Dawn Bailey

Mom to a rare disease warrior, widow. Consultant working to improve complex health systems of care as Family/Patient Partner.

[EMSC Innovation & Improvement Center @PediatricReady]

EMSC worries about pediatric emergency capabilities so parents don’t have to. https://t.co/cA0yjHVl9J
#EMSCSavesLives

[Andy Imparato @AndyDRC]

McKinsey fellows support expanding disability-inclusive healthcare access https://t.co/Yl8J3sSxcl via @McKinsey

[Little Lobbyists @LittleLobbyists]

Excited to see so many Little Lobbyists families in Washington D.C. today!

We’re sharing some of their stories on the front steps of the Capitol right now.

Help us #ProtectMedicaid!

LIVESTREAM: https://t.co/xkAN2MAo96

[Chad Campbell @chadcampbellAZ]

Want to know why the Governor is fighting to protect the integrity & sustainability of the PPCG program? Read this story. https://t.co/AR38TvVQuX

[Arizona House Democrats @AZHouseDems]

"Saving this program for people with disabilities is the Number One issue facing the Legislature and the state right now, and we’re using every single tool at our disposal to deliver for some of the most vulnerable human beings in our state. It's our moral responsibility." - House Democratic Leader @RepODLS.

[Dawn Bailey @doublejoybailey]

@BradGoldbergMD Love this!!!! I love this show too! Congrats @BradGoldbergMD

[Tom Ryan @tomryanlaw]

The general public has to be aware that the GOP is calling for cuts to services to Arizona's children. How Pro Life of Rep. David Livingston!!! Spare me!!!!

[Dawn Bailey @doublejoybailey]

@rachael_scar @AdyBarkan Thinking of you all 💗

[Dawn Bailey @doublejoybailey]

@npdcoalition @TheCEMIR @RedCross Great topics! Would love to expand this for considerations for CYSCHN and those with medical complexity for states that have moved away from medical shelters.

[Dawn Bailey @doublejoybailey]

I echo this statement @ElenaHung202 💗

[Nicole Jorwic @nicolejorwic]

“I have often said: there is not a single thing I would change about my daughter, but there are a million things I would change about this world so that it would be worthy of her.” — @ElenaHung202

The words still ringing in my ears after the #CareCantWait bus tour. We will win.

[Nicholas Bruckman @Nick_Bruckman]

During the 2020 primary I had the privilege to direct an interview series with Ady Barkan & the presidential candidates for @BeaHero .

If you never watched the Kamala episode, now would be a good time to do that.

Most importantly (to me), she treated our @peoplesTV crew well.

[Dawn Bailey @doublejoybailey]

@rachael_scar Thinking of you all today 💗

[EMSC Data Center @emscDataCenter]

The Pediatric Pandemic Network is launching a study opportunity for families called “Finding Information About Your Child’s Health.” See the flier for details.

[California Governor's Office of Emergency Services @Cal_OES]

Here's a look at the latest weather impacting California communities. #StayStormInformed #StaySafeCalifornia #CAwx

[Dawn Bailey @doublejoybailey]

@rachael_scar @nytopinion So beautifully said. I would add that for us, we get in home care covered by Medicaid for Taryn, but there are so many rules and bureaucratic process requirements, it limits how we can use and it is very difficult to find providers. Count us in to help in this fight!

[Dawn Bailey @doublejoybailey]

Taryn, Shelby and I were so grateful to attend to remember Ady and to see so many of the Be a Hero group in person. What a beautiful memorial and reminder of what we all can still do. 💗

[The Patients Union @Patients_Union]

Our heartfelt thanks to those who joined us for Ady’s memorial. Ady fought for what he believed in. Even as ALS paralyzed his body, he never gave up & neither will we.

[The Patients Union @Patients_Union]

"The wonderful care and support that [Ady] received made him even more determined that every American who needed it should have the same opportunities. And I know these are goals we'll keep fighting for as we think about how we can live up to the example that he set for us. We'll keep working to create that better world that he envisioned. — @rachael_scar

#RememberingAdy

[Dawn Bailey @doublejoybailey]

Looking forward to attending tomorrow and the memorial on Sunday!

[blackness everdeen @traceyecorder]

I’ll be in Santa Barbara tomorrow talking Not Going Quietly (@NotGoingQuiet) with:

@Nick_Bruckman
@AmandaR0ddy
@BradleyWhitford

♥️

[Dawn Bailey @doublejoybailey]

This!

[WidowedParentProject @widowedPP]

Two things I learned from grief: you will be shocked by the people you love who can turn out to be the ones who hurt you the most in your grief AND you will be shocked by the unexpected generosity and care of others you expect the least from.

[The Patients Union @Patients_Union]

Hello New Yorkers! Folks are gathering in-person to watch the livestream of Ady’s memorial on Sunday, January 14th.

Head to the link below to RSVP.

https://t.co/DgLiPqfuwP