got long covid?

+ ɪ ᴅᴏɴᴛ ᴄʀᴇᴀᴛe ᴅᴏᴛs, ɪ ᴄᴏɴɴeᴄᴛ ᴛʜeᴍ ••••••••••••••••••• + ʀᴇsᴇᴀʀᴄʜ & ᴀᴅᴠᴏᴄᴀᴄʏ | @nih @solvecfs ex @meta • + ᴠɪᴇᴡs ᴀʀᴇ ᴍʏ ᴏᴡɴ ✊🏻🤍••••••••••••••••••••••••••••

[got long covid? @_gotlongcovid]

all I want for #LongCOVIDAwarenessDay is… to be *tweeted by the @latimes ?!*

(can you tell I haven’t been here much)

jaw = dropped // thank you!!!

[Los Angeles Times @latimes]

Long COVID leaves thousands of L.A. county residents sick, broke and ignored https://t.co/2RxypnUFkm

[Solve ME/CFS Initiative @PlzSolveCFS]

Advocacy Week 2026 starts this Monday, March 23. We're reaching out to Patient Safety Agencies, State Medical Boards, & Chief Medical Officers to get #MECFS on national medical licensing exams.
Register & get your toolkit here:
https://t.co/7hzFgVl1aj
#MEAwarenessHour #PWME

[Solve ME/CFS Initiative @PlzSolveCFS]

Before #LongCovid made her too sick to work, Elle Seibert was Solve's Registry Data Manager. Today, she and other patient advocates are urging the LA Board of Supervisors to create a task force to study #LC and its impact.
Watch: https://t.co/F6Frb3WoXI
#LongCovidAwareness

[got long covid? @_gotlongcovid]

@NBCLA LA County Wants a #LongCOVID Taskforce

[NBC Los Angeles @NBCLA]

The symptoms and degree of disability vary for those suffering from long COVID, but advocates want the Board of Supervisors to create a task force to better understand the condition and its impact.
https://t.co/SZ9Av4GHq4

[Solve ME/CFS Initiative @PlzSolveCFS]

Check out this @latimes story that shines a light on the devastating impact of #LongCovid. Thank you, Elle, Lawrence, and Beth, for sharing your stories on #LongCovidAwarenessDay.

[Los Angeles Times @latimes]

Long COVID leaves thousands of L.A. county residents sick, broke and ignored https://t.co/2RxypnUFkm

[got long covid? @_gotlongcovid]

@xxxXFitzXxxx @Laureninthezone @latimes @TaylorLorenz pay for my botox then 😘

[Meighan Stone @meighanstone]

THANK YOU to everyone engaging on my #OneoftheTwo #LongCOVID response—can hardly believe 85k views! Somehow now an apartment repair emergency has displaced us during the holidays. Still determined to start 2026 in gratitude, so please know will respond to your kind messages soon!

[wear a mask! @wrath_776]

Ran a half marathon in an n95 today but abled bodied folks insist grocery shopping in one is too hard 😭

[Chimére L. Sweeney @chiluvs1]

I don’t think many in our community care about masking as much as they claim. When ppl thank + praise the Secretary of HHS, who held a meeting without masks — + then he coughs the entire meeting, I think we are doing that selective outrage thing again.

[got long covid? @_gotlongcovid]

@chiluvs1 IVs, HBOT + International Aphaeresis trips for the rich,
Medical Gaslighting, OTC drugs and pacing
for the rest of us.

SMH 🙄

[got long covid? @_gotlongcovid]

@chiluvs1 ofc! a poor word choice on my part.

we are absolutely agreed re: affordability.

it is an atrocity that some therapeutics exist that can give subsets of longhaulers some of their life back, but only if and when we are able to afford it.

[got long covid? @_gotlongcovid]

@chiluvs1 😮‍💨

[Ziyad Al-Aly, MD @zalaly]

Senator Bernie Sanders @SenSanders has just introduced a U.S. Resolution designating March 15, 2024, as "Long COVID Awareness Day"

Thank you @SenSanders for your outstanding leadership!!!!

https://t.co/xJEy12DcXU

[Hannah Davis @ahandvanish]

One of the biggest advocacy opportunities of the year has launched - FDA/CURE-ID's #LongCovid treatment survey!

There are many treatment surveys, but this one is special - the data will be used as evidence to help inform which drugs to study in clinical trials!

Please RT!

1/

[Health Affairs @Health_Affairs]

Roses are red
But not a necessity
What I want for Valentine's Day
Is simply health equity

#HealthPolicyValentines

[Dr. Lucky Tran @luckytran]

The CDC is claiming that shortening isolation policies makes it more practical for workers because they can get back to work more quickly. But in reality, it does the opposite because it makes workers more sick.

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

NIH has just announced an additional $515 million over the next *four years* for the RECOVER Initiative to bolster Long COVID Research efforts.
https://t.co/Wdc7VH8ND0

The $515 million in additional funding will be used to continue:
1- Testing additional interventions in clinical trials to find effective treatments to reduce the burden of Long COVID.
2- Deepening our understanding of how SARS-CoV-2 affects each part of the body including how it triggers Long COVID as well as identify potential biological markers for diagnosis and treatment.
3- Investigating longer-term effects of SARS-CoV-2 infection in adults and children to understand who fully recovers over the long term, how the virus affects risk for other diseases such as diabetes, cancer and neurological disorders, and factors and interventions that contribute to recovery.
4- Maintaining support for data management and research infrastructure to continue the collection, integration, analysis and storage of many diverse types of clinical data and biospecimens necessary to further understand the effects of COVID-19 and inform interventions.

We are thankful that the National Institute of Health (NIH) has broadcasted its commitment to continuing its #LongCOVIDresearch efforts with this four-year, $515M reinvestment into RECOVER. However, this amounts to less than $130 million annually and limits funding available for clinical trials which ultimately need an investment of billions annually to explore treatments for Long COVID.

The COVID-19 Longhauler Advocacy Project is still calling on Congress to provide at least $3 Billion annually for at least the next ten years for Long COVID research, which should be made available to individuals both independent of, and a part of RECOVER, to truly advance our understanding of Long COVID and its systemic impacts. There are tens of millions with Long COVID, a number continuing to grow daily due to continued SARS-CoV-2 reinfections. Learn more about C19LAP Funding Requests here: https://t.co/LmzY6ozxDc

Additionally, we sincerely hope the Long COVID patient community will have *significant* involvement at every stage of the process in shaping the next clinical trials to come out of RECOVER. We urge the organization of this process to begin immediately and be inclusive of patients both internal and external to RECOVER.

We need an all-hands-on deck approach, internal and external to RECOVER, to rapidly find solutions for Long COVID. As we approach Long COVID Awareness Day on March 15th, C19LAP will be releasing several actions for the community to take part in to support #LongCOVID funding requests and awareness. We hope you will join us in these efforts. Those actions will be available at https://t.co/xq5wHQ88WK