just a reminder... 🌿
you are so worth loving. chronic illness has no impact on how worthy you are of love, and you have so much about you that sparkles and shines. you are loved and you are worthy of that love, even when it doesn't feel like it. ✨
I hate the phrase “Don’t let your disability stop you.” It’s an incredibly toxic thing to say to a disabled person. Yes, there are some things I can’t do because of my disability and that’s OK. It doesn’t make me weak or lazy.
Stop making disabled people feel bad... ♿️♿️♿️
I really hate that when I say things are going ‘well’ for me people assume I’m better and not struggling. Things going ‘well’ for me is not an absence of symptoms. It’s just that I’m no longer in the all consuming hopeless black abyss that I was trapped in for half my life
yeah daylight savings sucks because seasonal depression but it also sucks because it vastly reduces the number of hours i can be outside as a woman without literally fearing for my life
A year ago, a doctor injured me irreparably. It changed my life and I’ve been in consistent pain ever since. It’s uncomfortable, but I think it’s important we talk about medical error because it’s incredibly difficult to engage with a system that hurt and continues to hurt you.
Self-care w/ #chronicillness: instead of *adding* things to your daily life- like journaling, meditation, a skin care routine, etc.- try *removing* as many unnecessary and stressful things as possible from daily life, and replace only ONE of them w/ something you love & enjoy.
I have an ultrasound of my entire abdomen on Tuesday. Really hoping I get answers, and ultimately some relief. I have acid reflux, nausea, lack of appetite, and excruciating pain in my abdomen. Pancreas enzymes were normal. I have a strong family history of gallbladder removals.
Update: I met a surgeon, who referred me for an upper GI endoscopy. Everything was normal besides evidence of redness/irritation. Now waiting to get in to see a GI practitioner simply to form a connection for future care. I am hoping to get my gallbladder removed ASAP
Update: HIDA scan does show some signs of chronic inflammation of the gall bladder.
Next step: referral to a general surgeon to get their input on whether they think my symptoms are coming from your gall bladder.
FINALLY HAVE PROOF OF MY ISSUES.... Spoonie life 😅 #NEISvoid
Hands down the worst flare ups I’ve ever had have been after the initial two Moderna doses and now the Pfizer booster. However I will always put the overall health of myself and others first and get vaccinated/boosters. Anyone else? #NEISvoid#flareup
I’m grateful to have received a COVID-19 booster shot yesterday however it’s kicking my ass. Again, nothing compared to what battling COVID-19 would be like but wow I’m miserable. 🥺