Andrew Rosen

Father. Son. Husband. Trying to be kind and make the world a tiny bit better. #ataxia

[Alex @ajak1033]

The Spurs know how to TAKE the lead, they just don't know how to HOLD the lead. And that's really the most important part of the lead: the holding

[Andrew Rosen @aprosen]

“Happiness lies in thinking or doing that which one considers beautiful.”
— Hazrat Inayat Khan

via the 5-Bullet Friday newsletter (https://t.co/phfs65w3RD) from @tferriss

[Andrew Rosen @aprosen]

@DrMakaryFDA @US_FDA We need your support now @DrMakaryFDA! The ataxia community cannot wait any longer. As CEO of @NAF_Ataxia, I see firsthand the terrible toll of this disease. We hear all the time about regulatory flexibility...please make sure your team uses it! https://t.co/rxLYnaeU71

[National Ataxia Foundation @NAF_Ataxia]

95% of rare diseases have no treatment. Cameryn’s courageous story reminds us what is at stake. Share Cameryn’s story. #ataxia #KnowAtaxia #RareDisease

[Dave Thul @davethul]

2nd amendment supporters don’t want kids to die.

Gun control supporters don’t want to confiscate all guns.

Stop listening to the radical extremes and let’s talk about solutions that can actually reduce violence.

[National Ataxia Foundation @NAF_Ataxia]

Big news! @BillNye is talking about Ataxia in Men’s Health—and NAF is proud to be part of the conversation.

Check out how he's using his platform to shine a light on rare diseases like Ataxia:
https://t.co/zjjvlLNjFN

[Andrew Rosen @aprosen]

Can’t wait to land in L.A. for #MIGlobal! Thank you to @fastercures and @MilkenInstitute for the invite. Excited to reconnect with my #LeadersLink colleagues and spread the word on #ataxia for @NAF_Ataxia!

[STAT @statnews]

Bill Nye takes the #STATBreakthrough East stage for a rare, personal conversation about ataxia — a neurological disease that has impacted his family for generations.
Don’t miss this powerful discussion.
@BillNye @aprosen @AnilOza16

Get your tickets: https://t.co/tPUiefIxJN

[anil oza @AnilOza16]

Next week I'll be sitting down with @BillNye & @aprosen
about research on Ataxia — and the search for better treatments for the disease that has run in Bill's family @statnews's #STATBreakthrough in NYC (there's still tix to watch in person or online!)

[National Ataxia Foundation @NAF_Ataxia]

The Senate may vote today on a proposed a budget that would cut FY25 funding for the Congressionally Directed Medical Research Program (CDMRP) by 57%. Contact your representatives today to urge them to vote no.

Learn more: https://t.co/C75m4KqoYY

[Matthew Herper @matthewherper]

Then we'll hear from @BillNye, the legendary science guy himself, and @aprosen about the effort to understand and figure out how to treat the neurological disease ataxia, which runs in Nye's family.

You can get a preview of that conversation here:
https://t.co/oT1VzHz13I

[Rep. Jamie Raskin @RepRaskin]

President Trump just shut down external communications, hiring, and other agency functions at NIH—a devastating blow to their lifesaving medical research.

I'm leading the call with Sen. @ChrisVanHollen and @Sen_Alsobrooks to restore full operations at @NIH and across HHS now.

[STAT @statnews]

Ataxia, often misdiagnosed as Parkinson's or MS, has affected Bill Nye's family — and now he's spreading the word on genetic testing. https://t.co/5GxLRVvGVe

[Andrew Rosen @aprosen]

Holy S@)@;&;T!!!! That Lynx game was one of the best games I’ve her watched!

[Jason Ukman @JasonUkman]

Look, it's Bill Nye the Ataxia Advocate Guy. Via @AnilOza16 https://t.co/D312MGKdM7

[National Ataxia Foundation @NAF_Ataxia]

Who better to teach the world about Ataxia than the beloved Science Guy?? It was a pleasure to work with @BillNye on this project. Like, comment, and share his videos to help spread the word! More to come...stay tuned!

Check it out here: https://t.co/qQ61nz6Erk

[Friedreich's Ataxia News @Friedreichsatax]

Columnist Matt Lafleur describes his enthusiasm at seeing Bill Nye, who's known as the "Science Guy," speak at the annual NAF conference. https://t.co/pAInvRFAEL
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

[Adina Wise, MD @aWise_MD]

Thank you to @NAF_Ataxia for an education-packed weekend in Orlando where we reviewed cutting-edge research, testing and treatments. Meeting with so many individuals with ataxia, and their families, was an invaluable experience 🙏🙏🙏 Plus @BillNye the science guy was there!!!

[FasterCures @fastercures]

We are thrilled to announce the new LeadersLink cohort has been selected! Nine exceptional patient organization leaders will focus on building their organizational capacity to engage diverse patients throughout the R&D spectrum. Meet the new cohort here: https://t.co/RR28qULtQ9

[Jeff @MNTwinsZealot]

Bob Allison hit the 1st HR in Twins history & was the first Twin to make Minnesota their permanent year round residence…to date the Bob Allison Ataxia Research Center @ the U of MN has raised over $10 million to fight the disease that sadly took his life. Great person/player…

[Andrew Rosen @aprosen]

Hey all - it’s #RareDiseaseDay and ataxia is a rare disease. If you want to learn more about what I do every day and why it’s important, just visit https://t.co/W9eMrQRBmy.

[National Ataxia Foundation @NAF_Ataxia]

Today is #RareDiseaseDay which is meant to bring awareness to rare diseases around the world, including the various types of #Ataxia! How are you championing Rare Disease Day? Send us a picture so we can share with the world how the Ataxia Community shows up! (1/2)