ellenvgz

[ellenvgz @ellenvgz2]

@IsabelRamirezRD @SteveFifield3 @Leni_MECFS I’m a Type A but with Type B relaxation 😅

[ellenvgz @ellenvgz2]

@ThePOTSPostman Yes, awful 24h and had bruises afterwards...

[ellenvgz @ellenvgz2]

@MicaBlackwell_ Germany 😉

[ellenvgz @ellenvgz2]

@davro_t Yep!!! I was super active with lots of plans and a life ahead before #LongCovid in 2020.
Turning 36 this year, and I feel like having lost the time since then because life stopped for me in a way but the whole world keeps turning and carries on as usual 🤷🏽‍♀️

[ellenvgz @ellenvgz2]

@i_petersen @1goodtern Are you telling people to "move on from cancer" or "just get over HIV" etc.?
Having permanent organ damage, microclots, mitochondrial dysfunction, persistent inflammation etc. is not a choice, and definitely nothing to enjoy. Shocking for a so-called scientist!!!
@ucl @uclnews

[ellenvgz @ellenvgz2]

And I'm lucky because many others haven't been able to leave their bed/house, died from unexpected heart-failure/stroke/blood clots etc. or weren't able to take it anymore and committed suicide.
COVID is NOT "just like a cold", so best to avoid it 🙏🏽 4/4
#LongCovid

[ellenvgz @ellenvgz2]

Exactly 3 years ago was my last healthy day.
My week was filled with full-time work, 3rd month of another MSc course, theatre visits, 2x pilates, 2x yoga, 3x strength, ~15k steps/ day, and I still had energy and time to spend with friends, relax at home etc. 1/4
#LongCovid

[ellenvgz @ellenvgz2]

Today, I'm 35 years old, diagnosed with permanent heart damage (post-viral myopericarditis, microvascular angina, tachycardia), insulin resistance/pre-diabetes, autonomic dysfunction
-> Post-COVID/ME/CSF. 3/4
#LongCovid

[ellenvgz @ellenvgz2]

@mileswgriffis @Really_Richelle @G_Commish Oh, and @v_puntmann has helped me a lot!!! Don't know where you are based...

[ellenvgz @ellenvgz2]

@mileswgriffis @Really_Richelle @G_Commish I wake up with it as well.
Losartan and Ivabradine have helped...

[ellenvgz @ellenvgz2]

@AlisaValdesRod1 @mileswgriffis Same here 🙋🏽‍♀️
Additionally, I've had perimyocarditis for over 2.5y, now w/ permanent heart damage.
Losartan and Ivabradine have helped...

[ellenvgz @ellenvgz2]

@ATDazzles Saw the show yesterday and fully agree!
The plot was somehow easier to follow in the concert version, and I sorely missed some of the songs and didn't understand directional "personality changes" of characters and/or fully cut characters.
Music and cast absolutely phenomenal!!!

[ellenvgz @ellenvgz2]

@noorvbarrage Such good books 🥰

[ellenvgz @ellenvgz2]

@1goodtern 🤣

[ellenvgz @ellenvgz2]

@JasperTMcNeil @XorDev @InternetH0F Left-handed as well but I do 531425 😅

[LangzeitCOVID @[email protected] @LangzeitC]

Für alle ÄrztInnen und die #medi Bubble:
Zusammenfassung der Internationalen #MECFS und #LogCovid Konferenz 2023 der @ChariteBerlin
Anbei ein 🧵 mit den ExpertInnen-Videos und dazugehöriger Zusammenfassung.
Bitte um Retweet🚀, denn dieses Wissen kann Leben retten!

🧵 1/ x

[ellenvgz @ellenvgz2]

@noorvbarrage @BenjaminLawXL Liking this whilst walking through the park, noise cancelling headphones on with relaxing music 🤣 if I'm all thought-out for the return, it's a podcast or audio book 😅

[ellenvgz @ellenvgz2]

@postviraltrials FFS 🤦🏽‍♀️🤣
Can't believe they are wasting time and money on this...

So happy though that I'm returning to London today, so definitely considering to sign up for such important research 😉

[All of them snollygosters... @OnlyEnnui]

I first made this poster for an #MEAwarenessDay poster competition in 2008. It won!
Nothing has changed!
#MillionsMissing #MEAwarenessDay2023