@HannahD89 @EllisSlt Good luck Ellis! I loved my time as an SLT in the western isles 💙 Make friends with Sarah and Catherine in Stornoway - they’re the best. A little bit of Gaelic comes in handy and always ask for maps when looking for houses for home visits. The numbering system can be confusing!
‘Women weren’t included in clinical trials until the 1990s. we make up 70% of chronic pain patients but 80% of pain medication is tested only on men.’
i will never stop yelling about this.
doctors know less about us so they tell us it’s all in our head.
https://t.co/bRx72kqMm0
Seems like daughter is too ill (bed bound) & in too much pain for the Pain Team & her illness is too complex for the Complex Care Team. Whatever happened to Care in the community @gloshospitals @GlosCCG ? Those who don’t have tick-boxable illnesses are falling through the cracks
Let’s respond to the Pain Management Referral Service Criteria @gloshospitals @GlosCCG “Patient needs help to manage the impact of their pain on their daily life” big ✅ We’ve been telling Pain Team for 6 months whilst daughter deteriorates by the day. Impact = 0 quality of life
Let’s respond to the Pain Management Referral Service Criteria @gloshospitals @GlosCCG “Appropriate investigations and treatment for any possible causes of the pain have been completed” ✅ yep -lots of diagnoses to choose from #lymedisease (you’ll love that one) #smallfibre#POTS
Let’s respond to the Pain Management Referral Service Criteria @gloshospitals @GlosCCG “Difficulties with pain medications which are ineffective, or escalating” ✅ yep - side effects often intolerable, especially when you are chronically ill
Let’s respond to the Pain Management Referral Service Criteria @gloshospitals @GlosCCG “Person has persistent or complex pain (ie has lasted 3 months or more, and associated with significant distress and disability)” ✅ 5+ years of pain ✅ major distress, physical deterioration
“The Pain Management Team helps people who have pain that doesn’t go away” Better change yr website wording to “unless it’s complex in which case we ignore you” @gloshospitals We’ve been begging 4 help for 6 months for life limiting #chronicpain but Pain Team won’t engage #harm
FUNDED RESPITE! I’ve been working hard this year and can now announce I can fund 5 disabled guests and 5 carers up to @Calvert_Kielder this September. Applications are only open for 1 week so please apply/RT/tag/etc!
https://t.co/3YygdQ0k4S