Bridget Moran, MPH

Healthcare PR @UCSB @ColumbiaMSPH alum. 🌈

[SmithSolve @SmithSolve]

For #RareDiseaseDay, we had the honor of joining a panel discussion and Q&A with three amazing rare disease advocates. Thank you, Effie from @OnceUponAGene, Adam from @RareDiseaseDad, and Nikki from Rare Mamas, for sharing your stories with us.

[Bridget Moran, MPH @bmoran518]

Today is #RareDiseaseDay. Today and every day, I’m proud to be part of the team at @SmithSolve, where we work to support rare disease communities in the US and around the world.

[SmithSolve @SmithSolve]

Today is #rarediseaseday. We're proud of our work supporting rare disease communities, including elevating patient voices through advocacy in the ongoing fight for health equity. #rarediseaseday2022 #raredisease #healthequity #healthcare #advocacy

[BioCentury @BioCentury]

Newly launched #Eyebiotech raises $65M A round from #SVHealth, @Jeito_life and @samsaracapital to back experienced management team prioritizing multi-specific and long-acting assets in #ophthalmology https://t.co/U5E6h2ugZp

[SmithSolve @SmithSolve]

This week's @NIH announcement of the launch of the Bespoke Gene Therapy Consortium marks an important step towards increasing access to #genetherapy for patients with #RareDiseases https://t.co/fRRu6IUYMr

[Rock Health @Rock_Health]

“Even the way we talk about trust needs to change. Right now, we’re putting the burden of trust on patients and using shame-based language. But it’s time to flip the conversation and ask, what can organizations do to earn patients’ trust?”
- @jessicamalaty
#RHS2021

[RDLA @RareAdvocates]

"For people who are living with rare diseases, this is not going to limit us if we think big!" @amyklobuchar - Rare Disease Congressional Caucus Briefing #RareDC2021

[GLAAD @glaad]

Full LGBTQ acceptance cannot be achieved until we protect the most vulnerable among us. #Pride
https://t.co/RX5PHOp58I

[SmithSolve @SmithSolve]

It’s been 15 years since we opened our doors in 2006! Today we celebrate our growth, hard work, talented employees, and all the incredible advocates, families, and clients we’ve met along the way. Cheers to 15 years.

[SmithSolve @SmithSolve]

SmithSolve is honored to help @EveryLifeOrg bring The National Economic Burden of Rare Disease Study findings forward. Read more about the study findings and how to get involved to support the #raredisease community at https://t.co/TuP7BGbVMH #burdenstudy

[Nancy Pelosi @SpeakerPelosi]

It’s been long enough. Discrimination against #LGBTQ people needs to end. We need the #EqualityAct to be federal law NOW. This is about respect. This is about pride. 🏳️‍🌈

[SmithSolve @SmithSolve]

Nearly $1 trillion. That's the estimate of total costs across 379 rare diseases in the US in 2019 alone, according to The National Economic Burden of Rare Disease Study. To learn more about the study, click here: https://t.co/mBJ4Xgr1sY @EveryLifeOrg @RareAdvocates #BurdenStudy

[Bridget Moran, MPH @bmoran518]

@EveryLifeOrg today announced the publication of a report called The National Economic Burden of Rare Disease Study, which found that the economic cost of 379 rare diseases approached $1 trillion in the US in 2019. Read more here: https://t.co/UBYZqNJAr4 #BurdenStudy

[RDLA @RareAdvocates]

Happening Today!

The Rare Disease Congressional Caucus, with @EveryLifeOrg and RDLA, will host a virtual briefing, “Economic Burden of Rare Diseases in America: A Public Health Crisis”

Register here to join: https://t.co/h8cVkQVYAe

[Bridget Moran, MPH @bmoran518]

At @SmithSolve, we are proud to #maskup to help prevent the spread of #COVID19 while raising awareness for rare diseases. We celebrate the #raredisease advocates who #FastForwardforRARE by sharing their stories to inspire action and policy change #RareDiseaseDay

[Bridget Moran, MPH @bmoran518]

During February, we @SmithSolve join @RareDiseases to elevate the dialogue about #rarediseases. Help the #NORD Zebra spread the word and #ShowYourStripes

[Prof Peter Hotez MD PhD DSc(hon) @PeterHotez]

Going to a single dose would undermine the last remaining credibility of OpWarpSpeed. If you look at the published data it’s only 2 doses for both mRNA vaccines that provide reasonable virus neutralizing antibodies. And it’s only 2 doses that protect https://t.co/r1InUWmTES

[STAT @statnews]

Pfizer has achieved the safety milestones for its Covid-19 vaccine and is close to submitting to the FDA for emergency authorization, the company's CEO, Albert Bourla said at #STATSummit.
@pfizer @AlbertBourla
#Pfizervaccine #Pfizer

[Bridget Moran, MPH @bmoran518]

Same, @erbrod

[Bridget Moran, MPH @bmoran518]

Looking forward to attending this year's #statsummit on behalf of @RxMxCorp

[Adam Feuerstein ✡️ @adamfeuerstein]

The #STATSummit kicks off today at 1 pm EST. We have four days of amazing speakers, panels, breakout sessions and much more.

Info here: https://t.co/PJlzu6sHEz

Huge thanks to our special guests, speakers and everyone who purchased tickets!