Did you know the widely shared “autistic life expectancy = 54” claim is misleading and harmful? My new @ForbesWomen article debunks this myth using real data, expert voices, and a more accurate outlook. https://t.co/VwX9NXyfwt
#autistic#neurodivergentlife#neurodivergent
New largest study found most (333/389 participants) autistic adults raised serious concerns re: genetic testing:
“eugenics (281/389)…lack of trust in how genetics information would be used (125/389)…genetic testing could increase discrimination (66/389)”
https://t.co/TZEZLSDO64
@jennjaypal@ForbesWomen@autismspeaks Hey- so the claim that autistic people have a 54 year life expectancy is incorrect and harmful. My colleague @DrLaurenBishop and I recently wrote a paper on this in JAMA NO https://t.co/NtBpiWVUNl
New @ForbesWomen article perpetuates misrepresentation of findings of autistic life expectancy @DrLaurenBishop and I highlighted in a recent JAMA network open paper https://t.co/NtBpiWVUNl
In my new @ForbesWomen article, I speak with several members of @autismspeaks about how they are working to evolve, shifting from controversy to inclusion with a renewed focus on autistic voices. Click here 👉https://t.co/pEiwAMu3Ik
#autism#autistic#neurodivergent
Scientists are now organizing events, called Stand Up for Science, on 7 March in Washington, D.C., and state capitals.
So far, they have attracted more than 100 volunteers from some 30 states who are hoping to rally support for research as a public good. https://t.co/FtamOqZhaG
About a month after Donald Trump took office as the 47th US president, almost all grant-review meetings remain suspended at the US National Institutes of Health (NIH), preventing the world’s largest public funder of biomedical research from spending much of its US$47 billion annual budget.
https://t.co/ly8mKijdtQ
A high-profile study on autistic mortality is widely misrepresented by citing authors https://t.co/hKaPmj2j0y with "potential repercussions for autistic people, including psychological distress, altered retirement planning, insurance denials, and exacerbated health disparities"
@Lau_Cob_ @DrLaurenBishop Thanks, Lauren! We agree and try to do this, including following those recommendations and having our papers reviewed by autistic consultants but if something slipped by us please let us know and we will do better next time.
>70% of citing authors misrepresent key findings on mortality in autistic people, often falsely claiming people with autism “die 16 years earlier” or have “54-yr life expectancy.”
New open access paper with @DrLaurenBishop
We are thrilled to support a landmark $2.5M NIH-funded study at Ohio State University, led by Drs. @BN_Hand and @AustinSchenk2. This crucial research will assess how state laws impact organ transplant access for individuals with intellectual and developmental disabilities. 👏
Congrats are in order! 🙌 #OhioStateSurg Dr. @AustinSchenk2 and @osuhrs Associate Professor Dr. Brittany Hand (@BN_Hand) received a five-year, $2.5 million grant from @NICHD_NIH to study the effectiveness of laws in mitigating ableist discrimination in kidney transplantation.
Clarivate just released the 2023 Journal Impact Factors and wow - @AutismAdulthood now has a JIF of 9.5!!! Wow! Thanks to everyone who has poured their love and energy into our journal. Goes to show the value of taking an inclusive approach to research and scholarship! Go AiA!
To every future autistic ADHD doctor: your Neurokin are waiting for you with open arms at @DoctorsAutistic
Your neurodivergent strengths are just what the medical profession needs! 💛♾️
Please consider signing on to this letter to contest the NIMHD Advisory Council's recent rejection of recs to designate people with disabilities as a ‘health disparity population’.
Signatures are due by noon ET this Friday, 9/8. Please share widely. https://t.co/C6gQ5T9jhl