Top Tweets for #EBwarrior
Shining a light on #EpidermolysisBullosa for #RareDiseaseDay and shout out to my #EBWarrior - the sweetest, funniest and strongest boy ❤️❤️
Shining a light on #EpidermolysisBullosa for #RareDiseaseDay and shout out to my #EBWarrior - the sweetest, funniest and strongest boy ❤️❤️
Finally lanced it! Have had this blister on my mind all day! Been waiting for my son to sleep so I could lance it as they aren’t self limiting blisters #epidermolysisbullosa #EBwarrior
A massive thank you @Bham_Childrens ward 17&9 and of course the EB team for the care of our son. It's been a long 7 days but at last we are home now for Ollies recovery. #Gastrostomy #NHSheroes #EBWarrior.
4️⃣! #Repost @comesayhitoeli with @make_repost
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Hello 4th grade!
#EBRP #EpidermolysisBullosa #PearlJam #EddieVedder #JillVedder #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
Join us in person at the Ride for EB Fundraiser on September 12th in Niagara. You can register now at:
https://t.co/RHZ9oJHBjO
#biking #rideforeb #jointheride #fundraiser #community #ebawareness #EBwarrior #EB #Canada
💚 #repost @superjax_thebutterfly
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Strongest person I know!❤️🦋
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa #JillVedder #EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
🐵 #repost @caresforethan
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Happy Kiddo. This morning after sleepover. Sleepover @tanta and memy.
#eb #cureeb #happykiddo #happylife❤️
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa #JillVedder #EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhi…
💛 #repost @comesayhitoeli
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We zoom-schooled today. 🧽👨💻💻 @spongebob
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa #JillVedder #EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
#RareDisease @JeansforGenes: 'How great does Claire and her twin nieces look in our #WhatsUpDoc T-shirts? Share your #JeansforGenes T-shirt pics and help to raise awareness of #geneticdisorders
#raredisease #ebwarrior …, see more https://t.co/Mmf1eHDOeE
How great does Claire and her twin nieces look in our #WhatsUpDoc T-shirts? Share your #JeansforGenes T-shirt pics and help to raise awareness of #geneticdisorders
#raredisease #ebwarrior #healeb #causethewave #love #doen #arara #epidermolise #comesayhi #rarediseaseawarenes
Help us wish John a very happy 18th birthday! 🥳❤️🦋
#repost @fayezied
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Boom! 18 baby! The future will be awesome Hudsy🎂💞
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa
#EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #Genet…
🥰 #repost @mrs.eldred
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They are the BEST 🥰 Loving our little family adventures as a team of 3 before miss Theo makes her entrance.
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa
#EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Don…
💚 #repost @brady.thebrave
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After I told him it was time to go inside and get ready for bed 💋🌙 #CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa
#EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
Good luck, Eli! ❤️ #repost @comesayhitoeli
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Heading into the OR to get my teeth fixed! 🙏🦷😁 #CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa
#EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
❤️ #repost @mrs.eldred
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You are the sunshine through the rain baby girl 🌞🌧🌈 #CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa
#EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
💙 #repost @comesayhitoeli
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Busted out of the house for a doctor appointment! ☀️☁️☀️ #CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa
#EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
Nicky & Silvia ❤️ #repost @ebmom
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I ❤️ my Nini
#CauseTheWave to #HealEB
#EBRP #EpidermolysisBullosa
#EddieVedder #PearlJam #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder
Honoring our EB moms and sending much love to you this Mother’s Day! 💞
You are the definition of #EBsuperhero and deserving of all the love, recognition, and praise not just today but everyday for taking care of every #EBwarrior. 🦋
#HappyMothersDay #CauseTheWave to #HealEB…
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