Delighted to share our collaborative project concerning the use of cinacalcet in children under 3years of age! A huge thank you to all my European collaborators. @SNephroPed @EuRefNetwork @ESPNSociety@Bacchetta_J
https://t.co/VslJKzL8XD
Today is a monumental day for children with kidney disease and other rare diseases. It marks the beginning of real change for those children and families who face these conditions. Leading this fight is @louise_oni with the launch of @LifeArc1@Kidney_Research#UKKidneyEcosystem
We're launching 4 Translational Centres for Rare Diseases!
1️⃣ Centre for Rare Respiratory Diseases
2️⃣ LifeArc @Kidney_Research Centre for Rare Kidney Diseases
3️⃣ Centre for Rare Mitochondrial Diseases
4️⃣ Centre for Acceleration of Rare Disease Trials
@MDUK_News@4Lilyfoundation
CKD mineral & bone disorder is a triad of biochemical & bone abnormalities & extra-skeletal calcification. Read this Educ Review of physiological changes in bone turnover & mineralization in children & young adults, its pathophysiology, & more. #OpenAccess
https://t.co/4pVOf3WoHJ
Happy to present the new European guidelines on CKD-MBD in infants! @ESPNSociety@FiliereORKiD@SNephroPed@CHUdeLyon Diagnosis and management of mineral and bone disorders in infants with CKD: clinical practice points from the ESPN … https://t.co/EmLKLM6Xkd
Infants w/CKD form a vulnerable population, highly prone to mineral and bone disorders (MBD). Read these Guidelines on the diagnosis & management of CKD-MBD in infants based on available evidence & the opinions of experts. #OpenAccess
https://t.co/kWIg2HvksQ