An important video announcement from our brother @johndhopkins. Let’s #HopOnACure for ALS, together. Text HOP to 345-345 or visit https://t.co/Tl4rk2lR9Y to make a donation and learn more. @hoponacure
I am a person fighting a always fatal disease. I am not unique, there are millions in the same situation.
Here’s to changing the world so that the millions who come after us are met with real hope.
We. Can. Do. This.
Good night moon.
Thank you @NFL for supporting ALS with #MyCauseMyCleats!
Help us #AxeALS by calling your Senators to sponsor #S1813 so people w/ ALS can get access to drugs stuck in clinical trials!
Click this link, find your state, call your senator! https://t.co/hAPpBZDAXJ
Thx @SenSanders for sponsoring #S1813. Your support is helping people w #ALS get access to #healthcare & furthering ALS research.
I'm in tears as it's on the weekend of the heavenly birthdays of @BridgetRebecca3's Irish twins, John & Ethan! Gone too soon.
#Vermont#ACTforALS
9 More Senators Needed! #ACTforALS
Let's make some calls today! Can you make at least one call today? Takes 2 minutes and we give you the phone # and script!
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https://t.co/VwTutjrUdB
HUGE NEWS! #ACTforALS will be voted on in the House of Representatives next week!
Thanks to every single advocate who has worked tirelessly to make this possible.
Another #ALS warrior, lost today. See you someday, Adam Crane. This man fought SO hard, but #diedwaiting. He only wanted to TRY so badly. Next week is for you and all the others, brother. Let's hope it's as big as some think. @SpeakerPelosi @RepAnnaEshoo @SenatorLankford#AACT
@SenatorHick I’ve been asking for months for your support of #ActforALS#S1813 which would allow people battling ALS a chance of accessing promising treatments. It is too late for our family, but not others. Step up & act so other families don’t have to live w/ this nightmare!
@SenatorHick Access to facilities is important
Access to drugs could be life-changing
You supported #RighttoTry as Governor.
Why have you not sponsored #S1813 as it is the humanity of RTT with the science of the FDA.
Disabled People w #ALS are #DyingWaiting for your support of #ACTforALS.
Everyone talks about promising #ALS treatments. What good are they if no one has access to them. My sister Steph was diagnosed in 2018. She takes the same ALS drug that's been around for 25 years. Denied clinical trials each time. @ewarren@SenMarkey support S.1813 #ACTforALS.
This is why we need your support in cosponsoring #S1813#TheActforALS today @SenMarkWarner@timkaine@MarkWarner ALS patients like my brother need to know you care about access to treatments that can give them hope. 312 Congresspeople agree- won’t you?