Arlen Daza

#EhlersDanlosSyndrome #MCAS #RAREDISEASE #Advocate #ME #ableism

[Arlen Daza @arlenZebra]

Thank you for supporting, sharing and helping Arlen keep going. Every contribution, every word, and every gesture matters.
To Donate:
Venmo:@arlendaza
CashApp $ArlenDaza
PayPal:@arlenmedicalfund
Zelle: [email protected]

[Fact @Fact]

What movie can you rewatch over and over again?

[Arlen Daza @arlenZebra]

@hisvetf

[Arlen Daza @arlenZebra]

WE HAVE 3 DAYS TO RAISE $2,800, or a 20-day room for Arlen in a room with air conditioning, a private bathroom, and no stairs
📍
https://t.co/HvBdSqeQWC
PayPal/Zelle: [email protected]
Venmo: @ArlenDaza
Cashapp: $ArlenDaza
🔸
How to help
📍 Donate
📍 Share
📍 Find room

[#MEAction Network UK @MEActNetUK]

We are pleased that our response to the recent opinion piece, 'Patients with severe ME/CFS need hope and expert multidisciplinary care' in the BMJ has been published but disappointed by it's commissioning & publication.

https://t.co/LYJlxS4TzL

#VerySevereME #MillionsMissing

[Arlen Daza @arlenZebra]

Happens here too! Happens to me all the time!! 🥺😮‍💨

[#MEAction Network @MEActNet]

Quick reminder that a new Project ECHO is tomorrow - Thursday, February 13th , 2025 12:00 - 1:00 pm PT. https://t.co/gdJCUZ0Zqb

#LongCovid #pwME

[Bandera Roja @Bandera_Roja]

#Atención‼️

Hoy #9Ene, saliendo de Chacao, @MariaCorinaYA fue interceptada y tumbada de la moto en la que se trasladaba. En el suceso detonaron armas. Se la llevaron retenida. Fue forzada a grabar varios vídeos y luego fue liberada.

Ella se dirigirá al país. ATENTOS

[pepe boost @PepeBoost888]

听说，这个是你的生活方式？

#memecoin

[Arlen Daza @arlenZebra]

Check out this video #InternationalMigrantsDay
L! #TikTok https://t.co/N1KOJ0bBJp

[BNO News @BNOFeed]

BREAKING: California Governor Gavin Newsom declares state of emergency due to H5N1 bird flu

[Stephanie Marcovici @StephMarcovici]

Thanks @Forbes & @DrJudyStone for this much needed article. #Congress must take #action now to keep #telehealth for all in 2025. How can we get more coverage and pressure on about this?
@nytimes @latimes @SenSchumer @SpeakerJohnson #disability #elderlycare
https://t.co/DrZHxbzYQD

[Isabel Burnett | Renegade Research @IsabelRamirezRD]

I followed the advice to keep trying to exercise for nearly 2 decades. Almost every time it cost me my job, time with my kids, etc.
There is NO reliable quantification of energy threshold atm.
Don’t push anyone to exceed their own limits!

[Dysautonomia Intl. @Dysautonomia]

Don’t miss today’s free webinar at 7pm ET! Dr. Jeffrey Boris will be discussing new research findings from his survey on long term outcomes in pediatric #POTS. Register at https://t.co/E1aNTJlzAg

[SARS‑CoV‑2 (COVID-19) @COVID19_disease]

COVID-19 survivors exhibit significant cognitive deficits that could lead to dementia even a year after infection. They are also at increased risk for depression, anxiety, and disrupted sleep.

[SARS‑CoV‑2 (COVID-19) @COVID19_disease]

🚨 BREAKING: Nearly 3 Million Weekly Infections and 1 in 115 Actively Infectious as U.S. 🇺🇸 Prepares for Dangerous COVID Surge

The PMC COVID-19 Forecast warns that the U.S. is about to enter its 10th COVID wave, with a big increase in transmission expected in the next two weeks.

[SARS‑CoV‑2 (COVID-19) @COVID19_disease]

The CDC notes an increase in transmission in the Northeast, and Biobot data shows a flattening trend, although this information can be delayed by more than a week.

[SARS‑CoV‑2 (COVID-19) @COVID19_disease]

Currently, 1 in 115 people are actively infectious, and nearly 3 million new infections are projected each week.

While these numbers are concerning, they are lower than recent summer figures and the anticipated winter surge.

[Arlen Daza @arlenZebra]

@manruipa @IsabelRamirezRD @chydorina @sun_in_winter12 @PlzSolveCFS @RenzPolster @microbeminded2 @VirusesImmunity @loscharlos @zalaly @MECFSNews @emma_vegan_mua 💓🩵🫂