Con Hennessy

CEO of OpenApp, specialists in health informatics, focused on health intelligence and patient registries. #ERN #rarediseases #RealWorldData #NaturalHistory

[Ellen Crushell @ECrushell]

Ireland’s National Centre for Inherited Metabolic Disorders @TempleStreetHos delighted to join metabERN as a full member.
Much work went into the process, special thanks to : Dr Monavari, @Meabheos @eilismurphy5 @CeoHardiman @Ampforan

[Con Hennessy @ConHennessy]

@shahida_moosa @FiladelfiaGene1 @TorieRobinson10 @ern_bond @ERNIthaca @FamilieSCN2A @shirlenebadger @ARDI_Africa Have a look at https://t.co/kkDtB0j6Hp (PDF of "Developing a Patient Registry: A Practical Guide". You can also message us (https://t.co/L4agyvaVYx) as we may be able to provide some advice on patient registries.

[Con Hennessy @ConHennessy]

@DavidjMarkey @nixcraft That may have been a few years ago now. I'm sure you've many more tools on your arsenal!

[NISR Solutions @SkinRegs]

The Irish EB registry is open. Should you, or someone you care for, be interested you can now opt to discuss the registry with the CHI EB team over the phone or online rather than in person. Contact [email protected] to arrange a time that suits you.

[Openapp - an IQVIA business @OpenappIreland]

We are delighted to be featured in the current issue of @RareRevolutionM !

Our own @ConHennessy and @LisaChiyo debunk some of the common myths associated with #patientregistries.

Check it out here!
>> https://t.co/BOnA3RTH5J <<

[Mick Molloy @drmickmolloy]

Two villages missing their idiots in waterford tonight. Was abused for wearing a mask as am now part of the government conspiracy to manage the population with the assistance of RTE apparently. When the two scientifically based researchers who use google as their source 1/3

[Con Hennessy @ConHennessy]

They can also allow quality of care comparisons across diverse clinical settings.

[Global Genes @GlobalGenes]

Patient groups need to better understand their disease so that they have control over their disease. Natural history studies do this and they help attract industry to your disease. - @nashafitter1, @foxg1research #2020RDDS

[🐝 @livelaughcryxo]

https://t.co/LrLzZUSDXL

Hey everyone ❤️ the amazing @Aine_Kenny_ covered this article, please do read and share!

[Con Hennessy @ConHennessy]

@LiamGGlynn @astaines @mikey0callaghan @UL @ICGPnews @ciarakellydoc @stephenkinsella @stevemur67 @MyOpenMind101 @RonanTKavanagh @ProfPayEquality @PublicHealthUL @ritakj @DrSumiDunne I think the social etiquette and conventions we want to just is as important - phone on meeting/pub/bbq tables, etc. Also consider bluetooth touch "beacons" at certain busy locations, bus driver/waiter/take away/etc.

[Con Hennessy @ConHennessy]

@LiamGGlynn @astaines @mikey0callaghan @UL @ICGPnews @ciarakellydoc @stephenkinsella @stevemur67 @MyOpenMind101 @RonanTKavanagh @ProfPayEquality @PublicHealthUL @ritakj @DrSumiDunne There may be some issues with bluetooth resulting in incomplete data, but this can be so much better than no data. The data available to others does not need to include personnel data, so three should be no gdpr issues, and significantly reduced concerns for invasion of privacy.

[Openapp - an IQVIA business @OpenappIreland]

Good Morning! About to kick-off the second day of #ECRD2020 and looking forward to more incredible speakers and discussions with booth visitors! Come talk #patientregistries with us! #RareDiseases

[Openapp - an IQVIA business @OpenappIreland]

Delighted to announce we will be attending the virtual European Conference on Rare Diseases & Orphan Products 2020 #ECRD2020 which kicks off tomorrow! If you are registered to attend, please stop by our virtual booth and say hi 👋🏻! #rarediseases #patientregistry

[International Niemann-Pick Disease Registry @inpdr_registry]

The INPDR is a groundbreaking global database of Niemann-Pick Disease patients.
Our aim is to improve the lives of patients & their families through:
📊 powerful data
🔬 better research
⚖️ equitable access
🏥 improved diagnostics.
Visit https://t.co/kLGJbwqxCI to find out more

[TwistedDoodles @twisteddoodles]

Conference call bingo. #workingfromhome #SocialDistanacing

[Dmitri Wall @DmitriWall]

The @SecureAa #patientregistry’s sister registry @ad_secure is now available with Spanish, in addition to English & Chinese.
Be grateful if you could spread the word @Desaze @SergioVanoG @DrRamonGrimalt

[SECURE-AD @ad_secure]

Lovely to be part of a developing network of #Dermatology #patientregistries
Just published @BrJDermatol we describe how @PsoProtect& @ad_secure have created global registries to inform care during #COVID19 for patients with #psoriasis & #atopicdermatitis
https://t.co/Jr1fQeZZY7

[SuperValu Clonakilty @ScallySupervalu]

Dear customers.

It is with deep regret that we have come to the point where we feel that we need to post this message. COVID-19 has affected all of us in many ways, and none more so than our team #challenges #COVID19

[Kyle Griffin @kylegriffin1]

Two weeks ago, Dr. Fauci said that he'd want Brad Pitt to play him.

Two weeks later, Brad Pitt is playing Dr. Fauci on SNL.

[Con Hennessy @ConHennessy]

@DavidjMarkey @hjwp Is this timeout not in the python socket lib?

[Helen White @taff_Helen]

As a kid I remember my Sunday nights filled with dread for the school days ahead... think many parents will be feeling the same right now... that’s why this message is sooo important... #homeschooling #anxiety #BeKind #GoEasyOnYourself