cathy t

west coast scottish abstract artist
painting life s.l..o...w....l....y
DM for sales
unwitting/unwilling expert in CFS/ME

[cathy t @cathy_tri]

£50 credit when you switch to Octopus Energy https://t.co/6qHAmoZwEo #OctopusEnergy

https://t.co/6qHAmoZwEo

[cathy t @cathy_tri]

@DafoeWhitney that's fantastic news, Whitney!

[cathy t @cathy_tri]

updates to website
https://t.co/Yo1dsfEs7P

[🕸️Dr.T, PhD @chydorina]

This is SO important. "Wired and Tired" is actually a signal that PEM is being triggered. When this occurs you need to shut down activity and arousal.

We think that PEM should be associated with 'tiredness' but it is actually much more likely to manifest initially are WIREDNESS.

This is the famous 'wired and tired' feeling. If your stress scores increase throughout the day this is likely what is going on EVERY DAY. This is the 'rolling PEM' which is associated with slow decline and instability.

When this is the pattern you are actually triggering PEM on a daily basis and as this builds up crashes and instability and baseline decreases are more likely.

That feeling better feeling you get in the evening is actually adrenaline and it is a sign that you have done TOO much.

I know this is hard to swallow and it seems counterintuitive.

[The Figen @TheFigen_]

RIP 😂😂

https://t.co/39qAa7lJDu

[cathy t @cathy_tri]

Every little helps. These artists put their heart and soul into their work

Post-storm Recovery for RRSQ Businesses https://t.co/rjmFGvCG0J

[cathy t @cathy_tri]

Discover M.E. https://t.co/KQcEJnlFia via @YouTube
especially for healthcare professionals, family and carers

[cathy t @cathy_tri]

Every little helps, in amongst this was a gallery for disabled artists from all over the world and their amazing vibratnt new exhibition.

Post-storm Recovery for RRSQ Businesses https://t.co/TgRf9IdHBR

[cathy t @cathy_tri]

@TheNicotineTest @remissionbiome @tessfalor @chydorina @CiaraGlenville @Naomi_D_Harvey is anyone trying this with nicotine gum instead of the patches? I'd like to try the patches but worried about palpitations getting worse (ME/CFS) so wondering if it's worth trying gum first

[cathy t @cathy_tri]

@DafoeWhitney running on rebellious spirit... rising from the ruins the chilled out way

[cathy t @cathy_tri]

@octoberpoppy that might have got me back into at least very part-time work at one time! i was able to attend a one day college course as they let me lie down in the first aid room whenever it was empty (rest of time slept in friend car!)

[cathy t @cathy_tri]

@DafoeWhitney hope it all goes well, great to get out anyway!

[Anil van der Zee © @AnilvanderZee]

This is how #severeME can get. This is what happens when you don't properly research a disease and let people suffer in agony as a "living death" for years. Generations after generations. It's time for change!!!

TY so much Krista for sharing your story.

#pwme #millionsmissing

[cathy t @cathy_tri]

@CindyGlasgow @PhysiosForME @s4me_info you are right of course, but i was so weakened and debilitated at the time that it never entered my head... maybe I will let them know now, several years later.

[cathy t @cathy_tri]

@CindyGlasgow @PhysiosForME @s4me_info yes, it took me a month and more to recover from a simple echocardiogram in Glasgow because there was nowhere for me to lie down, in spite of spending the nights before and after in the hotel attached to the hospital. Could barely open room door for room service meal delivery...

[cathy t @cathy_tri]

@PhysiosForME thank you for simplifying the info. it looks so obvious written down, and would have made the world of difference to so many patients! I hope it will be adopted to ALL areas of healthcare.

[cathy t @cathy_tri]

@CraftyMissB @AnneSpaceCoast yes I agree, as nurse was fortunate enough to have spent lots of time with people at the end of their lives, and at my worst was able to recognise this is what approaching death might feel like, unable to even turn in bed or breathe deeply

[cathy t @cathy_tri]

@PhillyPhile215 @CraftyMissB i like that explanation

[cathy t @cathy_tri]

@CraftyMissB significant loss of physical and mental strength and functionality in all daily activities