Top Tweets for #HowBigBWS
We care about rare! 1 in 11,000 babies are born with Beckwith Wiedemann Syndrome. Recognizing the symptoms and getting a diagnosis is crucial for #childhoodcancer detection. #rarediseaseday #howbigbws⦠https://t.co/pSbZ1YLpNx
Mia wearing her yellow and enjoying the sun for BWS Awareness Day 2019. Beckwith-Wiedemann-Syndrome. Visit https://t.co/CDKpd326eJ for more info. melissapoyntz ashleigh_poyntz1 #howbigbws #bws⦠https://t.co/YHdpbcIUF2
Got to see this cutie before he heads into surgery for a liver transplant. Please please please pray for Alonso ππΎ #AlonsoStrong #HowBigBWS
Alonso has to do chemo until he gets a transplant. He just finished round 6 and the side effects are taking a toll on him but heβs hanging in there! When I tell you heβs the strongest kid I know, I mean it! πͺπΎππΎ #AlonsoStrong #FCancer #HowBigBWS
Alonso didnβt get the transplant on Sunday, it wasnβt a match. With that being said we are looking for help. Any O blood types could be a potential donor. If you are interested in helping please retweet & for more info please email [email protected] #AlonsoStrong #HowBigBWS
I was born with Beckwith-Wiedemann syndrome. It may be behind my current issues, but not enough research has been done in adults with BWS to know. I was one of the first generation of babies to be diagnosed, treated, and live. #howbigbws #bwsawareness
BWS Strong! 16 years old
#HOWBIGBWS
Itβs Beckwith Wiedemenn syndrome awareness day π #HowBigBWS #ISupport #AlonsoStrong #TeamAlonso
It's National BWS Awareness Day and our All Care Employees, including President & CEO, Shawn Potter, are wearing yellow and green in Support of Team Skylah Lee! Skylah Lee is the grand-daughter of Kelly LeBlanc who is an employee here at All Care! #howbigbws #BWSAD2018
Can you tell who has BWS?
[TAG A PEDIATRIC PROVIDER] #howbigbws #macroglossia #umbilicalhernia #omphalocele #hypoglycemia #hemihypertrophy #wilmstumor #bwsawareness #childhoodcancer #gogold #hepatoblastoma
#wearyellow #april6 #BWSAD2018
![HowBigBWS's tweet photo. Can you tell who has BWS?
[TAG A PEDIATRIC PROVIDER] #howbigbws #macroglossia #umbilicalhernia #omphalocele #hypoglycemia #hemihypertrophy #wilmstumor #bwsawareness #childhoodcancer #gogold #hepatoblastoma
#wearyellow #april6 #BWSAD2018 https://t.co/y9vmR8Q64r](https://pbs.twimg.com/media/DZ8wMA4WAAE9z7A.jpg)
Dr. Jennifer Kalish looking at rare diseases imprinting disorders cause and why it predisposes some babies to cancer https://t.co/Upd1cv1PK0
Inspirational Max is set to take on his very first Mini @Great_Run to say thanks to @RMCHosp for his care for a rare genetic condition. Read more about the surgery and treatment Max has received for Beckwith Wiedemann Syndrome https://t.co/fAKPTYUzOZ
Get ready for BWS Awareness Day April 6th https://t.co/rlR2BwE4q2 #howbigbws #beckwithwiedemann #bwsad2018
Have had the most magical weekend marrying my bestfriend with all my family and friends to share the moment with !!!
I got to meet my nephew Alonso for the first time today π #HowBigBWS
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