A Chronic Voice

I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth

[A Chronic Voice @AChVoice]

Don't forget to check out the revamped #website, and visit our #AboutPage for more info and resources. My aim is and always will be to raise #awareness about lifelong #illnesses from VARIOUS #perspectives. Context matters. 👉 https://t.co/g1G2fHMse6

#ChronicIllness #disability

[A Chronic Voice @AChVoice]

“While we can understand #fitness in many ways, #exercise scientists commonly break it down into two broad categories.. #aerobic [ability to use oxygen to create energy] & #anaerobic fitness [short, high-intensity #movements].": https://t.co/iaLhkWXFCS via @_HunterBennett_

[A Chronic Voice @AChVoice]

“The #CSS contrast-color() function shifts that maintenance burden..to the #browser. By passing a base input #color into the function, the engine evaluates & returns a highly contrasting companion color..depending on..highest #readability score”: https://t.co/ta4inWMHbI #websites

[A Chronic Voice @AChVoice]

"#Caring for a #ChronicallyIll person can have a negative impact on your #SocialLife. You may find yourself canceling plans or avoiding #social activities. You may feel like you are missing out on important #LifeEvents": https://t.co/NqLl2BuodW

#caregiver #carer #ChronicIllness

[A Chronic Voice @AChVoice]

“I believe that by requiring the majority of patient #advocates (who would just like to attend a #conference, network, learn & not present their own #research) to pay full-price registration fees, the #ACR is quieting the #patient voice”: https://t.co/3vKf6mAkCZ by @Sarahsisbot

[A Chronic Voice @AChVoice]

"#Choose “#GoodEnough” — a stepping stone, not a dead end. Grow where you’re planted, not in #perfection’s barren field. Choose growth, not paralysis" (29 mental traps that get in the way of your best life): https://t.co/Vyy5ph5yne via @postanly #PersonalGrowth #ChronicPain

[A Chronic Voice @AChVoice]

"I’ve faced #discrimination in the #workplace many times especially from HR. They’ve even used my #illnesses as an excuse to exclude me from certain company activities, in order to scrimp on costs": https://t.co/pwKWwxdMCN

#ableism #singapore #ChronicIllness #inclusion #disabled

[A Chronic Voice @AChVoice]

"they sent me in for X-rays and two weeks later, they’re like, we’re pretty sure you have something called #AnkylosingSpondylitis. And I was like, oh, thank God it’s not #RA. Little did I know.": https://t.co/FmnTQK16Pf via @realcc @globetrotteri #ChronicIllness #disability

[A Chronic Voice @AChVoice]

"Most people don’t notice. Or they think it’s just a habit. But leaning is one of those quiet #ChronicIllness #adaptations that becomes automatic. Your #body figures out how to save energy wherever it can": https://t.co/ZBsnJ44dtf by @tanyahindes #disability #spoonie #ChronicPain

[A Chronic Voice @AChVoice]

"But ‘#rewiring’ is a risky #metaphor ..borrows its confidence from #engineering, where a faulty system can be repaired by swapping out the right component..smuggles that confidence into #biology, where #change is..messier & often incomplete": https://t.co/2nsCDRIstr via @aeonmag

[A Chronic Voice @AChVoice]

"Many #cultures — especially #Japan —
treat #effort as moral #virtue.
Effort is praised.
#Endurance is admired.
#Persistence is celebrated.
But when effort stops working,
this belief becomes cruel": https://t.co/HkrFPHdUeB by @kenken02122000

#ChronicIllness #awareness #NEisVoid

[A Chronic Voice @AChVoice]

"Am I saying that the #disabled persons '#demands' should always..b followed? No. #Compromise is often needed. & there might even turn out to be diff ways to meet the need that will work even better than the original suggestion.": https://t.co/BygLErgZ0A by @stickmancrips #human

[A Chronic Voice @AChVoice]

"I was frustrated by the lack of info out there when I was searching for answers. Such occurrences are extremely rare..But that doesn’t mean that I cannot contribute my experience and knowledge as a #patient in some ways.": https://t.co/hbv2YZVIAM #KneeSurgery #Lupus #disabled

[A Chronic Voice @AChVoice]

"I’ve learned after 24 yrs that the #burden is on me to try & make the *invisible* visible to people I care about. As I do this, I keep in mind that some people I know may never accept that I’m #disabled by #InvisibleIllness": https://t.co/8VXI7MGQpN via @PsychToday #ChronicPain

[A Chronic Voice @AChVoice]

"#Beauty ideals are socially constructed..The good news is that, because they're socially constructed, they're not #truths ..that means that we can push up against them & construct our own #narratives.": https://t.co/IAgSreCkjK via @BBCWorld

#SelfTalk #SelfAcceptance #ageing

[Princess, The Tower @APainPrincess]

“Pacing means listening to your body…so I force myself to close the page. This has always been difficult… I hate leaving tasks left undone—but when you live with #chronicillness, you learn how unsustainable that is… Pace, or pay the price.” https://t.co/RlKGQ54HTg @AChVoice

[A Chronic Voice @AChVoice]

"Whilst the #gastroenterologist did say not to eat 2 hours before sleeping, I find that I need to avoid eating right after dinner. It was difficult at first..but that little change does make a rather big difference": https://t.co/vs77uiuCaH

#ChronicPain #esophagus #spoonie #diet

[A Chronic Voice @AChVoice]

"#Research has shown that about one in three people with #depression have elevated #inflammatory markers in their blood, suggesting the #ImmuneSystem may play a role in driving symptoms for some #patients.": https://t.co/hqe0YLdrRl via @sciencedaily

#MentalIllness #MentalHealth

[A Chronic Voice @AChVoice]

"for many of us, we don’t believe that we have any kind of ‘right’ to #SelfCare. Growing up with a #toxic ..sense of #unworthiness & #shame ..seemed counter-intuitive to want to care for a self that is (so we believe) intrinsically bad": https://t.co/nonlJdBxlv by @carolynspring

[A Chronic Voice @AChVoice]

@KarenBanes Thanks for retweet 🎀

[A Chronic Voice @AChVoice]

"Sometimes we avoid certain activities or thoughts because we think, ‘nah, this isn’t me’..Does this cause us to be stuck to certain ways of being & #thinking, which prevent us from reaching the ‘next level of your life’?": https://t.co/9Zk9CHmQpi #GrowthMindset #MondayBlogs

[A Chronic Voice @AChVoice]

@webmorphix Thank you for reading :)