G1D Foundation

The GLUT1 Deficiency Foundation is a non-profit family organization dedicated to improving lives in the Glut1 Deficiency community.

[G1D Foundation @G1DFoundation]

Join Hearts of Hope this #NationalNonprofitDay to build the next 15 years of the Foundation!

Hearts of Hope is our monthly giving program, where your generosity funds the work ahead for the #GLUT1 community: https://t.co/szNGc0Taor

[G1D Foundation @G1DFoundation]

Grateful for everyone who joined us for the #GLUT1Summit2026 in Asheville! Families, researchers, our wonderful speakers, clinicians, advocates, sponsors... You all made a difference.

We're feeling inspired, hopeful, and so thankful for your support.

#GLUT1Summit26

[asGLUTdiece 🧬 @asglutdiece]

@G1DFoundation @Deficitdeglut11 @FEDER_ONG @NoInvisibles @hospitalclinic @HospitalLaFe @Fecoer @FADEPOF @FEMEXER @FECHER_CL @CentroCREER Nuestra representante de la #ComunidadHispana la Dra. @SandraO68118594, Directora Científica de la @G1DFoundation, desde #Glut1Summit2026 nos explica que hay esperanza, mejores cuidados para nuestros hij@s y agradece a la gran #ComunidadGlut1 el hecho de estar siempre unida.

[G1D Foundation @G1DFoundation]

Thank you to all #GLUT1Summit26 sponsors! We look forward to seeing everyone tomorrow.

The Summit is such a special time for the #GLUT1Deficiency community to come together to meet, share, & learn. We are deeply grateful to everyone who helps make this gathering possible!

[Share4Rare @Share4Rare]

💙 En el #DíaMundialDelGlut1 @asglutdiece participa en una campaña mundial para iluminar el mundo y mostrar la presencia de las personas condéficitt de #GLUT1.

💙 On #GLUT1AwarenessDay help @G1DFoundation light up the map to represent anybody with #GLUT1Deficiency.

[Abraham Alahmad, PhD 🇺🇸 🇫🇷 🥨💚🔬💊🧠 @scientistabe]

Proudly flying the GLUT1 Deficiency Sybdrome and the @G1DFoundation community colors at the @GordonConf “Barriers of the CNS”.
Love Some1 with GLUT1.

[G1D Foundation @G1DFoundation]

Science Director, Dr. Sandra Ojeda, represented the G1DF this past weekend at the Parkinson and Movement Disorder Society – Pan American Section Congress in Houston.

Raising awareness, sharing resources, and connecting with clinicians and researchers.

[G1D Foundation @G1DFoundation]

📢 Registration is open for the #GLUT1Deficiency Scientific and Family Summit, July 13-15 in Asheville, North Carolina.

Early Bird pricing is available through March 15: https://t.co/2vNTsnCNwB

[WashU Medicine Neurology @WashUNeurology]

@G1DFoundation has designated WashU Medicine Neurology / St. Louis Children's Hospital as a GLUT1 Collaborative Care Center of Excellence — one of only 25 in the world!
Read more about our mission to provide excellent patient care: https://t.co/UpG1ba6aYp

[G1D Foundation @G1DFoundation]

We’re excited to announce the launch of our Collaborative Care Center Network, bringing together 25 designated centers committed to improving care for individuals and families affected by GLUT1 Deficiency.
Learn more:
https://t.co/5YeHRrBJGl

[G1D Foundation @G1DFoundation]

A powerful story of friendship between GLUT1 Deficiency hero Alaina Shelsta and Denver Broncos Quinn Meinerz.

Alaina’s courage helped pioneer diazoxide, now in clinical trials. Quinn’s advocacy has raised awareness for years. Grateful for them both 💙

https://t.co/gBuWUQcNOW

[G1D Foundation @G1DFoundation]

Applications are open now through December 1st for our new Collaborative Care Network initiative - an effort to improve care for GLUT1 Deficiency patients and families and recognize centers of excellence. Learn more...

https://t.co/pXjVRCYrkG

[G1D Foundation @G1DFoundation]

We’re excited to announce the launch of our Collaborative Care Center program, created to recognize hospitals and clinics that provide outstanding, patient-centered care for the GLUT1 Deficiency community.

Learn more and share with your team!
https://t.co/d0sdAiouiS

[G1D Foundation @G1DFoundation]

The G1DF was honored to be a charity sponsor of the 9th Global Symposium on Ketogenic Therapies and the 5th European GLUT1 Meeting last week in Paris and congratulate Dr. Jörg Klepper on the John Freeman Award!

Read some meeting highlights:
https://t.co/upeu6IRCE3

[G1D Foundation @G1DFoundation]

We're full of gratitude for all those who helped make the first ever GLUT1 Deficiency Research Workshop such a wonderful and impactful experience - read more about it on the GLUT1 Glimpses blog:

https://t.co/cpy8S3Rppt

[G1D Foundation @G1DFoundation]

Welcoming our summer intern - so thankful to have Lindsey on board for some special projects she's going to tackle. Learn more on our Glut1 Glimpses blog:
https://t.co/jqxiAHXFXK

[G1D Foundation @G1DFoundation]

Want to hear lightning talk updates on GLUT1 Deficiency research and participate in working sessions to help improve clinical care and drive progress? Join us at the inaugural Research Workshop July 24th and 25th in New York City.

https://t.co/raRLXxVOcl

[G1D Foundation @G1DFoundation]

Groundbreaking research from G1DF Science Advisor Matt Gentry and colleague Ramon Sun. Two amazing scientists who are also giving time, attention, and expertise to us with the same technology. They've made a lot of great things happen already!

https://t.co/G7HLwYEbGc

[G1D Foundation @G1DFoundation]

SO MUCH gratitude for the team effort to make this possible! Thrilled to announce a $60,367 grant opportunity for Glut1 Deficiency research to drive progress toward earlier diagnosis and easier and better treatments.
https://t.co/0nFmRkaHZ5

[G1D Foundation @G1DFoundation]

Thrilled to share our first research publication, summarizing our recent efforts to drive patient-centered research progress. Big congratulations to lead author Dr. Sandra Ojeda, and thanks to Chantal Sanchez and Glenna Steele for being part of the team!

https://t.co/hekiACjgZT