Down with the sickness

Tired of this nonsense. M.E. since 2008. Doesn't 'look ill'. He/him

[Down with the sickness @fatigueposting]

Really weird how we live in a world where the DWP funded scientific research to help deny sick people benefits, the study has been proven a fraudulent manipulation and this is all just normal.

[Alisontomyradioooo @arisonsned]

Money’s the motive for calling ME a myth - The Conservative Woman https://t.co/utriiygBKt

[Down with the sickness @fatigueposting]

But 100% of assessments are fit for the purpose of eugenics

https://t.co/PuZO0EodhB

[Laura’s Pen @lauras_pen]

I made a slightly dodgy image out of it

[Eliana @ElianaUku]

Selfishly, I’d love to see #PEM prioritized as a focus area for #LongCovid & #MECFS research. I know it’s hard to isolate a single symptom in this complex web of dysfunction, but it truly is the most life-limiting part of this disease for me (and I suspect for many others).

[Down with the sickness @fatigueposting]

@erikmoldwarrior "a sophisticated form of quackery" 🤦

[Down with the sickness @fatigueposting]

Wow this is just the plot of Jaws but instead of a shark it's a chronically debilitating virus

[Erik Johnson @erikmoldwarrior]

@richardvallee I can vouch for that.
This is the day I saw that there is no science involved.
Dr Cheney found a problem in a Lake Tahoe resort area.
Threatening the tourist economy.
They need to destroy him regardless of whether he was right or wrong.
So that is what they did.

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

We need an independent, judge-led inquiry, with the potential for compensation, into the mistreatment and abuse of people with #MyalgicEncephalomyelitis, including children, who have been threatened with removal from families and subjected to harmful exercise therapy. #MECFS

[Down with the sickness @fatigueposting]

History repeats itself. First as tragedy, then with even more wellbeing practitioners

[Down with the sickness @fatigueposting]

This is what sweeping it under the carpet looks like

[Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇱🇧🇮🇷🇮🇳#pwLC @doctorasadkhan]

Recently there was a flurry of articles in the UK press about patients travelling abroad to access anticoagulants & apheresis. I was quoted in a piece in ⁦@bmj_latest⁩. They have just published my response #LongCovid #MECFS #PoTS #MCAS #NEISvoid https://t.co/OXSDn89QWe

[Down with the sickness @fatigueposting]

Ouch

[@[email protected] @Imani_Barbarin]

A big part of being a disability advocate is just being on standby for when people realize that they themselves are disabled.

[E𝚕𝚢𝚜𝚎 K𝚒𝚎𝚛𝚊 @elysekiera]

Having Severe #MECFS is like sitting among the ashes of your burnt down home, covered from head to toe in soot & debris, whilst searching earnestly for any piece of yourself that has survived the wreckage. #MyalgicEncephalomyelitis #lyme #bedridden #pwME #longcovid

[Katy B @KatyBruce108]

I love the photographer Francesca Woodman's work (1958-1981) & so much of it has always reflected the experience of living with ME for me.

#MEcfs
#pwME

[Down with the sickness @fatigueposting]

Everyone with #mecfs:

Yeah health coverage is always this bad

[Maximillian Alvarez @maximillian_alv]

Bro, what the fuck are US media outlets doing right now I'm losing my goddamn mind.

[Nicole Lee Schroeder, PhD @Nicole_Lee_Sch]

Drs: what's going on?
Me: explains symptoms, shows data tracking changes, gives a few working hypotheses and asks for specific diagnostics to rule out
Drs: lol no that's not how it works you wouldn't be capable of doing this research if you were really that sick #NEISvoid

[E𝚕𝚢𝚜𝚎 K𝚒𝚎𝚛𝚊 @elysekiera]

🧵1/3 What illness exists other than #SevereME & now some cases of #longcovid, where many, (including myself), can not manage to get to a hospital or Dr’s office because we are too sick to endure the trip?

Where speaking or concentrating a little too hard causes instant #PEM..

[Tom Kindlon @TomKindlon]

🧵
Press release for New Zealand paper:

“New research provides insight into Long COVID and ME: Researchers have uncovered how post-viral fatigue syndromes, including #LongCOVID, become life-changing diseases & why patients suffer frequent relapses”

#MEcfs #CFS #PwME #PwLC

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