We are putting the finishing touches on our #MillionsMissing art installation & press conference! Join us in person at the Washington Monument or online at 2 pm ET & throughout the day. Your pillowcases are the perfect final touch. Thank you! https://t.co/Thxd67Jdyd
#pwME#pwLC
๐จI wrote about ME/CFS (chronic fatigue syndrome). The US has millions of people with it & maybe two dozen docs who specialize in it.
This medical crisis needs urgent attention, esp. now COVID has hugely increased the number of long-haulers. 1/
https://t.co/TxURal8wCK
A year ago I boarded a train in #Istanbul to investigate one scientist's claim of rediscovering Silphion, a legendary herb thought to have gone extinct 2,000 years ago.
It still grows in the heart of #Turkeyโand it's delicious.
More in my @natgeo feature:
https://t.co/Occ0AKuU9J
If you have about 5 to 10 minutes of time and cognitive function this weekend, we would appreciate any upvotes (comments are great too but not required) in this Department of Labor online dialogue. Deadline is Aug. 10. All details below.
#pwME#LongCovid#MECFS#advocacy
@nunosep1 Photosensitivity and sensitivity to all stimuli was high at onset (severe ME) but started abating as I improved. W/ later neuro mvmt issues, both migraine and photophobia/sensitivity have spiked, tho ME now generally moderate. Some correlation w barometric pressure
My ME/CFS doc just announced heโs retiring. Another is retiring too. Thereโs no one for the patients of these retiring clinicians to go to โ much less the millions of new long Covid patients who need them. 4/
Happy book birthday to A Darkness at the Door @BooksByIntisar ! I'm racing along with Rae in her fight against corruption, and have to say I like this unstoppable pirate queen even more โ๏ธ ๐ ๐
10 years ago, I began to design anatomical origami models to better understand anatomy class in undergrad, starting with the brain first. Who knew I would end up displaying at art galleries/conventions around the world and then later decide to pursue #neurology? #neurotwitter
This is to all the millions of family members, relatives and friends of patients with #MECFS. We encourage you to show the world your reality and how ME affects your life. United our voices will sound louder. Your voice is needed. Please use #CloseToME and SHARE this message.