Rachel Butler

Yoga and ME/CFS; getting conscious, losing consciousness.

[Rachel Butler @between_crashes]

The little M.E.rmaid (would like a snow day too 😔) Look at this stuff,
Isn’t it neat?
Surely by… https://t.co/nb1vdjBV2Z

[Rachel Butler @between_crashes]

The General Medical Council: I am showing my support for Dr Myhill's complaint to the GMC about the... https://t.co/w75CA6KyjQ via @UKChange

[Rachel Butler @between_crashes]

@NuwsOvDaWorld @MEFoggyDog We all do what we can. in the moment we're in. What has surprised and delighted me is that the patient group, often contributing just a moment or two each, moved such mountains. We are warriors all.

[Rachel Butler @between_crashes]

@MEAssociation daily.

[Rachel Butler @between_crashes]

In my notebook today..... worth mentioning that lists like this can be used to support wellness or to beat yourself over the head with. 'I shall listen to what is right for me, today' should be on this list :) #mecfs #pwme #drmyhill

[Rachel Butler @between_crashes]

Wise words like these can be hard for those who live entirely or almost entirely in one room. Take heart, you can always go somewhere new in that amazing brain of yours... #mecfs #spoonietravels https://t.co/U2FcFzFgG6

[Tiny Buddha @tinybuddha]

"Once a year, go someplace you've never been before." ~Dalai Lama

[ME Association @MEAssociation]

“There has to be a complete rethink of the medical advice given to sufferers of M.E. as even gentle exercise can set them back for weeks and, in some cases, months.” @CMonaghanSNP
https://t.co/1IZpANBnrM @meassociation #MECFS #PACETrialDebate #NHS #NICE #DWP

[ME Association @MEAssociation]

Official transcript of yesterday's #PACETrialDebate now available:
"Finally, I thank the Countess of Mar and the ME Association for helping me to prepare for today. I also thank those living with ME, whose voices are not being heard."
https://t.co/z6R4HztGLA
@CMonaghanSNP #MECFS

[Rachel Butler @between_crashes]

Anyone who's been told they can 'think themselves better' or desperately tried to 'recondition' ME/CFS out of their bodies, Sarah Myhill is taking those PACE bastards to task, please add your voice if you feel able today #PACEtrial #pwme #MECFS #millionsmissing https://t.co/TvNO4rhzAg

[Dr Sarah Myhill @MyhillNews]

GMC COMPLAINT - DEADLINE FOR SUBMISSIONS is 25 MARCH 2018 **Please RETWEET! We now have a petition where you can show your support. https://t.co/cH8SxsFj61 #MEcfs #MyalgicEncephalomyelitis #PwME #MyalgicE #MEcfs #pwme #millionsmissing
#PACEtrial #PACEFraud

[Rachel Butler @between_crashes]

@MEActNet Just moved areas and, for the first time in years, sat in front of a GP who believes ME/CFS a psychological condition. She even put "M.E" in little air quotes. It was astounding. Thank you to activists fighting everywhere! From the sofas to the streets (then back again 😀)

[Rachel Butler @between_crashes]

@minadjenkins @NINDSdirector Oh my word I know that exact feeling! I remember at time of diagnosis, trying to identify to a GP which areas of my brain were failing and them just staring like 'you don't seem so compromised to me' #sicknotstupid

[Rachel Butler @between_crashes]

Ah irony, they were wrong when they told us it was 'all in our minds'...turns out they should have been looking in our brains! #millionsmissing #Unrest #mecfs #cortene #healthrising

https://t.co/IO0DtmU5vs

[Rachel Butler @between_crashes]

@JamesAcaster I've got it.

soz