting disease mechanisms.
People starting with just ME/CFS spontaneously develop diseases like POTS and MCAS at a much higher rate.
Not to mention how PEM can make new symptoms appear and permanently worsen the illness.
#DontForgetME ME/CFS is highly debilitating and even at a mild level it can mean that people have lost 50% of their capacity, have an inability to work, or even have a family. 25% are so severely affected that they will be unable to mobilise or carry out any daily tasks for themselves, are in bed for the majority of the time, are generally extremely sensitive to light, touch, sound, and smell, and rely on full time care @PRCBradford @PRCLeicester @NIHRresearch@docjohnwright@LucyChappell2@profmjdavies@kamleshkhunti@NIHR_UKCRFN@theMRC@CityOfResearch #MEAwarenessHour
We agree with this. Chronic fatigue syndrome describes a group of symptoms, not the actual illness. Moreover, CFS has been employed to minimise the severity of myalgic encephalomyelitis (ME). It has, and still is, used by those who seek to harm #pwME#MEAwarenessWeek#ExposeMENow
On #WorldMEDay, we come together as a #GlobalVoiceForME. Millions more are developing #MECFS triggered by #COVID. This is a global health crisis.
We demand:
Recognition
Research
Respect
Take action to call on your country to become a #GlobalVoiceForME at https://t.co/QO9SfEOlxY
This will go down as one of my favourite Vardy finishes because it is so wildly unnecessary.
He nearly falls over he whacks it so hard.
It is simply Jamie Vardy having the time of his f*cking life and I LOVE to see it.
#lcfc
The ONLY way to prevent harm is to either do training on M.E (we can supply that).
OR
Adhere to the @NICEComms M.E guideline.
West Middlesex Hospital/staff have done neither.
#SaveCarlasLife#ExposeMENow
Severe and very severe M.E. sufferers shouldn't have to fear going into hospital, they shouldn't have to fear not being believed... but this IS the reality. #SaveCarlasLife#ExposeMENow