EDS Expert Patient

#EhlersDanlos

[EDS Expert Patient @expertpatientuk]

#gmb I have already passed this to #sacn if the population move to a vegan diet only human health will deteriorate even further. We need adequate zinc absorption everyday as we have no stores and this is impossible on a vegan diet. Zinc is vital for human health

[EDS Expert Patient @expertpatientuk]

@SirTimRice You can call me Dani. You are truly amazing. I loved hearing your stories as well as your lyrics and the music. Could not think of a better way to spend my birthday. 🎂 . Enjoy the remaining 4. Dani

[EDS Expert Patient @expertpatientuk]

Thank you @SirTimRice for a fantastic evening in Cardiff tonight.

[EDS Expert Patient @expertpatientuk]

@JeremyVineOn5 Definitely not, they only want the land to mine the untouched minerals such as lithium and more importantly to human health zinc. Removing these minerals is extremely detrimental to human, animal and environmental health. Happy to provide peer reviewed literature to support!

[Andy Mitten @AndyMitten]

Andys and Andrews in Cardiff for the night. We’re here to see the Cardiff and Vale MUFC supporters’ club. They run a brilliant branch and travel home and away.

[Fiona @Fionakeyworker]

A great peer reviewed publication about overlapping genomics in Ehlers Danlos and long covid https://t.co/ePFJH1Gi3S #ehlersdanlos #longcovid #eds #ehlersdanlossyndrome #enoughisenough

[Fiona @Fionakeyworker]

#EhlersDanlosSyndromes #ehlersdanlos #eds #heds #ehlersdanlossyndrome

[EDS Expert Patient @expertpatientuk]

Zinc deficiency and hypertension paper https://t.co/UdzwcHnctB

[Fiona @Fionakeyworker]

Me and @expertpatientuk spoke to one of the author about our zinc hypothesis and his new paper shows how crucial Zinc has a key role in inflammatory bowel disease and 'leaky gut' and mentions how important diet is https://t.co/mEr5XwSzIS #irritableboweldisease #gastroentology #ehlersdanlos #IBD #leakygut #crohns #ulcerativecolitis #chronicillness #nutrition #ehlersdanlossyndrome

[EDS Expert Patient @expertpatientuk]

@Fionakeyworker @tessfalor

[EDS Expert Patient @expertpatientuk]

@Fionakeyworker @Bradjoy_ @drclairetaylor @DrButtGastro @BluesteinLinda @nerdymedzebra @JeffLubell_C19 @malfaitcmgg @CrohnsColitisUK @CrohnsColitisFn @Autism

[EDS Expert Patient @expertpatientuk]

New Research printed with zinc and leaky gut which confirms all my research

https://t.co/uMvzCygB7x

[EDS Expert Patient @expertpatientuk]

@Charlie_Dimmock Unfortunately methylated folate is not quite the answer. It will help but the folate deficiency is not the route cause. I have been researching for many years now and am currently working with many hypermobility doctors and professors alongside @Fionakeyworker

[EDS Expert Patient @expertpatientuk]

@BSchweinsteiger Morning 😊

[Fiona @Fionakeyworker]

Our next podcast is live Our next podcast on chronic correlations (link below) on apple and Spotify podcasts on our podcast we me and @expertpatientuk talk with @bioniclauren on instagram about her Heds journey and her family her art the world wars and rationing and the EDS spectrum world wide (https://t.co/Kz31B9A7cO please note this is for information only please seek medical advice from a registered medical professional ) #ehlersdanlos #enoughisenough #ehlersdanlossyndrome

[Fiona @Fionakeyworker]

When me and @expertpatientuk have spoken to 50 professors in the world about our Ehlers Danlos and long covid fibro etc research just by reading 98,000 medical publications it goes to the right people are interested #ehlersdanlos #ehlersdanlossyndrome #longcovid #Fibromyalgia

[Fiona @Fionakeyworker]

Heds (hypermobile ehlers danlos ) is on my dads death certificate and my other family as a cause of death so clearly heds is not mild as it’s on a death certificate there is medical publications dating back to the 1980s of crossovers in specific diseases with heds like symptoms it’s hard to watch your family all die of heds and Brain aneurysms ruptures and aortic dissection etc #ehlersdanlos #eds #ehlersdanlossyndrome #heds #EnoughIsEnough

[EDS Expert Patient @expertpatientuk]

@Fionakeyworker @MarkPimentelMD As @Fionakeyworker said Mark many pathogens are associated with SIBO such as the most common gastrointestinal disorder associated with Lyme disease and other tickborne infections is small intestinal bacterial overgrowth (SIBO). It is estimated 60-70% of people with Lyme disease

[Fiona @Fionakeyworker]

Pretty sure mark there are a lot more pathogens to go 😊 like h pylori and sibo see publication below and what about anaerobes mark 😉 can you please confirm sibo causes b12 deficiency and vitamin d deficiency please? Mark you might want to listen to a podcast episode on a podcast called chronic correlations on the 21st July 2023 😉on Apple Podcasts it may interest you 😉 me and @expertpatientuk will see you at the conference in Dublin
https://t.co/JfaQyzPwDE

[EDS Expert Patient @expertpatientuk]

@MarkPimentelMD It’s truly awful and completely embarrassing. You cannot imagine what it is like to be sat in a car full of people and your Sulfur burps make every feel sick or for a crowded place to empty out because you farted plus like you said not knowing if your going to make it in time