You can’t change any of the services involved without downstream impact on the other variables. Palliative care teams, hospices and their patients should have a place at the table when considering service changes or shifts in place of care.
👏 Huge congratulations to BSR members Mia Rodziewicz, Yeliz Prior, and Eve Smith on receiving #EULAR2025 Abstract Awards! We're proud to see your outstanding work recognised on the international stage. 🏆
"I’m proud that my son is one in 700!"💙
A cleft isn’t just cosmetic, and there’s no ‘quick fix’. We’ve already dealt with a list of treatments and issues, two operations, and struggles with feeding.” [1/2]
Well done @lauraingham1 for this excellent collaborative work & publication. Essential reading for any OT teams developing services in primary care 💚 @theRCOT
Living with #arthritis isn't just a physical journey - it's an emotional one too. Feelings of isolation, sadness, or the weight of #fatigue and #pain might feel all too familiar. Check out these tips to help prioritise your mental well-being: https://t.co/AU4wNuG9jr
After securing over $2M in research funding and reviewing 100+ proposals, I've identified the exact elements that make reviewers stop, pay attention, and champion your work.
How to write a research proposal that gets funded:
(7 moves that make yours stand out)
We know that #fatigue can be overwhelming, and that it is common to experience a boom and bust cycle. We asked Joseph Loades, physiotherapist, to answer your questions about fatigue and offer advice on how to manage the boom and bust cycle.
🔗 https://t.co/1O7Fu6usgQ
So many people look away and scroll by 💙
Most people don't realise how dramatically a few minutes and a few pounds can change a life.
One £250 surgery can heal a child’s cleft, but any amount is transformative to a child in need.
✨Save a life now.
Today at the @geneticssociety American Society for Human Genetics (ASHG) conference, the HEDGE study analysis team shared preliminary work from the HEDGE (Hypermobile Ehlers-Danlos Genetic Evaluation) study! https://t.co/IKHzchFtwI
#HypermobileEDS#ASHG2024#EhlersDanlosSyndrome
Jaw pain? Join us for an exclusive webinar with Philip Bateman!
Discover the link between Temporomandibular Disorder (TMD) and Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and learn about effective diagnosis and treatment: https://t.co/m4FrqRmmzu
I raised the issue of dual mandates today. I think we should ban MSPs from sitting as MPs or in the House of Lords, where they could take a leave of absence. The @scotgov has agreed to consult on the issue at pace.
👉 Delays in getting the right support for chronic pain and fatigue can have truly devastating effects on people’s lives.
I know @jenni_minto is incredibly interested in serving these patients better and I look forward to continuing the conversation.