Top Tweets for #CauseTheWave
Until you meet someone with EB, their pain can be hard to understand. EB Research Partnership Co-founder Eddie Vedder explains what life is like with Epidermolysis Bullosa (EB) and why, with your help, we can #HealEB forever. Head to https://t.co/fH3EkW1Ssg to learn more.
On November 18 at 8pm ET, join Eddie & Jill Vedder for the virtual Heal EB event, Venture Into Cures.
The show includes the premiere of new songs by Eddie, inspired by EB families: the debut of “Matter of Time” & a new version of “Say Hi."
More info: https://t.co/ZGzzWOVHeh
Advocacy. Friendship. Support. Fundraising. Donors. Community. None of this would happen without you. We are forever grateful. Thank you for your continued support to #CauseTheWave to #HealEB!
#CauseTheWave and Venture Into Cures with EBRP! 🌊 - https://t.co/ML7Q9k0Myr
#CauseTheWave and Venture Into Cures with EBRP! 🌊 - https://t.co/OwlYAzHxDx
#CauseTheWave and Venture Into Cures with EBRP! 🌊 - https://t.co/rywcZKIK3Q
An exclusive series for #CauseTheWave Pearl Jam Fan Movement in honor of Rare Disease Day, Tim Au-Yeung donated his time and artistic skills by creating eye-catching portraits of individuals who have EB (Epidermolysis Bullosa) and changing the way people perceive those with …
An exclusive series for #CauseTheWave Pearl Jam Fan Movement in honor of Rare Disease Day, Tim Au-Yeung Artist donated his time and artistic skills by creating eye-catching portraits of individuals who have EB (Epidermolysis Bullosa) and changing the way… https://t.co/V1Wx5Z1MAx
💚 #repost @superjax_thebutterfly
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Strongest person I know!❤️🦋
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa #JillVedder #EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
🐵 #repost @caresforethan
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Happy Kiddo. This morning after sleepover. Sleepover @tanta and memy.
#eb #cureeb #happykiddo #happylife❤️
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa #JillVedder #EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhi…
💛 #repost @comesayhitoeli
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We zoom-schooled today. 🧽👨💻💻 @spongebob
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa #JillVedder #EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
Let's #TakeFlight together and join the #CauseTheWave Pearl Jam Fan Movement team for @ebresearch’s first-ever virtual race to heal EB!
Link in bio! 🦋👟❤️
How great does Claire and her twin nieces look in our #WhatsUpDoc T-shirts? Share your #JeansforGenes T-shirt pics and help to raise awareness of #geneticdisorders
#raredisease #ebwarrior #healeb #causethewave #love #doen #arara #epidermolise #comesayhi #rarediseaseawarenes
Help us wish John a very happy 18th birthday! 🥳❤️🦋
#repost @fayezied
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Boom! 18 baby! The future will be awesome Hudsy🎂💞
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa
#EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #Genet…
Happy, happy birthday Elodie! 🥳
#repost @plungeforelodie
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Happiest 4th birthday Elodie! This sweet, adorable and brave little lady - along with every child and family facing EB - is our daily inspiration to #healeb 💗🦋🎈
#CauseTheWave to #HealEB
#EBRP #EpidermolysisB…
🥰 #repost @mrs.eldred
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They are the BEST 🥰 Loving our little family adventures as a team of 3 before miss Theo makes her entrance.
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa
#EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Don…
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