Chris M Stone

Research scientist @binarly_io. Previously @joinbelvo. PhD from @uob_secpriv.

Currently battling #MECFS #LongCovid. Sharing my journey here: @cmstonehealth

[ALUTHEDON @Mbakaza4L]

A room filled with our future doctors, lawyers, teachers, scientists…. destroyed.

[lynk @lynk0x]

POV: The banks and Hedge Funds watching you draw zig zag patterns on tradingview thinking you'll become a millionaire:

[Chris M Stone @cmcmstone]

For my own sanity, I have created a separate account (@cmstonehealth) for tracking #MECFS and #LongCovid content. I will use this account to share details on my own journey which will hopefully help others in a similar situation to myself. Follow me there if you're interested!

[Christoph Ströck @cstroeckw]

I think the rest of the world can learn a tremendous amount from what is happening in Germany around ME/CFS advocacy right now. There are demonstrations taking place in something like 40 (?) cities today alone.

My German friends, you should be extremely proud of yourselves.

[Chris M Stone @cmcmstone]

@SalvMattera Imagine denigrating the few people dedicating their lives to helping us

[Lisa @Lisathefirst20]

praying to the gods of the mecfs universe

[Chris M Stone @cmcmstone]

Liam is one of the most inspiring people I know. Maintaining this attitude whilst living with Stage 4 (Severe) ME requires an unimaginable level of mental strength.

[Liam's LC/ME Journey @liamsLCjourney]

Yesterday, I stepped down as CEO of my company. Not because I wanted to, but because in mid-January, I became bedbound with Stage 4 ME.

For the past three months, I've watched my team run the company I built while I just lay here, unable to live the high-impact life I was used to.

At first, I vowed to get better so I could return to even part-time work. But as I gradually and inconsistently improved over months, I became radicalized for a different cause:

Not a single person deserves to live like this. But yet we do, and and no one will save us but ourselves.

So today, I begin a new role: I will dedicate the next year of my life - 18 waking hours a day - entirely to this community.

I suppose it's time I introduce myself (I've also attached a photo of me, in bed, feeling much worse than I look):
- Out of college, I co-founded a magazine that took me around the world doing sports journalism and broadcasting.
- Over the past 7 years, I have assembled the greatest team to build and run a sports tech company from the ground up
- In the early days of the pandemic, I co-founded and led @getusppe, a team of hundreds, to deliver 17 million+ pieces of PPE to healthcare workers.
- I specialize in acting with urgency, seeing gaps, and connecting people to fill them. And most of all, in uniting and building community.

I have accomplished a ton in my 35 years on earth before I got sick, but Long COVID and ME are, by an order of magnitude, the biggest challenges I have faced.

But when there are so many gaps, there's simply no time to complain. We must roll our compression-wear up and get to work. So here is what I have planned:
- Guides and essays:
- The Severe PEM Crash Survival Guide
- What's the Deal With Brain Retraining?
- So You Have Long COVID, Now What?
- ...and so many more!
- Treatment Experience Surveys to fill the gap between random Reddit anecdotes and slow clinical trials (GLP-1 data released in two weeks)
- The first comprehensive AI analysis of all publicly posted recovery stories to look for trends and correlations
- Helping a fellow patient and test expert publish the first interactive and comprehensive testing guide for ME
- Helping a fellow patient increase the visibility of Stage 4/5 patients as the faces of ME
- Creating a network of the highest agency patients working on these conditions to mutually share information, support, and unblock each other
- Creating Long COVID and ME microgrants to fund people to work on small but impactful projects
- Incubating and raising funding for founders who want to start non-profits and companies (let five more Amaticas flourish!)
- Overall, pouring my heart out to support every single person who is interested in working for the betterment of this community (especially where others are far better than me, like science and advocacy!)

No one is going to do this work for us. Not doctors, researchers, or government. This must be patient-led.

Want to join the movement? Send me a DM, and let's figure out what we can do together. Time to get to work.

[Óscar Puente @oscar_puente_]

La amenaza real sois vosotros.

[Chris M Stone @cmcmstone]

@32Sfc46582 @NBoydGibbins I also had high levels of ANG II and was considering trying a sartan drug. Are you folks aware if there is any precedence of taking sartans for ME/CFS?

[Los Angeles Times @latimes]

Long COVID leaves thousands of L.A. county residents sick, broke and ignored https://t.co/2RxypnUFkm

[Chris M Stone @cmcmstone]

@JackHadfield14 Amazing work @JackHadfield14 @NBoydGibbins & team!

[WHO/Europe @WHO_Europe]

Long COVID isn’t “just a few weeks.”

For many, symptoms last months or years—like Eliška, 39, who has been bedbound since 2022.

Myths harm. Facts help.

👉 Read her story: https://t.co/YR17ZJkCgY

#LongCOVID #HealthInformationIntegrity #healthsecurity

[Chris M Stone @cmcmstone]

@liamsLCjourney Hope it works well for you. I take 0.5mg occasionally when I feel I've overdone it pretty much always sorts me out for around 24 hours.

[Chris M Stone @cmcmstone]

@liamsLCjourney @me_dealwithme Clonazepam helps me a great deal too

[Duane Storey @DuaneStorey]

People don’t realize how life altering these chronic diseases are. I’ve seen some doctors say these patients typically have lower quality of life than most cancer patients. Sad that billions of dollars gets wasted on LDN and other silly studies while people tap out with no options.

[Pedro Sánchez @sanchezcastejon]

The world, Europe, and Spain have faced this critical moment before. In 2003, a few irresponsible leaders dragged us into an illegal war in the Middle East that brought nothing but insecurity and pain.

Our response then must be our response now:

NO to violations of international law.

NO to the illusion that we can solve the world’s problems with bombs.

NO to repeating the mistakes of the past.

NO TO WAR.
https://t.co/KpRjBfwY4B

[Danilo.Buonsenso_Surf4Children @surf4children]

just talked with a 34 yrs girl, having a clear diagnosis of #MECFS since age of 10 that has been formally diagnosed with MECFS only in august 2025 in sweden, being offered pacing as only strategy.
I’m really impressed by how ppl w MECFS survive and fight and don’t give. I don’t know other diseases challenging your physician and mental life and the whole life as this one.
It’s a nightmare, and this is why I will never stop fighting for you and I will always try my best treating you all

[Christoph Ströck @cstroeckw]

Depending on how you count, I know of four to five billionaires in the U.S. who have someone close to them with ME/CFS or a likely closely related illness. Yet the philanthropic funding directed toward this disease remains astonishingly small. How do to reconcile that?

[Sundar Pichai @sundarpichai]

An exciting milestone for AI in science: Our C2S-Scale 27B foundation model, built with @Yale and based on Gemma, generated a novel hypothesis about cancer cellular behavior, which scientists experimentally validated in living cells. 

With more preclinical and clinical tests, this discovery may reveal a promising new pathway for developing therapies to fight cancer.

[Chris M Stone @cmcmstone]

@JackHadfield14 Solidarity with this man. I'm starting to feel the same way after only 1.5 years. Take comfort in the fact that you're doing the best a man could possibly do given the circumstances. I have no doubt your work will help lead to your own recovery as well as that of many others.