Alex Edwards

Research engagement at @ParkinsonsUK. Views are my own.

[Parkinson's UK @ParkinsonsUK]

We’re incredibly proud to be supporting and co-funding the largest ever UK Parkinson’s research trial, which will test treatments that have the potential to stop or slow Parkinson’s progression. Carroll from the planning team is here to tell you more 👇

https://t.co/n6g0g3O4rk

[Parkinson's UK @ParkinsonsUK]

Shamsa attends our Black, Asian, Arab and mixed heritage online support group, helping her to connect with others and find support.

Come along to our next online meeting Monday 4 August 👉 https://t.co/Ut5lRL7OfL

[Alex Edwards @alexjadeedwards]

@SANParks Hi, the system isn’t working for me and I’m unable to create an account. Please could you let me know when you expect it to be running again? Or is it possible to book via phone or email?

[Alex Edwards @alexjadeedwards]

@SANParks @SANParksKNP Hiya, when do you expect the system to be up and running again please?
Is it possible to book by phone or email? Thanks

[Cure Parkinson's @CureParkinsonsT]

We're working with Queen Mary University to run an online survey exploring patient perspectives on the use of lumbar punctures in Parkinson's research and clinical trials. Find out more about the survey and share your thoughts now: https://t.co/qI9O1xgBrT

[Parkinson's UK @ParkinsonsUK]

"To live a healthy life, is something we all deserve, we need every type of person represented in health research”

We're proud to have partnered on this film showing why we need better representation in health research.

[AMRC @AMRC]

👉🏽 #INVISIBLE out now!

A film exploring why we need more diverse voices involved in health research.

Visit https://t.co/qwPADlpH2a

#BeVisible

[Parkinson's UK @ParkinsonsUK]

We're inviting you to join us online at Par-Con 2024 - our free conference for the Parkinson's community 📣

On 11-12 October, hear from expert speakers on research, share tips on living well and connect with others in the community.

Register now 👉🏼 https://t.co/dWNSFFWdA4

[Parkinson's UK @ParkinsonsUK]

This week we’re celebrating the Parkinson’s UK Research Support Network.

Over 9,000 members are building connections, sharing their experiences, and taking part in research to bring new treatments, faster.

Find out more 👉🏻 https://t.co/9f2v4nKumB

#ParkinsonsResearchNeedsYou

[Parkinson's UK @ParkinsonsUK]

If Parkinson’s research is going to benefit everyone, we need everyone to be included.

Read how Anita and Toussaint are sharing their experiences and finding community through the Research Support Network.

Read more 👉🏼 https://t.co/E654BKiN8c

#ParkinsonsResearchNeedsYou

[Parkinson's UK @ParkinsonsUK]

Progress towards better treatments for Parkinson’s happens faster when we work together.

The Research Support Network is driven by nearly 500 volunteers who help shape our work.

Click to read about their experiences 👉🏾 https://t.co/6a8TnhaFzz

#ParkinsonsResearchNeedsYou

[Parkinson's UK @ParkinsonsUK]

We are excited to collaborate with @cahn_uk @SAHealthAction @EgalityHealth to engage people from diverse communities and make our communications inclusive & engaging!

Watch this short video to learn more ⤵️

#ResearchSupportNetwork #ParkinsonsResearchForAll

[Alex Edwards @alexjadeedwards]

A brilliant long weekend in Sheffield speaking to local communities about the Parkinson’s UK Research Support Network 💙

[ParkinsonsSheffield @ParkinsonsShef1]

A FANTASTIC Awareness event @sadaccawicker @SadaccaLimited @ParkinsonsUK @BhanuPhysio Alex Edwards and Rose Crawley talking with, and hearing perspectives from some of #Sheffield Black African and Caribbean community of Parkinson's. Met Cecil (90) and brother Josylin (94)!

[matthew mckenzie FRSA BEM @mmckenz11]

It is #WorldParkinsonsDay today. I have made a video to promote the day. Look out for the @ParkinsonsUK events in the video. @CarersUK @WendyDoyle20445 @GiniDellow @Beckycatrin23 @imagocommunity @CarersHub @solihullcarers @greenwichcarers

https://t.co/zLKRNFPLSJ

[UK Dementia Research Institute @UKDRI]

At the UK DRI at Cardiff, @DayneBeccano is researching how neurons talk to eachother and how this goes wrong in Parkinson's 🎥 ⬇️

Find out more about how researchers across the Institute are tackling Parkinson's, in our blog for #WorldParkinsonsDay👉https://t.co/ewFd85H5bq

[Parkinson's UK @ParkinsonsUK]

"Celebrate the Ramadan season with your loved ones as best as you can."

Rizwan was diagnosed with Parkinson’s and this meant he had to give up fasting during Ramadan but he still celebrates in other ways.

Read more #WorldParkinsonsDay stories 👉🏻 https://t.co/Qe7ZfQ1TA3

[Rupa Huq MP @RupaHuq]

Today this #WorldParkinsonsDay happy to stand with ⁦@ParkinsonsUK⁩ and the 153,000 with it in the UK including ⁦@ruskin147⁩ to pressure government to adopt Parky Charter and commit to more funding for research into this condition

[More Than a Tremor @morethanatremor]

Quiz time on #2parkiesinapod as Claire & Simon from @ParkinsonsUK join us for Fact or Fiction & help dispel some common #Parkinsons myths. In this clip hear the touching story of how a helpline advisor supported Simon with the facts when he most needed it🎧https://t.co/4lsDaL0PXY

[Parkinson's UK @ParkinsonsUK]

We are honoured to be @allontheboard today for #WorldParkinsonsDay 💙