Emma Slack (she/her)

Science writer, and researcher focusing on chronic illness (particularly ME/CFS) and parental and child health. Living with ME/CFS. All views my own.

[Tina Katsaros @tinakatsaros]

Please join the social media campaign and support #pwME this Christmas.

#SpendChristmasWithME

#MECFS #LongCovid #LC

@MEResearchUK

[Write That PhD @WriteThatPhD]

Confused by ontology & epistemology? A short guide to help you navigate this aspect of research design + a simple framework to demystify the different philosophical positions >> https://t.co/jSRlQOxtv7 by @TomFryer4 #phdchat #phdadvice #phdforum #phdlife #ecrchat #acwri

[ME Research UK - Researcher Zone @MEresearchzone]

'Virtual reality education on myalgic encephalomyelitis for medical students and healthcare professionals: a pilot study' Anderson T. et al. BMC Med Educ 24, 1018 (2024). https://t.co/BWnICtXgCV

[Physios For ME @PhysiosForME]

🚨New study now recruiting on vagus nerve stimulation for people with ME.

We are looking for 40 #pwME who live in NW England (UK) and have never tried vagus nerve stimulation.

All details can be found on our website here

https://t.co/lE5to4m1W0

[ME Research UK - Researcher Zone @MEresearchzone]

ME Research UK have been asked by the #ThereForME campaign to share an opportunity for researchers - the ‘£100m challenge’

In this, researchers are invited to share ideas on "How to spend £100m annually for five years to solve ME and Long COVID"

Info: https://t.co/17DNGUv4K7

[ME Research UK - Researcher Zone @MEresearchzone]

Thank you to all our followers - and a warm welcome to those who are new to @MEresearchzone.

Here, we aim to share:
- New ME/CFS research
- Relevant funding calls
- Relevant conferences and courses
- Resources for researchers and research students

#MECFS #MEresearch

[ME Research UK - Researcher Zone @MEresearchzone]

"Research has a diversity problem. Many groups are underrepresented in research including women, ethnic minorities, people with disabilities and socially disadvantaged populations. " Nature - https://t.co/HTAtn7YzuK

[ME Research UK - Researcher Zone @MEresearchzone]

FUNDING OPPERTUNITY from @MEResearchUK

Please share with anyone interested in investigating the causes, consequences and treatment of ME/CFS.

Funding available for biomedical studies worldwide.

Find out more: https://t.co/02zczO570F

[me-cfs.bsky.social @yann_mecfs]

One of the best ways to help is to participate in ME/LC Research. Here’s how:
🌍Join the @OpenMedF StudyME Registry https://t.co/U7rbtfVClB
🌍 LC studies recruiting near you https://t.co/dFWiJt5ekD @lcstudiesdotnet
🌍 List of ME studies recruiting https://t.co/gwb6GyTmvT

[Tom Kindlon @TomKindlon]

(Worldwide)
I've just received this update.

They are still looking for more people with ME/CFS, Long Covid, #Fibromyalgia, & healthy controls

Sign up here:
https://t.co/re27UGityi

#MEcfs #CFS #PwME #LongCovid

[Emma Slack (she/her) @Emma_Slack1]

Thank you so much to everyone who has shared our study opportunities for people with ME/CFS, and health care professionals relating to family planning, pregnancy, and parenting. We have had a great response so far! The surveys will stay open until 31st Aug 2024 #MEresearch #MECFS

[ME Association @MEAssociation]

The faMEly Study for #HealthcareProfessionals - Please share as widely as possible.

PDF Poster: https://t.co/ULwsGYYkK5

Dr @Emma_Slack1 on behalf of the faMEly study team says:

We have a survey for health care professionals, including midwives, health visitors, obstetricians, and experts in the field of ME/CFS, in the United Kingdom.

Link: https://t.co/0EI3HKMEBJ

#MECFS #MyalgicE #MyalgicEncephalomyelitis #Pregnancy #Childbirth #Research #RamsayResearchFund #MedTwitter

[Emma Slack (she/her) @Emma_Slack1]

Just a quick post to say thank you so much to everyone who has completed our surveys so far, and for the questions and feedback we have had.

Apologies if I have missed anything! If you have any further questions please contact the research team at: [email protected]

[Emma Slack (she/her) @Emma_Slack1]

Thank you for sharing @MEAssociation!!

Please consider taking part in our study if you are able - we are looking for people with ME/CFS, and health professionals who provide care around family planning, pregnancy, and raising children. #faMElystudy #mecfs #meresearch

[Emma Slack (she/her) @Emma_Slack1]

@Chronically2784 @Naomi_D_Harvey @MEAssociation It may be that not all questions are relevant but the questionnaire should direct you. You can also leave us feedback on whether you think we should be asking any other questions, and let us know how we could improve the questionnaire. Hope that helps.

[Emma Slack (she/her) @Emma_Slack1]

@Chronically2784 @Naomi_D_Harvey @MEAssociation Hi, yes — we are looking to hear from a range of people who are over 18, in the UK, and have a diagnosis of ME/CFS. We hope to identify research priorities going forward - including the impact of not being able to have children/MEtaking that decision away.

[ME Association @MEAssociation]

The faMEly Study: #MECFS and pregnancy – an exploratory mixed methods pilot study.

PDF Poster: https://t.co/WqNSG9EqNO

Dr @Emma_Slack1 on behalf of the team says:

We would like to invite people who have a diagnosis of ME/CFS, are aged 18 and over, and living in the United Kingdom, to take part in an online questionnaire about their thoughts and experiences relating to family planning, pregnancy, and raising children.

https://t.co/NnMB7uFnqm

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #Pregnancy #Childbirth #Research #RamsayResearchFund

[Emma Slack (she/her) @Emma_Slack1]

@Naomi_D_Harvey @MEAssociation Hi, yes there is - the questionnaire should direct you to the right section based on your responses. We know how many people are in this situation, and agree that it is hugely important to capture. Thank you for your very important question.

[Emma Slack (she/her) @Emma_Slack1]

Thank you so much to everyone who has already completed our surveys!

We need more health care professionals:
- GPs
- Midwives
- Health visitors
- ME/CFS specialists

Link for HCPs: https://t.co/0XJWVVmVCa

Please complete if you can - and please share! #mecfs #pwme

[Emma Slack (she/her) @Emma_Slack1]

Thank you for sharing @MEAssociation!!

Please consider taking part in our study if you are able - we are looking for people with ME/CFS, and health professionals who provide care around family planning, pregnancy, and raising children. #faMElystudy #mecfs #meresearch

[Dr Morven Brown @Morv_Brown]

Come and join our fantastic cancer survivorship team @UniofNewcastle!😀🙌

Research assist/assoc post delivering a #qualitative & #codesign project on #physicalactivity & #behaviourchange for young people treated for sarcoma. #healthpsychology

https://t.co/l9ZQOA8SE8

[Emma Slack (she/her) @Emma_Slack1]

Thank you for sharing @MEAssociation!!

Please consider taking part in our study if you are able - we are looking for people with ME/CFS, and health professionals who provide care around family planning, pregnancy, and raising children. #faMElystudy #mecfs #meresearch

[ME Association @MEAssociation]

The ME Association is pleased that the faMEly study is now starting to recruit participants. If you are able to take part, we would encourage you to do so. The study is fully funded by the MEA #RamsayResearchFund (RRF).

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #Pregnancy #Childbirth #Research #HealthcareProfessionals #Midwives #MedTwitter