Paula F Freund

I Have ALS/Lou Gehrig's Disease. I Fight Every day and Push Forward. I may have ALS---But I am NOT giving up or giving in to this Monster !! #ScrewYouALS

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

How's this for grassroots #ALS advocacy?

@stevens_nation @everything_als @iamalsorg @bsw5020 @sandymorris333 @nicolecimbura @als_now
@TheEllenShow @NicolleDWallace @maddow @60Minutes @morningmika @Oprah @oprahmagazine @GayleKing @catlinmchugh @Nightline @KorvaColemanNPR @sunny

[Paula F Freund @freund_paula]

@Michell62614519 @stevens_nation @everything_als @iamalsorg @bsw5020 @sandymorris333 @nicolecimbura @als_now @TheEllenShow @NicolleDWallace @maddow @60Minutes @morningmika @Oprah @oprahmagazine @GayleKing @catlinmchugh @Nightline @KorvaColemanNPR @sunny 😊😊

[John Stamos @JohnStamos]

93% chance of living or 100% chance of dying.  My friend @Mayuri_Saxena is dying of #ALS w/o access to therapy in clinical trials that could save her life. Go to https://t.co/4AwSY7YdFT.  Contact every Senator & House member to sponsor Bills S4867 & HR8662 by Dec11 #MND

[Paula F Freund @freund_paula]

This will be my Thanksgiving Dinner
And every meal every day
WE NEED THERAPIES APPROVED ASAP

#ALSAWARENESS
@als_now @stevens_nation
@iamalsorg @TeamGleason

[Paula F Freund @freund_paula]

@JoeBiden @KamalaHarris @PeteButtigieg

ALS Patients need your help starting Jan 20,2021

[sandra castillo cano @sandrac37082124]

ALS patient. Years without walking and now he's starting to do it thanks to injections with #NUROWN. NOW approval and worldwide production.@BrainstormCell @EMA_News @US_FDA @Cylebo @ralph_kern @MaryKayTurner1 @EU_Commission @vonderleyen @SKyriakidesEU @EUpALS @pcanfin

[No More Excuses ALS Watchdogs! @als_now]

You must now grant accelerated approval based on your OWN words @US_FDA @FDACBER @DrWoodcockFDA @RepMikeQuigley @JeffFortenberry @statnews @statnews2 #ALS #ENDALS @alsassociation @cnn @WhiteHouse @realDonaldTrump @VP @BrainstormCell @SecAzar @PressSec @SteveFDA @stevens_nation

[Paula F Freund @freund_paula]

@JoeBiden @KamalaHarris @US_FDA @fda

[I AM ALS @iamalsorg]

"When a process isn’t working, it’s time to change the process." - @bsw5020 + @JeffFortenberry

Take action to push forward legislation that will create real pathways to faster and broader access to therapies: https://t.co/8fhwPyWbga

📖 the op-ed here: https://t.co/MlIXiRlQWt

[Deborah Midgley @DeborahMidgley1]

We need ALS therapies yesterday! @realDonaldTrump @RareDiseases @SteveFDA @NIHDirector @Surgeon_General @SenSchumer @SenGillibrand @RepJohnKatko @SecAzar
#ALStragedy #NUROWN
SUPPORT S.3872 & HR.7071

[jorge bazan @jorgevbazan]

Foro ELA Argentina Valiente asks for an expedite program allowing access to NUROWN #NurownWORLD
@MaryKayTurner1 @Cylebo @david_setboun @ralph_kern @BrainstormCell @US_FDA @SteveFDA @EMA_News @MarinaBazan7 @LuchaEla @abautista75 @ThurmanTough
@Markbedwell11 @RodrigoBazan15

[Evan Campa @EvanCampa]

Having been in the #Nurown trial and believing it slowed my #ALS progression, I can’t emphasize enough: we NEED faster access to critical therapies!

@RepMikeQuigley @JeffFortenberry @iamalsorg @NIHDirector @stevens_nation

https://t.co/Ciqc4OD5r8

[Paula F Freund @freund_paula]

@realDonaldTrump @POTUS @SecAzar @FDACommissioner @als_now @iamalsorg @stevens_nation

President Trump:
Instead of creating silly Executive Orders for Nonsense....Why not Help 30,000 ALS Patients gain access to Promising therapies.

You might get some better support !

[Paula F Freund @freund_paula]

@SteveFDA @realDonaldTrump @FDACommissioner @US_FDA @POTUS @USSenate @stevens_nation @iamalsorg @als_now

#Nurown #FDAApproval #ExecutiveOrder

[Yolanda Delgado @YolandaDn44]

@als_now @realDonaldTrump @POTUS @WhiteHouse @NIHDirector @NIH @JeffFortenberry @VP @SenMcSallyAZ @SenTedCruz @LindseyGrahamSC @KellyannePolls @MarkMeadows @HHS_ASH @stevens_nation @FDACBER @SecAzar NUROWN PLIS
@realdonaldtrump, @MarkMeadows, @SecAzar, @VP, @FDACBER, @SteveFDA, @JeffFortenberry, @kellyannepolls, @NIHDirector, @SURGEON_GENERAL

[No More Excuses ALS Watchdogs! @als_now]

https://t.co/RSAWWYEgau @realDonaldTrump @POTUS @WhiteHouse @NIHDirector @NIH @JeffFortenberry @VP @SenMcSallyAZ @SenTedCruz @LindseyGrahamSC @KellyannePolls @MarkMeadows @HHS_ASH @stevens_nation @FDACBER @SecAzar #alsaassociation

[axeALSFoundation @stevens_nation]

@ChrisCoons @alsadvocacy @SenatorBraun Thank you @ChrisCoons and @SenatorBraun! Please help us dying patients get access to potentially life saving treatments stuck in FDA trials! There are several therapies showing promising results. We don't have time to wait! Please help us!! 🙏 #axeALS #PushForTreatment