In lovely #Leeds for a special day with a group of experts - including many experts by lived experience - to explore a v important part of @REFoRMS_Rhabdo: using the research to produce a useful tool for parents/families and clinicians to support decision making…
We chatted about the use and design of the online resource. All of this information will be used to improve the accessibility and transparency of research into treatments for children with relapsed/refractory #RMS
And we even finished the day with some amazing cupcakes!!
The REFoRMS team are excited to be at the #rhabdomyosarcoma workshop today!!
We’re looking forward to a day of inspiring chat with parents, clinicians & researchers to help us develop an online resource to display information on trials for children with relapse/refractory RMS
📢CAN YOU HELP?
We're developing an online resource about Living-REFoRMS to let families & professionals access info about studies in the review. We’d love you to get involved if you have experience of #rhabdomyosarcoma - fill out the form: https://t.co/MFM1jH6I5Z
or email/DM us
Great to see the first publication from this innovative @CCLG_UK-funded research - and brilliant that members of the parent advisory group are co-authors on the paper. Lived experience should be at the centre of our research and this project shows just how that can be done
We have some fantastic news just before Christmas!
The original systematic review as part of the REFoRMS project has just been published in the International Journal of Cancer!
This is a massive achievement for the team. Well done everyone involved! 😃
https://t.co/vZ5ISwaFQJ
*NEW POST OPPORTUNITY* (Please share)
Allam Clinical Doctoral Fellowship in Pancreatic Cancer
The post holder will work within Hull York Medical School and Hull University Teaching Hospitals NHS Trust. This is tailored 2 to 3 year post ...
Hello Sarah Cohen-Gogo has done a truly amazing job running the YoungSIOP Twitter account for the last several years and today is her last day doing this. She is 19 followers short of 3000. Could those not following help her get there? #SIOPambassador#SIOPcongress@youngsiop
Great to see the JLA /CCLG research priority exercise highlighted in @dupuis_lee ‘s keynote on How to Make High Quality Evidence-Based Supportive Care a Reality @cclg@ProfFaithG@AldissSusie#SIOP2023
Update - after an interesting night in a light industrial estate near Schiphol I’m back on track to Ottawa (via Cophenhagen and Toronto) #SIOPcongress#GetTheMapleSyrupMartinisReady