Top Tweets for #ABforEB
“The butterfly counts not months but moments, and has time enough.” ~ Tagore
#ABforEB #EpidermolysisBullosa #EB
“For he lives twice who can at once employ the present well, and e'en the past enjoy.” ~ Alexander Pope
An Amazing 3rd birthday to Archer, the boy who taught his father stop asking why and to start learning how. No ends of the earth can hold the love we have for you. #ABforEB
This is my son Archer, who has RDEB, a skin condition that currently has no treatment and no cure. Already at this point in his life, he would be classified as terminally ill.
But this shows that perspective can turn even the toughest times into the greatest memories! #ABforEB
Question for my friends @CoachSoderling and @CoachNRizzo and the soccerchat community...
Good rhythm for a two year old or no? 😀 #soccerchat #Archer #ABforEB
Keep going, be fierce, find your love and share the hell out of it!!! #ABforEB @MGoKirbs @TabsGoBlue @cozi2005 @elizagnnnn @CoachGummiBaer @afiercemind @CoachSoderling @sue @coobles321 @SportsJimShow @TOPSCoachShawn @TheBigRideforEB @WishlistCTW @ChatSoccr @EUpchurchPhoto
Thank you so much for sharing and we are so thankful for @EBResearch! #ABforEB #QuarantinesarelifewithEB #Bethereason
@CoachEricPogue
@ChatSoccr
@PSC_Soccer
@UMNChildrens
@MottChildren
#ComeSayHi to Archer! He's confident and spirited and loves music, fall breezes, and Disney Pixar movies. Archer, who lives with RDEB, "is a 2-year-old boy conquering the world one small and cautious step at a time," says his dad, Kirk. #EBSuperhero #HealEB 💫🦋💖
“It’s not enough that we do our best; sometimes we must do what is required.” ~ Winston Churchill
Sharing our families experience surviving the coronavirus, and how easy it is to forget that we are all in this together...”A healthy you, is a healthy me...” #ABforEB
Midnight starts #RareDiseaseDay 2020. For Archer and his severe RDEB subtype, he truly is our one in a million! RDEB is a very rare connective tissue disorder where his body doesn’t produce the protein thats needed to keep the layers of his skin bonded. #ABforEB #RareDisease
Please pray for baby Archer everybody! Someday I really hope to meet Archer! I love the Archer t-shirts that his family sent mine! Thank you Brazeau family! Archer is warrior and so is your whole family! #ABforEB #ArcherStrong @KirkBrazeau
Dressed true to the season, our family would like to send our warmest wishes to all of you and yours for a great Holiday! So much love and many thanks for all your support of Archer and our family. You are our gifts under the tree each day. #ABforEB #Archerstrong #Dapper
We each face pain in ways that are individually unique. But those who truly were afforded no choice in the battles given to them...they don’t bother to feel sorry for themselves, and show us that we shouldn’t either. Don’t ever forget who you are and always be the spark #ABforEB
Life is often what our perspective allows it to be...As hard as it can get, Archer always shows us to do everything as if you are experiencing it for the first time...You never know who may just need your smile today...#becontagious #firsttime #openeyesandpurehearts #ABforEB
In a period of dark days and heavy hearts...These are Archers first true steps ever! About 2, fighting a debilitating disease where his feet have never been able to feel the ground. For us - This is life. This is real. And this is beautiful😭 @EBResearch @thekillers #FridayFaith
In a period of dark days and heavy hearts...These are Archers first true steps ever! About 2, fighting a debilitating disease where his feet have never been able to feel the ground. For us - This is life. This is real. And this is beautiful😭 @EBResearch @thekillers #FridayFaith
#ABforEB 💪🏼💚🍀
In a period of dark days and heavy hearts...These are Archers first true steps ever! About 2, fighting a debilitating disease where his feet have never been able to feel the ground. For us - This is life. This is real. And this is beautiful😭 @EBResearch @thekillers #FridayFaith
@HOMAGE @EBResearch This is so unbelievably awesome!!! Thank you @homage for your help to fight back against EB! Such an awesome campaign! #TeamArcher #ABforEB
This little guy was excited to see that the butterflies have migrated all the way here to a Toledo, Ohio...and they even flew here in the “A” formation 😀 #CTWButterfly #CauseTheWave #HealEB #ABforEB
@WishlistCTW
Our family are forever grateful to have Archer in our life just as he is. We are indebted to the caring community that @debraOfAmerica provides. The way @NVSoccer16 and @PSC_Soccer programs and @BCSNsports embraced our family and cause is pure class....
https://t.co/3IMJ1zFMlo
A little new day inspiration from a boy, some music from @JourneyOfficial and his cars. 🦋🍀 #DontStopBelievin #ABforEB #ArcherStrong
#ABforEb 〽️
Being his dad and all, I’m impressed with his love for and imitation of, the greatest fight song in the land. Archers love for @UMich @UMichFootball @umichbball @umichhockey @umichsoccer @UMichAthletics @umichmedicine @MottChildren @MottDocs @UMichNursing knows no boundary! 〽️ 🦋
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