BWS Support Network

Supporting those living with Beckwith-Wiedemann Syndrome Opinions expressed by contributors are their own & not necessarily shared by the owner or of this page

[BWS Support Network @BwsNetwork]

Many thanks to @BicesterRotary @Rotary1090 for their generous donation to our charity #Charity #Rotary #BWSawareness

[BWS Support Network @BwsNetwork]

Bws awareness day is here. Let's raise awareness for this condition. 💚💛💜💖
#BWSAD2019 #togetherwecan

[BWS Support Network @BwsNetwork]

Good morning all. How is everyone? Xxx

[Debs Holland-Axtell 🇺🇦🇬🇧🇪🇺 aka Woifmaiden @Holland2L]

I will be speaking about Beckwith-Wiedemann Syndrome and my Journey through life. #rotary #makingadifference @BwsNetwork #bwsawareness RT

[BWS Support Network @BwsNetwork]

Good morning all. Please remember that we are part of a charity and offer grants to help families that have a... https://t.co/qsTQMwz0Ao

[BWS Support Network @BwsNetwork]

For anyone that would like to apply to the charity for a grant please put this in writing to... https://t.co/Q6YW4QU0st

[BWS Support Network @BwsNetwork]

I posted a new photo to Facebook https://t.co/StY0s0z9yp

[Debs Holland-Axtell 🇺🇦🇬🇧🇪🇺 aka Woifmaiden @Holland2L]

Yes please RT and keep posting this picture awareness can save lives especially the young children. #IamBWSAware https://t.co/vUEM0RPJhk

[Debs Holland-Axtell 🇺🇦🇬🇧🇪🇺 aka Woifmaiden @Holland2L]

Keep retweeting & say #IamBWSAware if you do thank you on behalf of @BwsNetwork charity & #Howbigbws campaign in USA

[BWS Support Network @BwsNetwork]

Please read & RT this image it will help us spread awareness of Beckwith-Wiedemann Syndrome. Thank You. #BWSAware

[BWS Support Network @BwsNetwork]

As a charity we are here to help the families and individuals living with this rare condition #BWSAwareness #BWSAdultsandTeens #howbigbws RT

[Susan Ann Day @CatwomanDoris]

@BwsNetwork @RevRichardColes @BBCTheOneShow @BBCRadio3 I'd never heard of it. It's terrible.

[Debs Holland-Axtell 🇺🇦🇬🇧🇪🇺 aka Woifmaiden @Holland2L]

I did this for #BWSAwareness & @BwsNetwork a while ago. Today Is Beckwith-Wiedemann Syndrome awareness day. RT

[Jo Franklin @jofranklin62]

My littlest niece has BWS - she was diagnosed early, RT to raise awareness so kids do not go undiagnosed https://t.co/WmDTkuwcZW

[BWS Support Network @BwsNetwork]

@CatwomanDoris @RevRichardColes @BBCTheOneShow @BBCRadio3 Hi Susan this talk our co founder did a while ago helps https://t.co/sI4vNSHI2d

[BWS Support Network @BwsNetwork]

With thanks to our American BWS family for this slide on BWS Awareness day. #BWSstrong #BWSsupportNetwork... https://t.co/mFmara8XEF

[BWS Support Network @BwsNetwork]

Our American BWS family put this together for #BWSAwareness Day Let us also not forget that it can affect some... https://t.co/NGCpXoAu7B

[BWS Support Network @BwsNetwork]

@RevRichardColes @BBCTheOneShow @BBCRadio3 Today is Beckwith Wiedemann Syndrome Awareness day we want to speak about this rare syndrome. RT

[BWS Support Network @BwsNetwork]

@AbingdonRotary we would love to give you a talk on BWS from our co-founder & Rotarian @Holland2L It really is inspiring to hear her story.

[BWS Support Network @BwsNetwork]

@RotaryWitney we would love to give you a talk on BWS from our co-founder & Rotarian @Holland2L It really is inspiring to hear her story. RT

[BWS Support Network @BwsNetwork]

It's Beckwith Wiedemann Awareness day
https://t.co/1qjRovjaQx (from USA)
#BWSStrong #HowBigBWS #BWSSupportNetwork