Erin Glass

[Zac Brown Band @zacbrownband]

An important video announcement from our brother @johndhopkins. Let’s #HopOnACure for ALS, together. Text HOP to 345-345 or visit https://t.co/Tl4rk2lR9Y to make a donation and learn more. @hoponacure

[Mayuri Om Saxena @Mayuri_Saxena]

7 more Senators!!! Yasss! Make those calls!
https://t.co/VwTutjrUdB

[Brian Wallach @bsw5020]

I am a person fighting a always fatal disease. I am not unique, there are millions in the same situation.

Here’s to changing the world so that the millions who come after us are met with real hope.

We. Can. Do. This.

Good night moon.

[axeALSFoundation @stevens_nation]

Thank you @NFL for supporting ALS with #MyCauseMyCleats!

Help us #AxeALS by calling your Senators to sponsor #S1813 so people w/ ALS can get access to drugs stuck in clinical trials!

Click this link, find your state, call your senator! https://t.co/hAPpBZDAXJ

[Mike Quigley @RepMikeQuigley]

ALS is a cruel disease. Those suffering from this deserve a chance at hope, a chance to change their future.

My bill Act for ALS is that chance.

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Thx @SenSanders for sponsoring #S1813. Your support is helping people w #ALS get access to #healthcare & furthering ALS research.

I'm in tears as it's on the weekend of the heavenly birthdays of @BridgetRebecca3's Irish twins, John & Ethan! Gone too soon.

#Vermont #ACTforALS

[Mayuri Om Saxena @Mayuri_Saxena]

9 More Senators Needed! #ACTforALS

Let's make some calls today! Can you make at least one call today? Takes 2 minutes and we give you the phone # and script!
👇👇👇
https://t.co/VwTutjrUdB

[I AM ALS @iamalsorg]

HUGE NEWS! #ACTforALS will be voted on in the House of Representatives next week!

Thanks to every single advocate who has worked tirelessly to make this possible.

[No More Excuses ALS Watchdogs! @als_now]

Another #ALS warrior, lost today. See you someday, Adam Crane. This man fought SO hard, but #diedwaiting. He only wanted to TRY so badly. Next week is for you and all the others, brother. Let's hope it's as big as some think. @SpeakerPelosi @RepAnnaEshoo @SenatorLankford #AACT

[Nicole Cimbura @nicolecimbura]

@SenatorHick I’ve been asking for months for your support of #ActforALS #S1813 which would allow people battling ALS a chance of accessing promising treatments. It is too late for our family, but not others. Step up & act so other families don’t have to live w/ this nightmare!

[biggMoe_effALS @biggMoe_effALS]

@SenatorHick ‼️you can’t care about people with disabilities.. & then NOT cosponsor #ACTforALS to #EndALS!

#ALS is torturing & killing my brother Tony 27 #DyingWaiting for treatments!

next summer will he beable to play with his girls??
@hmberner @kmehta13
@AndrewCarrera92 @Kari_linker48

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

@SenatorHick Access to facilities is important
Access to drugs could be life-changing

You supported #RighttoTry as Governor.
Why have you not sponsored #S1813 as it is the humanity of RTT with the science of the FDA.

Disabled People w #ALS are #DyingWaiting for your support of #ACTforALS.

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

@SenatorHick Helping people w Disabilities?
Can you sponsor #S1813 so people w 100% fatal #ALS get a chance at drugs stuck in clinical trials?

▪️ 53 sponsors - 37 @SenateDems
▪️ Everyone on @HELPCmteDems but you & @timkaine.
▪️ Everyone in #Colorado but you & @RepBoebert 😲

#healthcare

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Dr. Cudkowicz testified that #EAPs don't hurt clinical trials & in fact, they have actually learned things to help further the science!

Cosponsor #S1813
@HELPCmteDems
@SenTinaSmith @SenSanders @SenatorHassan @SenatorHick @SenatorBaldwin @SenatorLujan @timkaine @ewarren

[Shah Minokadeh, M.D. @MinoShah]

There is no greater INHUMANITY than @US_FDA denying 100% fatal #ALS patients approval of #Nurown despite years of UNPRECEDENTED benefits.
@FDACBER @DrWoodcockFDA @RepGuthrie @RepAnnaEshoo @FrankPallone @RepSchakowsky @RepJohnCurtis @JeffFortenberry @RepMikeQuigley @ChrisCoons

[Michael Moutsoulas @MMoutsoulas]

Everyone talks about promising #ALS treatments. What good are they if no one has access to them. My sister Steph was diagnosed in 2018. She takes the same ALS drug that's been around for 25 years. Denied clinical trials each time. @ewarren @SenMarkey support S.1813 #ACTforALS.

[Margie Buck @MargieBuck15]

This is why we need your support in cosponsoring #S1813 #TheActforALS today @SenMarkWarner @timkaine @MarkWarner ALS patients like my brother need to know you care about access to treatments that can give them hope. 312 Congresspeople agree- won’t you?

[Dan Tate @dantate2]

Former FDA Commissioner going even farther than 2019 Guidance, but @US_FDA isn’t even following their own Guidance so WTH do they care?

[Lorri Cavaliere @LorriCav]

The definition of love and devotion.
@ajcavaliere and @thegasser1391 Thank you for celebrating them. @USSenate please give my daughter a chance to live. @US_FDA Approve #NurOwn #ALS @iamalsorg @Hearst @GOP @TheDemocrats
https://t.co/kgimrALGSp

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Independence for an #ALS patient
Moving hand for 1st time in 18 mos after 3 doses of #NurOwn in #ExpandedAccess at @MayoClinic.

Q: What would 30 doses do?
A: Let's find out w #AcceleratedApproval & P4 Post Marketing study

#LivingProof #NurOwnWorks #PatientReportedOutcomes