Top Tweets for #BWSAwareness
Receiving a #BWS diagnosis for a child can be a terrifying experience for parents. Learning more about #BeckwithWiedemann can help you support them. #bwsawareness
#BWS is also associated with an increased risk of certain cancers in childhood. Doctors recommend children with #BeckwithWiedemann get ultrasounds and blood tests every 3-4 months to screen for cancer. #bwsawareness
Clinical indicators for #BWS include high birth weight, macroglossia (enlarged tongue), omphalocele (a defect in the abdominal wall), neonatal hypoglycemia (low blood sugar), distinctive creases in earlobes, and a few others. #bwsawareness #beckwithwiedemann
Today is Beckwith Wiedemann Syndrome Awareness Day. My daughter Evie was born with BWS, a genetic overgrowth disorder #BWS #bwsawareness #beckwithwiedemann #RareDisease #ilovesomeonewithBWS
Today is Beckwith-Wiedemann Spectrum Awareness Day. We recognize patients all over the world rising to the challenge of this diagnosis, including Chelsea, who was properly diagnosed with a specific form of BWSp when she came to CHOP. #bwsawareness https://t.co/a1mu9c4eG1
Today is Beckwith Wiedemann Syndrome Awareness Day. My daughter Evie was born with BWS, a genetic overgrowth disorder #bwsawareness #beckwithwiedemann #RareDisease
In honor of Beckwith-Wiedemann Syndrome (BWS) Awareness Day, the Orellana family recently hosted a lemonade stand to help #AlexsLemonade fund BWS research. #BWSAwareness https://t.co/8raY8Gtg8v
If it wasn't for @OxfordSpires & @Rotary1090 I would never have had the courage to take this step and tell my #bwsawareness #BwsAdult story at this summit on April 6th. Thank you #Rotary1090 for giving me the opportunity & courage.
I was born with Beckwith-Wiedemann syndrome. It may be behind my current issues, but not enough research has been done in adults with BWS to know. I was one of the first generation of babies to be diagnosed, treated, and live. #howbigbws #bwsawareness
Today is Beckwith-Wiedemann Syndrome Awareness Day! GGC will be presenting an interesting novel etiology @TheACMG #ACMGMtg18 next week. @HowBigBWS #BWSAwareness #BWS
Together we can... #bwsawareness
Can you tell who has BWS?
[TAG A PEDIATRIC PROVIDER] #howbigbws #macroglossia #umbilicalhernia #omphalocele #hypoglycemia #hemihypertrophy #wilmstumor #bwsawareness #childhoodcancer #gogold #hepatoblastoma
#wearyellow #april6 #BWSAD2018
![HowBigBWS's tweet photo. Can you tell who has BWS?
[TAG A PEDIATRIC PROVIDER] #howbigbws #macroglossia #umbilicalhernia #omphalocele #hypoglycemia #hemihypertrophy #wilmstumor #bwsawareness #childhoodcancer #gogold #hepatoblastoma
#wearyellow #april6 #BWSAD2018 https://t.co/y9vmR8Q64r](https://pbs.twimg.com/media/DZ8wMA4WAAE9z7A.jpg)
Tag a pediatric provider so the symptoms aren't missed #bwsawareness #symptoms #Pediatrics #beckwithwiedemannsyndrome
Dr. Jennifer Kalish looking at rare diseases imprinting disorders cause and why it predisposes some babies to cancer https://t.co/Upd1cv1PK0
Inspirational Max is set to take on his very first Mini @Great_Run to say thanks to @RMCHosp for his care for a rare genetic condition. Read more about the surgery and treatment Max has received for Beckwith Wiedemann Syndrome https://t.co/fAKPTYUzOZ
Thank you Mrs. Roy for educating the parenting class on Beckwith Wiedemann Syndrome and sharing Nolan's journey with BWS. ππ#bwsawareness
#NewProfilePic in honor of my strong boy πͺππ #BWSAwareness #LoveBWSKids #TeamZak #LoveBWSBabies
@AlexsLemonade Today is BWS Awareness Day! #childhoodcancer #howbigbws #beckwithwiedemannsyndrome #macroglossia #bwsawareness
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