carol lapidge

married, mum of one beautiful daughter with FVSD, lives with epilepsy on the board of OACS works for a GP & loves life

[carol lapidge @CLapidge]

Even with a diagnosis they don’t get the right support because the funding isn’t there. It took me years get an increase in funding even though my daughters needs changed. It’s still not enough but we are lucky to have an amazing home and carers @VoyageCare

[Emma Friedmann @emmafriedmann]

@ccwild79 @ChrisTuck_WWHF Many children with #Valproate syndrome #FACS #FVS #FVSD enter Care sector when their mother becomes unable to look after them due to ill health or die. Many children don't have a diagnosis so they don't get appropriate support.
@PSCommissioner needs to be aware of this issue.

[OACS IRELAND @oacsireland]

We would like to thank @DonnellyStephen for his support
If the timeline shows there were systematic failures, then my strong preference would be that families should not have to go to court and we should find a non-adversarial process of providing supports and #compensation

[OACS IRELAND @oacsireland]

Great thanks to @shaunabowerss @IrishTimes for their reporting on the launch of the inquiry into Sodium #Valproate in Ireland #Epilim
https://t.co/zxcTI483MU

[mesh injured patients 🕊 @SusanMorgan19]

#BMJ
“Perhaps most striking was the testimony from hundreds of #patients reporting lack of informed #consent for their initial treatment, followed by years of dismissal by clinicians and #regulators who did not want to associate life altering symptoms or injured children with their medical interventions”

“In a press release Cumberlege said that in years of reviews and inquiries she had never encountered anything like the intensity of suffering of these medically injured families.
The review panel found that #healthcare providers’ dismissive attitude toward patients was underpinned by a reluctance in all parts of the system to collect evidence on potential harms”

The warning signs came from the Cumberlege Review 4 years ago & I’m sad to report that healthcare providers continue with this entrenched dismissive attitude
#redress & positive change is reasonably expectedly
#regulatoryreform
@PSCommissioner @mariacaulfield @SharonHodgsonMP @AlecShelbrooke @VictoriaAtkins @jeremy_hunt @RCObsGyn @Chris_Chope_MP @ABridgen @thecoastguy @AlexChalkChelt @jamesosh @JuliaCumberlege @ShaunLintern @Nigel_Farage @GBNEWS @JasonFarrellSky

https://t.co/TMkQHUWAFT

[Sharon Hartles - Critical Criminologist @shartles1]

Primodos 2024: The Quest for Justice Continues
@shartles1

"This highlights a disturbing trend where the interests of powerful elites eclipse the pursuit of truth and justice." @shartles1

#Primodos #Redress #Reform #Accountability

[Toby Sculthorp @TSculthorp]

In the light of the brilliant work by the @PostOffInquiry and the @bloodinquiry now is the time for a full judicial enquiry into the fifty year #Primodos scandal. Further details here https://t.co/TidjYE2Uyl @Malriel @JasonFarrellSky @LizLaneSky

[Christine#Primodos @Christinefelth2]

#WhataboutPrimodos

[Sling the Mesh @MeshCampaign]

“It’s depressing to hear the parallels between the infected blood inquiry and the Primodos, Mesh and Valproate scandals’” @DianaJohnsonMP in todays All Party Parliamentary meeting on #firstdonoharm

[Jason Farrell @JasonFarrellSky]

It was a “day of shame” yesterday - but a gathering of MPs today found there was plenty more to be ashamed of over #Mesh, #Valproate and #Primodos - with the Patient Safety Commissioner saying her pleas to govt. were “falling on deaf ears.” https://t.co/npCNWYv2kZ

[Sling the Mesh @MeshCampaign]

“NHS is fundamentally misogynistic. I’m concerned that after the blood scandal any other work on compensation will be smoked out - NOTHING has happened for financial redress for mesh injured women.” @AlecShelbrooke in todays APPG on #firstdonoharm

[Marie Lyon @Malriel]

@PSCommissioner Wow. Really. What happened to Primodos families being put front and centre. Unless my eyes deceive me they are way back in the cheap seats out of sight and certainly out of mind @NowHillsborough @acdhpt @hicksyalex @MeshCampaign @APPGHPTs

[SAMANTHA SCOTT-EDGAR @pegasusp3]

there really can be no peace without justice. there can be no justice with truth. and there can be no truth, unless someone rises up to tell you the truth. @bloodinquiry @FdnhLtd @ValproateUK @accesstojustice

[SAMANTHA SCOTT-EDGAR @pegasusp3]

@ValproateUK @facsaware @PSCommissioner my daughter is 21 and was damaged by valproate another scandal that was covered up brushed under the carpet, when will you listen to the victims and give justice to all.

[Mesh Ireland @MaryRMcL1]

#Mesh Ireland stands in #solidarity with @Paula_Goss and the @RectopexyS members. @PSCommissioner report disappointingly did not include #RedressNow for this mesh victim group. I hope this flaw will be corrected.

[Janet Stockley-Pollard @1968jsp]

@edwardjsault @oacsireland @OACSCharity @ValproateUK @PSCommissioner

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

Great news that High Court threw out the new protest laws. In 2013 we protested outside MHRA and they brought us in to discuss shortly after. Direct action was our last resort. Photo courtesy of Warwick Sweeney @CarolineLucas @DianaJohnsonMP

[Jason Farrell @JasonFarrellSky]

Fascinating First Do No Harm APPG today chaired by @SharonHodgsonMP attended by @PSCommissioner and @DianaJohnsonMP as victims of #Valproate, #Mesh and #primodos seek to replicate the success of the Infected Blood campaign in gaining redress. Report here.
https://t.co/npCNWYv2kZ

[ValproateSurvivors 🤰 #Valproate caremongerer @ValproateUK]

Interim payment NOW @Jeremy_Hunt

[Sharon Hartles - Critical Criminologist @shartles1]

Primodos 2024: The Quest for Justice Continues
@shartles1

Thank you Marie @Malriel for providing me with a statement today via email which will form part of my latest publication due out this month.

#Truth #Justice #Accountability #Primodos

[Bozena Michalowska @Boz_law]

The Inquiry Report | Infected Blood Inquiry- lessons must be learned from this. Delays, obstruction and cover ups - and ruined lives. Victims suffering could have been eased, if government had acknowledged the injuries and paid compensation 30 years ago. https://t.co/Zn6OwNsY9H