Annelise Roennow

Media manager of Federation of European Scleroderma Associations. Fun, loving, aunt, have scleroderma, librarian.

[Annelise Roennow @frk_bibo]

I dag er International Sklerodermi Dag, en sjælden bindevævssygdom som kan ødelægge hud, organer og blodkar.

[Fesca @Fscleroderma]

🌻 This #WorldSclerodermaDay join us on a journey of resilience and self-discovery. The journey of those who face the challenges of this disease day by day.

But today, we're blooming together. We #BloomWithScleroderma!

👉 Watch the full video: https://t.co/mnVdVyHFNi

[Annelise Roennow @frk_bibo]

🩺SHOUT-OUT to all the amazing nurses🩺

#nurseday #Nurses2023 #nurseday2023 #thankyou

[Annelise Roennow @frk_bibo]

@immystone @InstagramComms Same here

[Annelise Roennow @frk_bibo]

@InstagramComms Looks like my account is deleted. How can family, traveling, book recommendations cause account to be deleted??? Years of good memories gone.

[Annelise Roennow @frk_bibo]

I tirsdags var jeg i Europa Parlamentet for at advokere for tidligere diagnose, bedre behandling samt vilkår for den sjældne bindevævssygdom, sklerodermi på tværs af grænserne. Drømmen er at tilgang er ens uanset om du bor i Danmark eller på Cypern, for sådan er det ikke i dag.

[Fesca @Fscleroderma]

@frk_bibo shares her inspiring story, giving us the strength to continue in our fight to help raise awareness for Systemic Sclerosis. #BloomWithScleroderma

[Øresundsbron @oresundsbron]

Øresundsbron viser sin støtte til Ukraine ved at oplyse broen i gult og blåt hele weekenden!

[TV2 Nord @TV2Nord]

Voldsomt: Regn og torden har givet udfordringer i Nordjylland https://t.co/tBmbMlZRPP

[The New York Times @nytimes]

From high school thrillers to fairy tale retellings, here are 10 YA books you won’t want to miss this season: https://t.co/G3B2nRchbF

[SRUK | Scleroderma & Raynaud's UK @WeAreSRUK]

SAM is fast approaching and we have TWO webinars coming up!

💻Webinar - SRUK Presents: 'The role of physical activity in managing fatigue in people with Scleroderma' with @PhysioWillGreg

Wednesday 9th June 2021, 3pm (GMT+1)

Register - https://t.co/KIzneNhDTC

Read more ⬇️

[Fesca @Fscleroderma]

The countdown is on with only 7 days until we enter June and Scleroderma Awareness month begins.

We are working hard on the final touch of the campaign and we hope that you will like it as much as we do. 🌻

#scleroderma #systemicsclerosis #sclerodermaawareness #sclerosmile

[Magnus Heunicke @Heunicke]

Hasteindkaldt uformelt sundhedsministermøde netop nu om situationen med den smitsomme variant B117 og vacciner. Klart budskab fra @ECDC_EU: Varianterne udgør en trussel mod alle lande. Derfor fasthold indsatsen, øg sekventering og speed vaccination op i landene.
#covid19dk #eudk

[WebMD @WebMD]

If your glasses fog up while wearing a mask, you're not alone. While there's no perfect solution to fix it, there are some things you can try to minimize the fog. https://t.co/oMVIF1oa5t

[Fesca @Fscleroderma]

Remember to focus on your mental wellbeing.

Try a walk, mindfulness, painting, reading, talking to others and other things that brings you joy.

#scleroderma #systemicsclerosis #wellbeing

https://t.co/5wjz0PgPD7

[Fesca @Fscleroderma]

We are happy to share, that the upcoming patient e-congress 2020 will be recorded and available from 12 July to 20 December.
https://t.co/DEeA0LPRfR

#scleroderma #systemicsclerosis #worldcongress #patientecongress

[Anna Hoffmann-Vold @hoffmann_vold]

@actelion_com @Fscleroderma I also very much agree. I refer all my patients to patient supporting groups. #WorldSclerodermaDayChat #ScleroSmile

[Scleroderma Society of Ontario @scleroderma_sso]

Today marks 80 years since Swiss-German artist Paul Klee passed away from complications of #scleroderma. The date - June 29 - is recognized as #WorldSclerodermaDay to honour Paul and the thousands of men, women and children living with this terrible disease.

[𝗙𝗮𝗿𝗮𝗵 @FarahKhaleck]

@actelion_com For me, support purely came from my family. I am surrounded with love and support and that has been my major source of strength and zeal. 1/2 #WorldSclerodermaDayChat #ScleroSmile.

[Maria Grazia Lazzaroni @LazzaroniM]

@actelion_com Peer support is a great opportunity for #patients living with #scleroderma and their families, to increase their #Awareness and improve their #QoL. Clinicians can help patients in becoming part of these online or live networks #WorldSclerodermaDayChat #ScleroSmile

[Fesca @Fscleroderma]

@actelion_com #Scleroderma can impact on all aspects of a person’s day-to-day life, so peer support based on lived experience, an understanding of the condition and empathy is important to a person’s sense of wellbeing @Fscleroderma #WorldSclerodermaDayChat #ScleroSmile