Gene Veritas

Huntington's disease advocate, blogger, and historian of science, technology, and medicine (aka Kenneth P. Serbin)

[Gene Veritas @geneveritas]

Brain donations from #HuntingtonsDisease patients like Dorlue Schulte to the Harvard Brain Tissue Resource Center are crucial for the cure of neurological disorders but could lose @NIH funding @HDSA @SenMcConnell @SenWarren @Harvard @McLeanHospital @maddow https://t.co/E05uvkSeT9

[Gene Veritas @geneveritas]

Dr. Jody Corey-Bloom’s succinct, comprehensive, and up-to-the-minute annual overview of Huntington’s disease clinical research and trials. https://t.co/NV7Dtep2Yc

[Gene Veritas @geneveritas]

With $1 million grant from @HDFCures @harvardmed Mouro Pinto Lab is deploying CRISPR to target genetic modifiers of somatic expansion in #HuntingtonsDisease, testing an experimental drug in mice to deactivate harmful MLH3 scissors #CureHD @HDSA @Help4HDI https://t.co/dXyhD01VAr

[Patrick J. Kennedy @PJK4brainhealth]

A big thank you to Cardinal Blase Cupich for presenting his Holy Father with a personalized copy of Profiles in Mental Health Courage!!

[Gene Veritas @geneveritas]

At symposium Hereditary Disease Foundation @HDFCures featured an interview with Michael about how he navigates #HuntingtonsDisease with joy, inner strength. “You’re a hero!” declared @FoxTacie. #CureHD @HDSA @Help4HDI @Neurocrine @Ionispharma @PTCBio https://t.co/TDjZxWG9mp

[Gene Veritas @geneveritas]

Learn how San Diego’s @Neurocrine developed INGREZZA for #HuntingtonsDisease chorea, how it compares to Xenazine, Austedo https://t.co/KzIkdPquwY @HDSA @Help4HDI @Pontifex @GavinNewsom @ToddGloria @biocom

[Gene Veritas @geneveritas]

Louise Vetter is resigning as head of HDSA. It's critical for the HD community to find a superb successor.

[HDSA @HDSA]

📢 A message from Louise Vetter, President & CEO of HDSA.

To read the full message, please visit: https://t.co/VrzrZbKO8D

#HDSA #HuntingtonsDisease

[Gene Veritas @geneveritas]

@HDSA Thank you, Louise Vetter, for your service to HDSA and the HD community. You will be missed!

[Gene Veritas @geneveritas]

Impactful @XWilliamYang1 Research Group @UCLA employs a multi-pronged effort to investigate potential therapeutic targets for #HuntingtonsDisease, spurs hope #HDAwarenessMonth #CureHDNow @HDSA @Help4HDI @Pontifex @POTUS @Roche @Ionispharma https://t.co/RVBOWVM9mT

[Gene Veritas @geneveritas]

A crucial interview with @RobertPacifici of CHDI Foundation about the fight to cure #HuntingtonsDisease #CureHDNow @hdfcures @HDSA @HuntingtonSG @Help4HDI @Roche @PTCBio @uniQure_NV @VertexPharma @NIH @NYTimes @statnews https://t.co/6vRO5zJ28I

[Gene Veritas @geneveritas]

After “terrific” conference, CHDI Foundation head scientist declares that #HuntingtonsDisease community will “get there” in search for therapies. #CureHDNow @Pontifex @POTUS @HDSA @Help4HDI @Roche @PTCBio @uniQure_NV @VertexPharma @NIH @NYTimes @statnews
https://t.co/lBEZxQ5M3w

[Journal of Huntington's Disease @journal_hd]

In this review article, Dr Jenny Morton of @Cambridge_Uni argues that studies in HD animals provide compelling evidence that sleep and circadian deficits should be better studied in humans.

➡️https://t.co/ngovz0A3ww

#Huntingtonsdisease #Sleep #HDResearch

[Pope Francis – ARCHIVE @Pontifex266Arch]

It is not necessary to be wealthy to do good. Rather, it is almost always common people who devote their time, skills and heart to caring for others. #ApostolicJourney #Mongolia

[Gene Veritas @geneveritas]

After @US_FDA approval of once-daily INGREZZA for chorea in #HuntingtonsDisease @Neurocrine vows to seek disease-modifying therapies. #CureHDNow @Pontifex @HDSA @HuntingtonSG @NIH https://t.co/RQDXw9UNzm

[Gene Veritas @geneveritas]

Alarming, heartbreaking destruction by @Lahaina wildfires a reminder to strive for human solidarity, peace, and ensure resources to conquer devastating disorders like #HuntingtonsDisease, #Alzheimers #CureHDNow @Pontifex @POTUS @SecBecerra @NIH @HDSA @Maui https://t.co/5BdNXW9Z4h

[Gene Veritas @geneveritas]

This holiday season with fears of World War III and millions needing cures for neurological disorders, cancer, and other maladies let people everywhere and their leaders embrace a new global ethic of #FightDiseaseNotWar @Pontifex @JoeBiden @KremlinRussia_E https://t.co/Slra2HXfw5

[Gene Veritas @geneveritas]

Journal of Huntington’s Disease @journal_hd published my article “Striving for a Realistic and Unapologetic View of #HuntingtonsDisease,” about my blog: since 2005 321 articles giving voice to HD community, exploring history of the cause. #LetsTalkAboutHD https://t.co/Y9mqD5PQeL

[HDSA @HDSA]

Tell your #Representatives & #Senators to ACT NOW to make sure the #HDParityAct is passed before the end of the year to remove the 2 year waiting period for #Medicare for people with #HuntingtonsDisease.

➡️https://t.co/VnO9toPyZ3

#LetsTalkAboutHD #HDSAFamily #PasstheHDParityAct

[Ionis @ionispharma]

Ionis announces European Medicines Agency accepts Marketing Authorization Application of tofersen to treat rare, genetic form of ALS $IONS https://t.co/bEoW5EkUtO

[Gene Veritas @geneveritas]

Dr. Jody Corey-Bloom’s annual comprehensive and up-to-the-minute #Huntingtonsdisease research update: therapies inching ever closer to reality @HDSA @jcoreybloom @ucsd_hdcrc @Roche @SageBiotech @neurocrine @uniQure_NV
https://t.co/vdCBEURjg2