Chelsea BreeAnn Hardesty

Founder | Research Asst. @wwendomarch | CEO @satirev_projects | Amplifying Patient Voices | Policy + Research @americanendofendoproject |

[Chelsea BreeAnn Hardesty @betterofendo]

Over 10 million Americans live with a disease that can destroy organs, steal fertility, and end lives.
We are denied care, jobs, education, and our rights....and it’s killing us.

This ends now. Sign & share: https://t.co/CZy7Yb7UUN

#Endometriosis #HealthcareJustice #Rights

[Chelsea BreeAnn Hardesty @betterofendo]

@DENAirport Wow I never had a chance to sign up or even see it announced yesterday! Darn.....would love to run in honor of Endometriosis 🎗✨️🙏

[Chelsea BreeAnn Hardesty @betterofendo]

FLARE is bringing art, education, and advocacy together this September in NYC to make the invisible visible.
We're seeking Founding Partners, sponsors, and collaborators who want to help shape something meaningful.
🔗 https://t.co/hXHDXH2bEx
[email protected]

[Chelsea BreeAnn Hardesty @betterofendo]

@artikbisaIin 93. I take PayPal, venmo and cash app 🙏

[Chelsea BreeAnn Hardesty @betterofendo]

@CameronHar46486 @israelititan She is litteraly an AI rage bait bit. Her images are fake. Dont waste your time argueing with fake people.

[Chelsea BreeAnn Hardesty @betterofendo]

@FlavorFlav @MGMResortsIntl @thepwhlofficial @PWHL_Montreal A team of women just changed U.S. federal health policy, first time in history for endometriosis. AND running a sports auction, would love to connect about this weekend!! 🎗✨️🕑

[TIICANN @TIICANN]

Endometriosis isn't a "women's issue." It's a $69–$86B systemic failure featuring delayed diagnosis, denied claims, outdated research definitions, reimbursement gaps.

Chelsea Hardesty (@betterofendo) on how patients (no lobbyists, no corporate backing) moved federal appropriations language.
https://t.co/QDp9DzbjKI
#PatientAdvocacy #HealthPolicy #Endometriosis #ChronicIllness

[Chelsea BreeAnn Hardesty @betterofendo]

One month after AGCES 2026, I finished one of the most important pieces I’ve written.
Not a recap, an analysis of
Read it here ⬇️ https://t.co/K1KAAKLwrR
.
#Endometriosis #AGCES2026 #Adenomyosis #MedicalAdvocacy

[Chelsea BreeAnn Hardesty @betterofendo]

2023: We showed up in D.C. with nothing but our stories.
2025: We showed back up in D.C, even stronger
2026: We changed federal health policy.

No lobbyists. Just patients & advocates who refused to disappear.

Being sick doesn't disqualify you from leadership. 💛

[Chelsea BreeAnn Hardesty @betterofendo]

@denverpost

[Chelsea BreeAnn Hardesty @betterofendo]

‼️Historic Breaking News‼️
The President has signed FY26 appropriations including first-ever report language recognizing endometriosis as a chronic, systemic, inflammatory disease.
Patient-led advocacy works. This is the foundation.

[Chelsea BreeAnn Hardesty @betterofendo]

@9NEWS

[Chelsea BreeAnn Hardesty @betterofendo]

@DenverChannel

[Bernie Sanders @BernieSanders]

If Trump seizes Greenland from Denmark, does that mean that all Americans will be entitled to:

Free healthcare with no deductibles?

A free college education?

52 weeks of paid parental leave?

5 weeks of paid vacation?

Because that’s what everyone in Denmark and Greenland has.

[Chelsea BreeAnn Hardesty @betterofendo]

@itsPermp @DenSafetyDept We just got here yesterday 🫠😵‍💫

[Chelsea BreeAnn Hardesty @betterofendo]

@nancynursez637 @EndoExplained @endostats @CamranNezhatMD @blog_endo @XtraNotRare Also, endometriosis explained is a whole nother person. With misinformation.

[Chelsea BreeAnn Hardesty @betterofendo]

@nancynursez637 @EndoExplained @endostats @CamranNezhatMD @blog_endo @XtraNotRare Not true. She is creating new pages and harrasing my personal and private business accounts. I block her & she continues with new pages. There is only so much I can do when she continues and even says she's actively searching my location. Its documented via police report for me.

[Chelsea BreeAnn Hardesty @betterofendo]

Language shapes research. Research shapes care. When the framework is wrong, the science is wrong.
This is progress — not a final victory — but it is a meaningful course correction built through decades of patient advocacy.
We share this with care. The work continues.

[Chelsea BreeAnn Hardesty @betterofendo]

A historic shift in federal endometriosis language.
For the first time, Senate report text recognizes endometriosis as a chronic, systemic, inflammatory, multi-organ disease — not only a reproductive condition.

[Chelsea BreeAnn Hardesty @betterofendo]

@EndoExplained @endostats @CamranNezhatMD @blog_endo @nancynursez637 @XtraNotRare Lord...please dont. Please back away. This made up theory is harmful. Your comments have been documented. Do better. I can bust your theories wide open but I dont have patience to deal with this nonsense today.

[Chelsea BreeAnn Hardesty @betterofendo]

We hold this update with care. We recognize the world is heavy and many are suffering. This progress does not erase harm or fix the system overnight. We share this to support future change, not to overshadow present reality.

[Chelsea BreeAnn Hardesty @betterofendo]

A shift is underway.
Senate FY26 report text now recognizes endometriosis as a chronic, systemic, inflammatory, multi-organ disease — aligning research framing with lived and clinical reality.
This is progress, not final victory. It changes the direction of the future.

[Chelsea BreeAnn Hardesty @betterofendo]

If the framework is wrong, the science is wrong.
This is where the shift begins.
We are continuing to:
• protect the integrity of this language through conference
• engage House and committee offices
• monitor the FY26 extension period
• prepare for additional outreaches